Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain Question

k2626

By k2626
in Coping with Celiac Disease

Recommended Posts

k2626 Explorer
k2626
Posted

Hi guys, patiently awaiting my results. I was wondering if you can describe your joint pain to me. I have two different kinds, one that is like a stinging and deep pain that hits from a few seconds to minutes and mainly smaller joints like in my finger or toes, foot, sometimes ankle. Does anyone get these? It feels like a cross between a quick bee sting and deep bone pain.

The other pain I get is loose joint pain, when my joints grind...

All my symptoms seem to come in waves and with different degrees of severity. At its worst, I was getting hundreds of muscle twitching per day, as well as hundreds of joint cracks, and I had the stinging/zapping pains hopping around my joints all day. However, that was when I was undergoing serious stress.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

Check out the following link..

Mtndog Collaborator
Mtndog
Posted

Hi guys, patiently awaiting my results. I was wondering if you can describe your joint pain to me. I have two different kinds, one that is like a stinging and deep pain that hits from a few seconds to minutes and mainly smaller joints like in my finger or toes, foot, sometimes ankle. Does anyone get these? It feels like a cross between a quick bee sting and deep bone pain.

The other pain I get is loose joint pain, when my joints grind...

All my symptoms seem to come in waves and with different degrees of severity. At its worst, I was getting hundreds of muscle twitching per day, as well as hundreds of joint cracks, and I had the stinging/zapping pains hopping around my joints all day. However, that was when I was undergoing serious stress.

Ugh....joint pain is the WORST! The stinging pain sounds like it might be nerve pain which is awful. I've had neuropathy off and on and the only thing that helps me is ketoprofen (it's an anti-inflammatory my doctor prescibes- for some reason it works on nerve pain).

For muscle twiching/spasming, I take a magnesium supplement and that helps. Make sure you stay hydrated as well.

Hope you get your results soon. Going gluten-free should help! You may want to ask your doctor about an anti-inflammatory until then.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,130
    • Most Online (within 30 mins)
      7,748
    Bibble
    Newest Member
    Bibble
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten challenge and Hashimoto's Thyroiditis

      By Scott Adams · Posted

      I’m so sorry you’re going through this—it sounds like your body is sending a clear signal that gluten is a major trigger for your Hashimoto’s. The dramatic spike in your anti-TPO (from 50 to 799!) and the severe symptoms you’re experiencing suggest a strong immune reaction, even if celiac testing wasn’t done earlier. While a formal diagnosis would clarify cross-contamination risks, continuing the challenge may not be worth the damage to your thyroid and quality of life, especially since you already know gluten worsens your antibodies and symptoms. If you need answers, you could discuss genetic testing (HLA-DQ2/DQ8 genes) with your doctor—this can rule out celiac predisposition without a gluten challenge. For now, prioritizing your health by quitting gluten again (strictly, given your sensitivity) and supporting gut healing (like probiotics, L-glutamine, or zinc carnosine) might be the wisest path. Your thyroid will thank you!
    • trents
      tTg at 234 at 6 month bloodwork

      By trents · Posted

      Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's worth tracking. Thirteen years of elevated liver enzymes was what eventually led to my celiac disease diagnosis. But I was 50 years old by that time and it was my ALT and AST that were mildly elevated all that time, not my alk phos. I just found out last week from an ultrasound that my liver is 20% larger than normal and I'm hoping that is a legacy effect. I have more testing lined up. 
    • CeliacMom79
      tTg at 234 at 6 month bloodwork

      By CeliacMom79 · Posted

      Hi. Sorry, his previous levels were >250 and we do not know how high they were. So yes, "off the chart". By 'detectable' I just meant that at 234 we now actually have a number as a baseline that we can measure future labs against. All his other liver test functions have been normal.  Just the elevated ALP. Thank you.
    • NoGlutenCooties
      gluten-free in Wilmington, DE

      By NoGlutenCooties · Posted

      Hi all I'm looking for a safe place to eat in Wilmington, DE. Any ideas? Thanks Jenny
    • trents
      tTg at 234 at 6 month bloodwork

      By trents · Posted

      Welcome to the forum, @CeliacMom79! Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"?  Were his other liver test functions (ALT, AST) originally elevated?
×
×
  • Create New...