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I Will Hopefully Find Out Soon...

Stylo

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Stylo Rookie
Stylo
Posted

Hey everyone!

Not sure where to start with this, I thought this would be the best place to post as there is no specific new members area. And this does have to do with coping as well.

A little background information, I was 125 pounds and 5"2 in high school. After high school, my weight started shooting up in 10 or 20 pound increments within short periods. At the highest I got up to 194 pounds. After high school, if I went out drinking I never felt bad after. I started to really enjoy whiskey and at some point I started feeling violently sick even if not a lot was drank. I would go out until 1am or so, come home, fall asleep, and always after a couple hours I would be up feeling ill. I couldn't sleep if I wanted to because of how sick I felt. Seemed like I was finally experiencing this hangover others had mentioned.

Now forward to today, I never feel good. I take medication for anxiety, the weight is very difficult to try and get off, I my stomach is constantly upset, and I have gross "bathroom" issues. I've been lurking here and reading what others are saying, I think I might have a wheat or gluten intolerance.

So much of what others say seem true for me. My mom got diagnosed with IBS as she has horrible stomach issues as well, she's also a diabetic. One of my friends got diagnosed as Celiac about a year ago, and he feels great, he doesn't have bathroom issues, and it's explained many of his health issues.

I'm going to see a doctor either Thursday or Friday, and I understand tests can be pretty inconclusive unless you go off it and see for yourself. I was on atkins at one point for about three weeks, I felt fantastic but lost no weight, I could not handle not having any carbs, limited veggies and no fruit.

I know this is a long post, but everything is just kinda piling up on me at once and I'm feeling overwhelmed. All these symptoms I see others having, I have. I don't want to diagnose myself based on that though.

As a final thing, I'll mention that I ate noodle soup for breakfast yesterday and felt naseous and sick to my stomach, then after having a sandwhich for lunch I had horrible stomach pains, and then having pizza for dinner with multigrain crust they came back with a force. The fruit I had for a snack had no effect that I could tell.

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ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like both you and your Mom should get tested. The fact that you felt great on the Atkins is IMHO significant. Ask your doctor for a full celiac panel and if you want an endo with biopsies looking for celiac. After you have done all the testing you choose to do give the diet a good strict try for a couple of months. That really is the best test there is right now as both blood and biopsy do have a fairly high rate of false negatives.

Stylo Rookie
Stylo
Posted
  • Author

Thanks for your response! I notice this was moved, I apologize for putting it in the wrong section.

As a test today I had a salad for breakfast and sushi with brown rice for a snack (because salad just isn't enough sometimes). I felt pretty okay, and now it's lunch and I've had half a tuna fish sandwhich and now I feel pukey.

I actually quit eating tuna for a couple months as I thought the way I felt was due to mercury poisoning as I had a tuna sandwhich every day for a year. I'm back on it as I feel the same.

I have an appointment with my doctor tomorrow at 10:30 to speak with him about this. Regardless of testing, as I know it's mostly not definitive (depending on the test done), I plan on going on a wheat/gluten free diet as I know that will show the best results.

I'm glad I found this place. I want to feel normal, and I feel sad everytime I read about someone being misdiagnosed for most of their life and missing out on what could have been.

The sad thing is, no more whiskey *cry*

GFinDC Veteran
GFinDC
Posted

Hi, Stylo,

If you want to be tested you should not stop eating gluten yet. The antibodies will disappear from your blood stream pretty quickly and then the test won't show anything. Of course the may not show anything anyway, but at least you are giving them the best chance by staying on gluten until all testing is completed.

Sometimes an endoscopy is done also to take 4 o r5 biopsy samples of the small intestine. They can look at the samples under a microscope to check for damaged villi. Same deal, you need to keep eating gluten until the endoscopy is complete.

There is also Enterolabs testing which can detect antibodies but can't diagnose celiac. But if you are making the antibodies there is definitely something wrong.

  • 2 weeks later...
Stylo Rookie
Stylo
Posted
  • Author

Thanks for the advice, I didn't go gluten free until the day of my blood tests. I was feeling anxious about feeling better now that I think I know what it is. It's been almost two weeks now since I've gone gluten free, and the doctor said he would only call if there was something actually on the test other than normal results.

Well, I got a call Saturday and they wanted me to come in. It is drop in Saturday and Sunday so I opted for an actual appointment during the week. I'm meeting with the same doctor tomorrow at 4:40.

I'm nervous though. They took three vials and he ordered a lot of tests. I'm gracious for how thorough it seems he was. He was quite sympathetic though was not very thorough on dietary information which I've gotten mostly from this site.

Wish me luck!

Stylo Rookie
Stylo
Posted
  • Author

Hey guys, just giving an update and wondering about these results.

I got my blood test results yesterday, I tested unlikely for Celiac but I've had such a positive response to being gluten free for two weeks now. I did have a high white blood cell and platlate count though.

I've made my decision to go gluten free and I'm sticking with it because for the first time in years I don't have a puffy huge stomach by the end of every day, I don't get intense stomach pains, and my diarhea has stopped. I'm considering cutting out dairy as well as I notice that will still upset my stomach too. Talking to my mom and finding out she has cut out most wheat products and dairy as well and she is feeling better gives me more positive hope as well.

I was wondering what you guys thought about my results? He wants me to get more blood tests due to the high white blood cell count, though he said it was just a point higher than normal and I may have been sick that day.

WheatChef Apprentice
WheatChef
Posted

What were the exact tests you had done and what were the numbers?

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Stylo Rookie
Stylo
Posted
  • Author

I don't have a copy of it, he showed it to me on his computer. I know that my white blood cells and platlates were a point above what is considered normal. Everything else was within the normal range according to him.

Edit: I just realized I didn't state what tests were done. I hate to sound ignorant, I tried to educate myself with the use of this site as much as I could before I went, but all I know is he did a liver screening, and checked my lga, and there was something else. Sorry for not giving all the info!

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