Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test In 2 Weeks, But I've Been gluten-free...


Sparrowing

Recommended Posts

Sparrowing Newbie

I've cut out gluten for the last few months. A couple of times I reintroduced it as a test, and since there was definitely noticeable digestive reactions (diarrhea, cramps, bloating, etc.) I want to get actually tested for celiac disease. I just got an appointment to go into my student health clinic in two weeks - since I haven't been eating gluten, is that too soon? The test itself may not happen that day, so I could postpone it. If I eat wheat-y, gluten-tastic food between now and then, will that be enough for my body to be producing "high levels of antibodies" or whatever it is that the test detects?

Should I only eat a little bit of gluten in that time? Should I eat more?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

You really need to get back on a full gluten diet for at least 3 months before testing. The tests are for antibodies and if you haven't been eating gluten you are not producing enough antibodies for the test to have any chance of being positive. Even on a full gluten diet the tests may be a false negative. If your body rebels strongly to gluten that is pretty diagnostic in itself. One other option you have is Enterolab, they do not diagnose celiac but they can look for the antibodies in the stool, your body does not produce antibodies to something it wants in your body.

happygirl Collaborator

You need to be eating a normal gluten containing diet for the tests to be accurate. If you have been gluten free (generally), the tests decrease in accuracy.

tarnalberry Community Regular

You've been gluten free for a couple months, there is no reason to expect blood testing to be accurate.

As noted, you need to be eating plenty of gluten (~3 slices of bread a day, or the equivalent) for quite a while (3 months).

elizabethkswann Newbie

I'm currently in the same situation. I've been gluten-free for 7 years, and I'm having blood testing and an endoscopy done this Friday. I've been ordered by my doctor to eat gluten for the next three days. I had a bagel sandwich and chicken noodle soup. This resulted in severe bloating, constipation, vertigo, and severe fatigue. So I would say 2 weeks is enough if you eat a little bit of gluten everyday.

ravenwoodglass Mentor

I'm currently in the same situation. I've been gluten-free for 7 years, and I'm having blood testing and an endoscopy done this Friday. I've been ordered by my doctor to eat gluten for the next three days. I had a bagel sandwich and chicken noodle soup. This resulted in severe bloating, constipation, vertigo, and severe fatigue. So I would say 2 weeks is enough if you eat a little bit of gluten everyday.

Clearly your gluten challenge is positive however you can fully expect to have negative blood work and endoscopy. You were fully healed and you must redamage yourself enough to destroy your villi for an endoscopic exam. Three days is definately not enough of a challenge for either positive blood work or biopsy if you have been gluten free for 7 years. Your doctor is not well educated about celiac, sorry to say.

elizabethkswann Newbie

Clearly your gluten challenge is positive however you can fully expect to have negative blood work and endoscopy. You were fully healed and you must redamage yourself enough to destroy your villi for an endoscopic exam. Three days is definately not enough of a challenge for either positive blood work or biopsy if you have been gluten free for 7 years. Your doctor is not well educated about celiac, sorry to say.

I figured he wasn't very educated on Celiacs from when I met with him, but this is my only option in trying to prove I have it to live off-campus at my college.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I figured he wasn't very educated on Celiacs from when I met with him, but this is my only option in trying to prove I have it to live off-campus at my college.

If that is what you need to do I would ask the doctor to schedule the test for August and get back on a full gluten diet until then. If you have been gluten-free for years did you already get diagnosed as a child? Or did you have problems as a child that lead the doctor to advise the diet? If so perhaps your ped already diagnosed you, I would give them a call to find out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.