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Just Ending My 3 Week Wheat Run

Brien

By Brien
in Coping with Celiac Disease

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Brien Rookie
Brien
Posted

I went to see a new endocronologist in Februaruy. I told him that my holistic doctor said I had a wheat allergy in December 09. The endo wanted me to reintroduce wheat and such for 3 weeks and then get the bloodwork done to see if I truly had Celiac's or not. Now I believe that I don't have Celiac's as most of my symptoms aren't what most Celiac's have. I get very jumpy, anxious and my mind will lock into a particular thought or two and won't let go, no matter how stupid the thought may be. Two weeks ago I had a terrible weekend and then it abated, then this last week I had gluten products 3 days in a row and felt fine ( i truly believed for a short time that maybe my body was adjusting to the positive) . Then Sunday it started again, not bad, yesterday was not good and today it's still there. I know it will pass, it has in the past. It is just tough to get through days when you mind wants to circle the drain all day. I'm just thankful that I did my bloodwork yesterday and I can go back to what has made me feel better. Anyone else have anything in the park like this?

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AKcollegestudent Apprentice
AKcollegestudent
Posted

I went to see a new endocronologist in Februaruy. I told him that my holistic doctor said I had a wheat allergy in December 09. The endo wanted me to reintroduce wheat and such for 3 weeks and then get the bloodwork done to see if I truly had Celiac's or not. Now I believe that I don't have Celiac's as most of my symptoms aren't what most Celiac's have. I get very jumpy, anxious and my mind will lock into a particular thought or two and won't let go, no matter how stupid the thought may be. Two weeks ago I had a terrible weekend and then it abated, then this last week I had gluten products 3 days in a row and felt fine ( i truly believed for a short time that maybe my body was adjusting to the positive) . Then Sunday it started again, not bad, yesterday was not good and today it's still there. I know it will pass, it has in the past. It is just tough to get through days when you mind wants to circle the drain all day. I'm just thankful that I did my bloodwork yesterday and I can go back to what has made me feel better. Anyone else have anything in the park like this?

I've always been hyperactive and obsessive: give me something and I'd focus to a ridiculous extent, but if something else caught my eye, I'd end up obsessing over it instead. I'm calmer since I went off of gluten (and soy and casein). I'm saner. A lot saner. My attitude's gone from roaring jerk, short temper, to b%$@#y, but respectful. I focus on things that make sense now, instead of trying to figure out what's strange about one section of an obscure treatise.

I have a lot of different symptoms, but those are the ones that sound like yours.

Also, if your endo wants you to go on and do further testing, you're still going to have to be on gluten.

sandsurfgirl Collaborator
sandsurfgirl
Posted

Sorry to tell you but those are celiac symptoms. They may also be something else, but celiac causes that stuf too. There are people with celiac who dont' get GI symptoms, however the diet is a pain the butt and if it were me in your shoes I would want to know for sure since you don't have the GI stuff to go along with it.

Brien Rookie
Brien
Posted
  • Author

Thanks for the replies - I guess I'll find out Tuesday(3/30) whether it's an allergy or Celiac's. Wednesday morning here...., things are getting better but still not a 100% - better than Monday so far, that's for sure.

ravenwoodglass Mentor
ravenwoodglass
Posted

If you were feeling better gluten free please don't let a negative blood test convince you to drop the diet. The blood tests may very well be a false negative. If you feel better on the diet go back to it. Also when a gluten challenge is done it is often advise to add it back in for 2 to 3 months. 3 weeks is often not long enough for the antibodies to build up enough. Make sure you get your hands on the actual lab results, even one point into positive is positive but often if a person is only a few points into the positive level doctors will say it is negative.

Brien Rookie
Brien
Posted
  • Author

There is no way that I am going to revisit the wheat thing for at least 6 months (unless of course its a positive celiac). My holistic dr. said that he wanted me off for 6 months before trying to introduce again to see how things wouls react (because he thinks its an allergy). I was off wheat for 2.5 months (coffee/tea 2 weeks) before I really started to feel a 100%. It had been almost a year prior to that since I had last felt what I consider 100%. Now I'm 4 days off and it's getting better after 3 weeks back on wheat. It may take a little while longer but I don't care as long as I can see myself getting back to normal - i can wait a little longer.

As for staying on the wheat free diet - zero issue. I didn't ahve any issues with it the first couple months, I'll embrace it, love it and move forward with as long as I have to for the future. Plus, I've lost 12 pounds in 3 months - not bad. My 36 waist pants are now loose.

GFinDC Veteran
GFinDC
Posted

There is no way that I am going to revisit the wheat thing for at least 6 months (unless of course its a positive celiac). My holistic dr. said that he wanted me off for 6 months before trying to introduce again to see how things wouls react (because he thinks its an allergy). I was off wheat for 2.5 months (coffee/tea 2 weeks) before I really started to feel a 100%. It had been almost a year prior to that since I had last felt what I consider 100%. Now I'm 4 days off and it's getting better after 3 weeks back on wheat. It may take a little while longer but I don't care as long as I can see myself getting back to normal - i can wait a little longer.

As for staying on the wheat free diet - zero issue. I didn't have any issues with it the first couple months, I'll embrace it, love it and move forward with as long as I have to for the future. Plus, I've lost 12 pounds in 3 months - not bad. My 36 waist pants are now loose.

Hi Brien,

If it is a wheat allergy then going off wheat should help. If it is gluten intolerance or celiac than you need to eliminate rye, barley and oats also (in addition to wheat). There are articles about safe and unsafe ingredients on the main page of this site. They are geared towards eliminating gluten, so will list things that might be safe for a person with a wheat allergy. A wheat allergy and celiac are different things, but there is no reason a person can't have both celiac or gluten intolerance and a wheat allergy too

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Brien Rookie
Brien
Posted
  • Author

I eliminated rye, barely, & oats all to be on the safe side. If the test comes back Celiac my path is paved; if it does not, my plan is to take 6 months or more off and then try having a few slices of pizza, have a beer and see how it goes. Not that I'm a drinker but I really do miss having a nice cold glass of Sam Adams. Budweiser makes a gluten free beer that isn't bad but I like dark beers. I've transitioned over to wine quite nicely. I certainly see the enjoyment of a nice glass of wine with dinner or at the computer at night while I write.

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