Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Need Help

Guest 6kmom

By Guest 6kmom
in Parents, Friends and Loved Ones of Celiacs

Recommended Posts

Guest 6kmom
Guest 6kmom
Posted

We are suspecting that my 9 year old has celiac or a very severe gluten intolerance. He has always had headaches, muscle cramps, very sensitive stomach and very irratable (no wonder). He had a 4 day spell where he could keep nothing down. After going to the doctor and having some normal tests done I decided to pull him off of gluten. He was wonderful for 10 days. He kept everything down and said he felt better than he has ever felt. When I talked to the doctor about getting testing done she said put him back on gluten and come back in a month. Within hours of ingesting the gluten, he was sick again. After several days of not keeping anything down I talked to the pediatric GI. They said get the blood work done right away. He has been back off of gluten since and still hasen't keep anything down. We are now at 1 week of throwing almost everything up.

Does anyone have any hints for me? Help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

How scary for you! What is he eating? Have you tried plain white rice and applesauce?

AlwaysBrightMorningStar Newbie
AlwaysBrightMorningStar
Posted

Just to let you know right now I hate typing so if I get sloppy....My daughter who is 8 was just diagnosed with celiac disease february 10th. Before that she had throwing up bouts that could last for days. She would just throw up bile for hours and hours. went to the hospital a couple of times for dehydration too. Dont know if this would help your son or if its even the same circumstances really but i gave my daughter a drug that they use for chemo patients. Its for nausea and vomiting and it would stop it instantly for her. If you havent tried that it might be worth a try. Its called Ondansetron and i do believe its generic. I always got the kind that just gets held under the tongue and disolves that way you dont have to worry about trying to take in water if its a pill( my daughter would definately not have been able to do that) Well I hope that this will be of some help for you,if not now, maybe in the future because im praying that your son is already on the mend.:)

Chelsea-A Rookie
Chelsea-A
Posted

We are suspecting that my 9 year old has celiac or a very severe gluten intolerance. He has always had headaches, muscle cramps, very sensitive stomach and very irratable (no wonder). He had a 4 day spell where he could keep nothing down. After going to the doctor and having some normal tests done I decided to pull him off of gluten. He was wonderful for 10 days. He kept everything down and said he felt better than he has ever felt. When I talked to the doctor about getting testing done she said put him back on gluten and come back in a month. Within hours of ingesting the gluten, he was sick again. After several days of not keeping anything down I talked to the pediatric GI. They said get the blood work done right away. He has been back off of gluten since and still hasen't keep anything down. We are now at 1 week of throwing almost everything up.

Does anyone have any hints for me? Help!

What did the blood work show?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,635
    • Most Online (within 30 mins)
      7,748
    yellowstone
    Newest Member
    yellowstone
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • yellowstone
      What foods can trigger a response in people with gluten sensitivity?

      By yellowstone · Posted

      What foods can trigger a response in people with gluten sensitivity? I've read that there are foods that, although they don't contain gluten, can cause problems for people with gluten sensitivity because they contain proteins similar to gluten that trigger a response in the body. I've seen that other cereals are included: corn, rice... also chicken, casein. I would like to know what other foods can cause this reaction, and if you have more information on the subject, I would like to know about it. Right now, I react very badly to rice and corn. Thank you.
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.