Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated And Mad At Doctors!


sandiz

Recommended Posts

sandiz Apprentice

Went to the doctor the other day for ct scan results for lower right abdominal pain. Nothing was wrong he said. Had mentioned to him about this site and was wondering about the itchy bumps I have been getting. I asked him if it was gluten coming out in my system, he laughed at me and said that was not possible. Gluten passes thru your system it doesn't stay there, he also said don't believe everything I read.

Talk about bad "bed side" manners. He offered no answers. I felt so pissed off when I left. Have searched and there are no doctors in my area that deal with this. Doctors are very scarse so have no where to turn.

No wonder people turn to sites like this with no help or support from there doctors.

Feeling frustrated and mad!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I am sorry you live in an underserved medical area :( It is true that the most common reaction celiacs receive from the medical profession is skepticism and put-downs. Doctors should believe more of what they read!! Then they would be more educated. The trouble is that most of them do not read their own medical journals and keep up to date. Any doctor who graduated before 1995 is probably under-educated about celiac. However, fortunately not all doctors believe that they are God, their patients idiots or headcases, or sometimes both!

Do you have a state Celiac Society who could recommend a doctor within driving distance of where you live? It would be well worth the trip!

sandiz Apprentice

I am sorry you live in an underserved medical area :( It is true that the most common reaction celiacs receive from the medical profession is skepticism and put-downs. Doctors should believe more of what they read!! Then they would be more educated. The trouble is that most of them do not read their own medical journals and keep up to date. Any doctor who graduated before 1995 is probably under-educated about celiac. However, fortunately not all doctors believe that they are God, their patients idiots or headcases, or sometimes both!

Do you have a state Celiac Society who could recommend a doctor within driving distance of where you live? It would be well worth the trip!

I live on Vancouver Island, BC, Canada and the closest doctor is in the next province hundreds of miles away. Thank you.

mushroom Proficient

I live on Vancouver Island, BC, Canada and the closest doctor is in the next province hundreds of miles away. Thank you.

How about a ferry trip to Vancouver? :D

T'is is a pleasant voyage if I recall, from Nanaimo, if the sea is right :)

sandiz Apprentice

How about a ferry trip to Vancouver? :D

T'is is a pleasant voyage if I recall, from Nanaimo, if the sea is right :)

Is there a doctor in Vancouver that deals with gluten? I know there is a support group in Nanaimo, which is half hour from me. It is hard to get to things because of work and days off. Not to mention the fact that I can't afford to take time off work.

mushroom Proficient

Is there a doctor in Vancouver that deals with gluten? I know there is a support group in Nanaimo, which is half hour from me. It is hard to get to things because of work and days off. Not to mention the fact that I can't afford to take time off work.

I would think the Nanaimo support group would probably have some good information for you - worth a try anyway! They might meet in the evenings even.

ravenwoodglass Mentor

Do you have access to a dermatologist? The itchy bumps could be DH and a diagnosis of DH is a diagnosis of celiac. It isn't the gluten coming out through the skin, your doctor was correct about that. It is an antibody reaction in the skin. A dermatologist can do a biopsy of the sking next to the lesions to find it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.