Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pantene Requires Doctor's Letter!


burdee

Recommended Posts

burdee Enthusiast

In my search for an allergy free shampoo and conditioner for color treated hair, I bought some Pantene shampoo and conditioner yesterday. The ingredients didn't appear to contain any of my allergies. However, after my painful reaction experience with Loreal's soy laced shampoo, I wanted to verify the ingredients. So I called the company and asked whether that shampoo contained wheat, egg, soy, vanilla or nutmeg. I usually don't see dairy or cane sugar included in shampoo ingredients.

The customer service rep told me that one listed ingredient, 'fragrance', could contain either of my spice allergens. I asked her whether she knew for sure what that 'fragrance' contained. She told me that I would need to ask my doctor to write on his 'letterhead' to Pantene and confirm that I had my diagnosed allergies. Then he could request ingredient information about the 'fragrance' or any other ingredient listed on specific hair care products. I told the rep that my doctor might email them, but not snail mail that request. The rep said they would accept a fax on my doctor's letterhead.

Then I told the rep that requiring every celiac or person with food allergies to ask their doctor to write companies to verify product ingredients ingredients was outrageous to say the least. Most companies will gladly verify whether their product contains my allergens. I don't need my doctor to testify that I actually have my diagnosed allergens in order to get the information I need. So I told the Pantene rep that I would no longer consider any of their products. I also said that I would inform many people with food allergens that Pantene is very uncooperative.

Pantene may believe they can sell more products by protecting their 'trade secret' product ingredients. However, most people with food allergies dislike companies that won't readily verify whether products contain their food allergens. Pantene may not realize how many people in this country have food allergies.

SUE

PS Fortunately I found another shampoo and conditioner for color treated hair. The ShiKai customer service rep was very honest and helpful. She told me their regular products contain soy. However she suggested their 'natural hair care' line which includes a shampoo and conditioner for color treated hair. She verified that it contained none of my allergens. She also told me that other health food stores would carry the natural hair care line. I learned that both my local Whole Foods and PCC stores carry those products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

burdee,

Is that the Natural Color Care Shampoo or the Color Reflect? Thanks :)

Yes, Proctor and Gamble is notoriously uncooperative when it comes to discussing allergens/gluten. I will not use their products.

burdee Enthusiast

burdee,

Is that the Natural Color Care Shampoo or the Color Reflect? Thanks :)

Yes, Proctor and Gamble is notoriously uncooperative when it comes to discussing allergens/gluten. I will not use their products.

Natural Color Care Shampoo in their Natural Hair Care line. The Color Reflect contains soy to which I have a diagnosed allergy. I'm still reacting (cramping gut pain and bloating from swallowing a bit of shampoo which contained 'tocopherol', often derived from soy.

SUE

jerseyangel Proficient

Natural Color Care Shampoo in their Natural Hair Care line. The Color Reflect contains soy to which I have a diagnosed allergy. I'm still reacting (cramping gut pain and bloating from swallowing a bit of shampoo which contained 'tocopherol', often derived from soy.

SUE

Thanks!

Mskedi Newbie

I used to actively boycott all Proctor and Gamble products (which is no small feat, let me tell you -- they're ubiquitous!). Since my much more politically energetic college days, I've let a few products slip back in (Gillette is the only one I can think of, but I'm sure there are more). This post reminds me of why I stopped purchasing their products to begin with.

burdee Enthusiast

I used to actively boycott all Proctor and Gamble products (which is no small feat, let me tell you -- they're ubiquitous!). Since my much more politically energetic college days, I've let a few products slip back in (Gillette is the only one I can think of, but I'm sure there are more). This post reminds me of why I stopped purchasing their products to begin with.

Today I considered an 'Herbal Essence' shampoo for color treated hair until I noticed that was also made by Proctor and Gamble. I contacted (by email) the Herbal Essence site and requested ingredient info about their product. I suspect I'll probably get the same runaround I did with the Pantene product. Meanwhile I picked up some Shikai shampoo and conditioner.

SUE

mushroom Proficient

And they actually have the nerve to call her a customer service rep. :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results

    2. - trents replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    3. - Gigi2025 replied to Leeloff's topic in Gluten-Free Foods, Products, Shopping & Medications
      75

      How Come Gluten Didnt Bother Me In Italy

    4. - Rejoicephd replied to JulieRe's topic in Related Issues & Disorders
      7

      Oral thrush question

    5. - catsrlife posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,897
    • Most Online (within 30 mins)
      7,748

