Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pins And Needles?


kimann79

Recommended Posts

kimann79 Apprentice

I've gotten a celiac panel and I'm awaiting the results but I was curious about something.

Occasionally entire sections of my back will get all tingly, like pins and needles, and then go numb for a few minutes.

Could that be related to a celiac induced vitamin deficiency? It's been happening on and off for about two years or so.

Also, I cannot stand up from a sitting or laying down position without getting dizzy and feeling like I'm going to fall over.

I'd love to pick up some supplements for a vitamin deficiency if that would help.

Thanks for the thoughts.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I've gotten a celiac panel and I'm awaiting the results but I was curious about something.

Occasionally entire sections of my back will get all tingly, like pins and needles, and then go numb for a few minutes.

Could that be related to a celiac induced vitamin deficiency? It's been happening on and off for about two years or so.

Also, I cannot stand up from a sitting or laying down position without getting dizzy and feeling like I'm going to fall over.

I'd love to pick up some supplements for a vitamin deficiency if that would help.

Thanks for the thoughts.

The pins and needles feeling is one of the many possible symptoms of Celiac. I had it in my lower legs, arm, and face. It subsided gradually with the gluten-free diet--a helpful supplement to use would be vitamin B12 (sublingual). I used it for several months--it took about 18 months for the neuropathy to go away completely.

michelley65 Rookie

The pins and needles feeling is one of the many possible symptoms of Celiac. I had it in my lower legs, arm, and face. It subsided gradually with the gluten-free diet--a helpful supplement to use would be vitamin B12 (sublingual). I used it for several months--it took about 18 months for the neuropathy to go away completely.

Wow!I never associated that with celiac.I sometimes get that same feeling but its on my scalp.It feels like thiers a bunch of bugs crawling around and when I scratch..nothing happens..it just keeps feeling that way.I had a negative blood test for celiac..but I know Im atleast gluten intolerant..will this kind of thing happen to people with only a gluten intolerance?

Katie B Apprentice

I was having pins and needles in my hands and feet and was getting dizzy when standing from a sitting/lying position (low blood pressure). In my case, it was electrolytes (sodium) due to a medication I'm on (indirectly due to Celiac). If vitamins don't solve it I would be tempted to get a basic blood panel done for electrolytes etc (including B12, iron etc.). Not sure about the Celiac connection but everything's inter-related so it's probably possible!

wschmucks Contributor

YES. Half my hand or feet would go numb for hours-- totally numb it was sooooo weird-- then I was diagnosed and I've never had it since. I didnt think it was related until I read about it and made the connection. We forget how everything is connected :-)

kimann79 Apprentice

I know I have really low blood pressure. The nurses would always do it twice and than ask me with raised brows, "Is your blood pressure always that low?" They made it seem like a good thing, but when I was diagnosed with adrenal fatigue they said that was one of the symptoms.

Thanks for the responses. I always thought it was weird that the back thing happened. As soon as I get the blood test results back I'm going to go gluten free regardless of the results and see if it helps alleviate all my symptoms. We'll see what happens. With the thyroid disease, adrenal fatigue and possible gluten problems I don't know what symptom is for what disease! :blink:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.