Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh, Family And Holidays


The Glutenator

Recommended Posts

The Glutenator Contributor

Everything looked very promising at the outset of this Easter. My mother had gone out of her way to get me gluten-free eggs (even though I am far too old for an egg hunt), and although I forgot the meal I had prepared to take to a family dinner the host had done a separate chicken for me with steamed veggies, and also didn't put flour in the scalloped potatoes. Great! I was diagnosed celiac 2 months ago and this was my first family event, so I was very pleased with the consideration. However, at dinner a family member discussed how they "completely understand" because they are lactose intolerant and can get bloating too...all this said over a big serving of potatoes with cream in them. I sacrastically said "yes, you completely get what it is like to strictly avoid some types of food". I also got pressured by the host to have dessert multiple times. I mean, HELLO, you went out of your way to make me separate meat and you are surprised I can't have a cupcake or piece of pie!

Thanks for listening to the vent. All things considered my family was very accommodating but it is still hard when they don't realize the extent of the symptoms (it's not just bloating) or the strictness of the diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I'm just sitting here & shaking my head. Ahhh... Family.

My mom has gone the opposite way. She thinks I can't have lots of things. Now that I think about they are all mostly white things - sugar, milk, yogurt. My mom knows how to cook so she should know better. Ahhhh...Family :)

JNBunnie1 Community Regular

I'm just sitting here & shaking my head. Ahhh... Family.

My mom has gone the opposite way. She thinks I can't have lots of things. Now that I think about they are all mostly white things - sugar, milk, yogurt. My mom knows how to cook so she should know better. Ahhhh...Family :)

Well, my boyfrind's family still doesn't get it. I think it's just a politeness thing though, I have not once ever eaten anything they've prepared, I walways bring my own food. But they still try to tell me how they have ham that's not glazed, can you have that? The green bean casserole has a tablespoon of flour, is that ok? Oy. No, I'm eating the lovely food I brought with me, thank you.

On the other hand, my mom is the coolest, amazingest person ever, who totally gets it, and is the only person other than my boyfriend or another Celiac whose cooking I will eat. I can share her with you!

kareng Grand Master

Well, my boyfrind's family still doesn't get it. I think it's just a politeness thing though, I have not once ever eaten anything they've prepared, I walways bring my own food. But they still try to tell me how they have ham that's not glazed, can you have that? The green bean casserole has a tablespoon of flour, is that ok? Oy. No, I'm eating the lovely food I brought with me, thank you.

On the other hand, my mom is the coolest, amazingest person ever, who totally gets it, and is the only person other than my boyfriend or another Celiac whose cooking I will eat. I can share her with you!

Thanks. My mom's not mean about this, she's just confused. She doesn't cook anymore, anyway. I usually cook things & bring to her & my dad. Would be nice to have someone else cook for me that doesn't stress me out. Hub tries but I still have to watch like a hawk. I pretend I'm just getting a spoon for my coffee or something & keep an eye on his cooking for me. Its mostly just old habits having to be relearned.

bridgetm Enthusiast

Most of my family, and quite a few friends, are sure that "just a little bit" won't hurt me. "Be polite and take just one bite of the cookie. It won't kill you." Well, no, not immediately. But I will feel as if my intestines are being ripped apart inch by inch killing me slowly. So, no, I will not be 'polite' and take "just one bite".

I can always feel eyes watching me while I put only one or two things on my plate and constantly questioning why I didn't take more or something else. Eating a meal with friends and family should not be this exhausting.

BoyzMomma Newbie

i hear you! i've only been gluten free for 3 weeks but already ran into this situation. i told my step mom that i couldnt/wouldnt eat anything with sauce/spices/breading on it and she relayed to my dad not to put ANYTHING on the roast. perfect...roast, potatoes and green beans...im safe. One bite and i knew that SOMETHING was on my meat...

me :"dad, did you put anything on the meat???"

dad: "well yah, but its just bbq sauce and ketchup"

GAAAHZOOKES! and then i went to check the ingredients to see if i could continue to eat and he couldn't tell me which if the 10 bbq sauces from the fridge he had used..

luckily i had brought food and was only a few days into the gluten free diet so the bite didn't seem to kill me anymore that i already was...

lesson learned...you just can not expect others to understand. they try, which is nice...but they will poison you by accident.

Roda Rising Star

My mil does not quite get it, but would always ask what to cook when we go over. At their house the don't get crosscontamination. We are planning a weekend trip this month and I was dreading it. I did talk to her and told her not to even try to accomidate me this trip that I would take care of feeding myself. I thought she might get offended, but to my suprise she was greatly relieved and more than happy to let me take care of myself. My last visit I did not do well. So for me I have the oppsite thing with her so no pressure for either of us now!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

On the other hand, my mom is the coolest, amazingest person ever, who totally gets it, and is the only person other than my boyfriend or another Celiac whose cooking I will eat. I can share her with you!

I know how you feel, my mom is great. When I am at their house there are certain things that are there that are dedicated just for me. I usually spoil her and do most of the cooking for the week. However, she does get the contamination aspect and she is really good. We usually are in the kitchen together though so I can watch.

bridgetm Enthusiast

I think it's driving my mom crazy because my sister is about 2 weeks into a vegetarian diet and was limiting meat and processed foods for some time before. She does most of the grocery shopping so my mom loved to have me home from school so we could buy a package of cookies or hit the McDonald's dollar menu without feeling too guilty since we were 2 against 1. But now we're both looking over my mom's shoulder when she cooks or shops. Neither my sister nor I care if she eats something in front of us that we can't, or won't, eat, but she refuses to. It's thoughtful but I think the poor woman has lost more weight than my sister and I put together.

