Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tiredness Poll

Leper Messiah

Recommended Posts

Leper Messiah Apprentice
Leper Messiah
Posted

Just wondering if anyone gets seriously tired after eating foods which they know or think are triggers for them? And by seriously I mean like a sleepy/brain fog stupor.

From reading posts on the forum it seems digestive issues are the main problem people face. Whilst I get bloating/other issues this is secondary to the tiredness. I do have borderline weak adrenals though so this may be a contributing factor. Be interesting to hear others experiences as a bit of a straw poll.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Yes.

Last time I got glutened I was pretty much sapped for energy for the entire next day and decently drained the day after that.

jenngolightly Contributor
jenngolightly
Posted

This is one of my primary symptoms. I sleep for hours on end. Sometimes I have to call in sick so I can sleep all day. This is in addition to sleeping extra hours at night. Usually this lethargy/brain fog/sleepiness lasts for a week.

Mac55 Apprentice
Mac55
Posted

Do you mean trigger foods, as in gluten or other foods that cause issues? Exhaustion, brain fog, confusion, etc. are my worst complaints after I've been glutened. Well, my mood is up there too. It all seems to be getting worse the longer I'm gluten-free, which I've read is normal. I get to the point where I'm useless and thank God my kids still nap because I crash in the afternoon.

CeliacKate29 Newbie
CeliacKate29
Posted

Just wondering if anyone gets seriously tired after eating foods which they know or think are triggers for them? And by seriously I mean like a sleepy/brain fog stupor.

From reading posts on the forum it seems digestive issues are the main problem people face. Whilst I get bloating/other issues this is secondary to the tiredness. I do have borderline weak adrenals though so this may be a contributing factor. Be interesting to hear others experiences as a bit of a straw poll.

You are not alone!! My first symptom is always a terrible headache and then I immediately get lethargic and need to lie down. These symptoms can last up to 2 weeks for me as I am seriously sensitive to gluten. Hope this helps!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I get sleepy within 30 minutes and it can last for several days. If I'm thinking I'm so tired I need a nap just to have the energy to nap I know I've been poisoned with gluten.

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

kaki-clam Enthusiast
kaki-clam
Posted

when I first went gluten free, i found that after eating lunch i was sooo tired, i could barely keep my head up and my eyes open. It was all gluten free stuff, and stuff I knew was ok to eat, so, not trigger food, but still made me really tired...i car pool to work, thank god, because there were some nights that i wouldn't have been able to drive myself home.....after a few months, it stopped.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


newgfcali Rookie
newgfcali
Posted

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

You're too funny! :P

Yep, huge snoozer here, too. For me it only lasts a couple of days, but it's a MAJOR nap attack. I think one time I slept about 20 hours out of 24.

glutenfr3309 Rookie
glutenfr3309
Posted

yes! this is one of my symptoms!!

it will usually hit me days later but i'm wondering if i got glutened because i haven't felt this exhaustion since before i went gluten-free.

for work we out for lunch yesterday and i had a burger (no bun) and a side of steamed veggies. guess it was the burger cause i struggled waking up this morning and passed out early last night!

sandsurfgirl Collaborator
sandsurfgirl
Posted

The tiredness is awful for me.I got glutened yesterday and I'm SOOOOO tired. People have all sorts of symptoms with celiac, not just GI stuff. Probably another reason it's tough to diagnose. Neuro symptoms are pretty common, anxiety, depression, sleep disorders.

Anxiety became the bane of my existence for about 8 months before my diagnosis. It was so bad I would drive in the slow lane on the freeway in case I got too dizzy and had to pull over. After 2 days gluten free it went away, the first thing to go.

I have insomnia, which adds to my tiredness. I'm sure it's an unresolved celiac symptoms.

Leper Messiah Apprentice
Leper Messiah
Posted
  • Author

I get sleepy within 30 minutes and it can last for several days. If I'm thinking I'm so tired I need a nap just to have the energy to nap I know I've been poisoned with gluten.

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

:lol: Haha, cracking comment.

Thanks for your replies, nice to know I'm not alone in the land of nod zZz. I work as an accountant and have to pray to god no-one phones or comes over with a complex query when my symptoms come on, mainly after lunch. It's so funny (and of course frustrating) when remembering someone's friggin name who you probably spoke to just before lunch poses a challenge! I can see it in their eyes "Wat...a...dumb@ss" lol.

My inquisitive nature wants to try and figure this out...I mean why do we get so tired? What is happening to our bodies on ingestion? Is the gluten/casein/etc causing leaky gut or so much inflammation that our adrenals struggle to cope? Hmmm...any ideas? As an aside it does seem to be getting better the longer I'm avoiding gluten, dairy and eggs, I'm still very much a newb to the diet though.

proud-armywife Rookie
proud-armywife
Posted

I have seriously thought I may suffer from narcalepsy (At home. I feel like I could just pass out, like slow motion, sometimes my time perception feels distorted. It is hard to explain. It comes and goes I never have it for days only hours and the extreme reaction passes I drag after that. I find this to be the only thing that makes me want to adhear to the gluten free diet. Trying to keep the house clean running after kids, it is so hard for me to not be able to finish what I need to get done, and many times as silly as this sounds I feel so useless. But since I have found out this is what it is, I am trying to do right. I also feel like my body is shutting down during these times. I literally have called my mom an RN and told her I don't know what is going on with me, but I feel like it is struggling to operate. I swore I would die before they found out what was going on. Crazy HUH? All these things that Gluten does.It is still hard for my to believe that this could cause so many problems, and it makes me sad for people who are struggling and have no answers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease. It will not show if you have active Celiac disease. Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies. The...
    2. trents
      - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases...
    3. McKinleyWY
      - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast. All my life I have avoided bread and most products containing enriched flour as they contain yeast (when making the man made vitamins to add back in to the flour). Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat...
    4. trents
      - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you...
    5. Peace lily
      - Peace lily replied to AristotlesCat's topic in Super Sensitive People
      118

      Gluten Free Coffee

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,238
    • Most Online (within 30 mins)
      7,748
    tcpb
    Newest Member
    tcpb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Accuracy of testing concerns

      By knitty kitty · Posted

      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Accuracy of testing concerns

      By trents · Posted

      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Accuracy of testing concerns

      By McKinleyWY · Posted

      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      A little about me and my celiac disease

      By trents · Posted

      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Gluten Free Coffee

      By Peace lily · Posted

      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.