    Sgp
    Newest Member
    Sgp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
    • Rejoicephd
      Thank you @JulieRe so much for sharing this extra information. I'm so glad to hear you're feeling better and I hope it keeps moving in that direction. I feel I'm having so many lightbulb moments on this forum just interacting with others who have this condition. I also was diagnosed with gastric reflux maybe about 10 years ago. I was prescribed ranitidine for it several years back, which was working to reduce my gastric reflux symptoms but then the FDA took ranitidine off the shelves so I stopped taking it. I had a lot of ups and downs healthwise in and around that time (I suddenly gained 20 pounds, blood pressure went up, depression got worse, and I was diagnosed with OSA). At the time I attributed my change in symptoms to me taking on a new stressful job and didn't think much else about it. They did give me a replacement gastric reflux drug since ranitidine was off the shelves, but when I went on the CPAP for my OSA, the CPAP seemed to correct the gastric reflux problem so I haven't been on any gastric reflux drug treatment for years although I still do have to use a CPAP for my OSA. Anyway that's a long story but just to say… I always feel like I've had a sensitive stomach and had migraines my whole life (which I'm now attributing to having celiac and not knowing it) but I feel my health took a turn for much worse around 2019-2020 (and this decline started before I caught covid for the first time). So I am now wondering based on what you said, if that ranitidine i took could have contributed to the yeast overgrowth, and that the problem has just been worsening ever since. I have distinctly felt that I am dealing with something more than just stress and battling a more fundamental disease process here. I've basically been in and out of different doctor specialties for the past 5 years trying to figure out what's wrong with me. Finally being diagnosed with celiac one year ago, I thought I finally had THE answer but now as I'm still sick, I think it's one of a few answers and that maybe yeast overgrowth is another answer. For me as well, my vitamin deficiencies have persisted even after I went gluten-free (and my TTG antibody levels came down to measurably below the detectable limit on my last blood test). So this issue of not absorbing vitamins well is also something our cases have in common. I'm now working with a nutritionist and taking lots of vitamins and supplements to try and remedy that issue. I hope that you continue to see improvements in working with your naturopath on this. Keep us posted!
    • catsrlife
      Back at the end of July I got this rash on both of my forearms. It started on my right and continued to the left. It was on the top and side. The rash has bumps that would pop with clear liquid if scratched. They would almost crystalize and scab up. They reminded me of chicken pox. They would scab for weeks and not heal much at all except for the blood clotting. If the scab was scratched off, it would bleed and bleed until it scabbed up again. The skin has lost its pigment where the scabs are. I figured it was probably either the plant I had trimmed around the 15th or some reaction to the magnesium complex I was taking or an allergic reaction to the asthma meds I was on. I stopped the asthma meds and the magnesium. The rash seemed to get better but when I took the asthma meds it flared up again so I went to the urgent care as my doctor was unavailable. The UC doctor said it probably wasn't the meds and asked about my diet. I said I was strict keto. I usually am, but there is a story around this. I feel amazing on keto. When I eat sugar, wheat, and starchy veggies I feel horrible. Blood sugar goes up, IBS type symptoms, brain fog, etc. But I have a horrible addiction to carbs so I blow it sometimes and after Mom died in 2023, I fell off the wagon. No rashes, just weight gain. I finally went back on keto and then around that time had a piece of pizza (or so, it's hard to stop the carb rush.) So I was strict keto, off and on. She ignored that and prescribed some allergy meds. It didn't go away.  What was happening by then was that the rash was now on my upper elbows, both of them, on the back of my arms. It starts with a very itchy bump, spreads around it and sometimes just burns like crazy and other times just itches. Then it started on the sides of my knees on the oustide, a little bit down the sides of the calves. It's not as bad there as it is on my arms even though it comes and goes (and so does wheat in my diet.) I then got three tiny blisters on each hand, 3 on the insdie of my index finger on the right hand and 3 on the inside of middle finger of my left hand. There is still a little scab there even though it was two weeks ago. No more have appeared on the fingers. But right now the back of the arms above my elbows are starting to itch. At some point I started to think mites from the possum that was sneaking into our house but it's been 3 months and they would be dead already. It wouldn't be from humans because I don't go near any humans although I did take an Uber to the doctor and the bus back. Plus, it's symmetrical. It starts on one side and is almost identical on the other.  I did my DNA with Ancestry and MyHeritage. I don't have the HLA-DQ2 or HLA-DQ8. I do have HLA-DQ2.2. I took the blood test but it was negative. Then again, I don't eat wheat every day. I rarely eat it except for lately when I've been preparing for the blood test if I have to take it again. I don't like to. It makes my joints hurt, gives me brain fog, stomach problems, I sleep in the middle of the day, etc. I have a doctor appointment tomorrow. I hope that she will be more serious about this than the UC doctor was.  So I have no idea. With my luck they'll magically disappear before the doctor appointment. That's what happens with everything.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.