The Glutenator Contributor

It is nice to hear, as much as they may not get it a lot of the time, how supportive some families can be. My mom bought a shopping guide and when I go over for dinner she'll buy all gluten-free stuff, watch for cross contamination, and usually even gets a cake mix for dessert and some gluten-free goodioes to send me home with. It really makes me feel OK...but then when it comes to extended family who just don't really get it its awful. They are both a blessing and a burden...they try to make gluten-free food, but without much vigilance. The blessing is they care, the burden that it is so much harder to say you can't eat something when you know they put thought into it!

lynnelise Apprentice

I don't eat at my inlaws because they have no clue what gluten is. I've explained but they are the type that have selective ADD and they filter out anything not directly pertaining to them. I made fudge a few weeks ago and my mil went on and on about how you couldn't even tell it was gluten free, it tastes the same as her recipe. Ummm because it's naturally gluten free. Oh well. Thank goodness she's only a mile away so we never really have to eat there.

GFLindsey Explorer

My family is extremely considerate when they are thinking about it, but sometimes they do things that are unintentionally hurtful. Last week my dad came home from work and brought home boxes of pizza, breadsticks, and beer. Everyone sat on the back porch eating, and the delicious smell alone made me want to cry my eyes out in my bowl of soggy Rice Chex.

On Easter, my family had the usual ham, potatoes, asparagus, etc. I had a gluten free pre-packaged roast to myself and my great aunt had the audacity to complain about not getting any of my gravy. After several comments, I literally said to her, "You are kidding right? You have tables and tables of food to eat and I have one little thing that will not make me violently ill. For some reason, you feel the need to make me feel guilty." Ugh I would trade gallons of the gravy for a slice of the homemade strawberry pie on her plate, yet I don't sit and complain.

Often I will bring my own food to family parties (I brought a single brownie to my gma's birthday party last weekend, or I'll throw a few cookies in my purse for a baby shower) and everyone wants to touch and try my things when they have a plethora of options in front of them. I find it so frustrating.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,700
    • Most Online (within 30 mins)
      7,748

    RelievedP
    Newest Member
    RelievedP
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
    • Bennyboy1998
      Yes gene HLADQ2 was positive 
    • Wends
      Wow, the system is crazy isn’t it? Maybe switch Doctors if you can. It’s surprising from what you’ve written it seems obvious it’s celiac disease. The “potential” diagnosis means celiac is developing and it basically just hasn’t done enough gut damage to be captured on the biopsy yet, and meet that “criteria” to satisfy the current system! Given the overwhelming evidence already - family history, positive ttg and ema. And your own experience and intuition which counts far more. And the labs being reproduced after gluten elimination and reintroduction- elimination and reintroduction diet is the gold standard too. Shame on the Doc and the system. What was the Marsh score? I’m guessing not 0 if it’s potential celiac. Meaning the autoimmune process has been triggered and started. Your daughter is obviously very healthy and her immune system is putting up a good fight. It can take years for the gut damage to build to a point where there’s overt symptoms and then a conclusive diagnosis, hence why many celiacs receive diagnosis later in life. You can prevent it. See the positive and the gift in that. Hopefully the gluten challenge confirms it, but if it doesn’t maybe get a second opinion?
    • cristiana
      @Gigi2025  Thank you for your interesting post.  Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you  - they will eat normal wheat baguette there without issue, for example.  His theory was he thought it might be to do with the locally sourced wheat being different to our own in the UK? But I have to say my own experience has been quite different. I have been to France twice since my diagnosis, and have been quite ill due to what was then (pre-2019)  poor labelling and cross-contamination issues.  My TTG test following my last visit was elevated - 'proof of the pudding', as we say in the UK!  It was not just a case of eating something like, say, shellfish, that disagreed with me - gluten was clearly an issue. I've also been to Italy to visit family a couple of times since my diagnosis.  I did not want to take any chances so kept to my gluten free diet, but whilst there what I did notice is that coeliacs are very well catered for in Italy, and many brands with the same ingredients in the UK are clearly marked on the front of their packaging that they are 'senza glutine'.  In the UK, you would have to find that information in the small print - or it puts people off buying it, so I am told!  So it seems to me the Italians are very coeliac aware - in fact, all children are, I believe, screened for coeliac disease at the age of 6.  That must mean, I guess, that many Italian coeliacs are actively avoiding gluten because, presumably, if they don't, they will fall ill?        
    • deanna1ynne
      Thank you both very much. I’m pretty familiar with the various tests, and my older two girls with official dxs have even participated in research on other tests as well. I just felt overwhelmed and shocked that these recent results (which I found pretty dang conclusive after having scott clean labs just six months ago) would still be considered inconclusive. Doc said we could biopsy in another six weeks because my daughter was actually way more upset than I anticipated about the idea of eating it for years before doing another biopsy. It doesn’t hurt her, but she’s afraid of how it may be hurting her in ways she can’t feel. She’s currently eating mini wheats for breakfast, a sandwich with lunch, and a side of pasta along with every dinner, so I’m hoping we’re meeting that 10g benchmark mentioned in that second article!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.