Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Not Sure...


jane doe 2

Recommended Posts

jane doe 2 Newbie

I have been to the doctor's several times. First e thought I had a wheat allergy, so i had blood work done. It came back negative. I'm trying to figure out wht my stomach ges bloated EVERY tme I eat! I could probably have a conversation with my stomach (if was weird)...it grumbles and rolls all the time. One week Im constipated (sorry for the graphic)..the next week its the exact opposite..I dont get it!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Hi Jane,

First of all, alternating C&D is a well known symptom on both gluten intolerance and celiac disease. Neither of those would show up with wheat on an allergy test. Gluten may (and I stress may) show up on an IGg food intolerance panel, but that isn't the same as a diagnostic for gluten intolerance, and definately not for celiac disease.

If I may ask, do you have other symptoms? Have you done any kind of food elimination diet? Is it really every time you eat, or is there something common you always have like a milk product or something?

I'm making some assumptions below that you don't have any true food allergies or a vegan diet or anything. If you do adjust accordingly.

Try a quick (four day) starter test that will not have any long term impact but if you are really reacting after every meal might help you begin to identify this. The reason for four days (five would be better) is that your body may react to foods up to four or five days AFTER you have eaten them. Some food intolerances may be an interaction as well. e.g. I have a friend who can eat eggs just fine. She can also eat brown rice. However if she eats rice and eggs within the same 24 hour period she feel nauseous for several hours after whichever one she ate last.

Eliminate all non-water beverages from your diet. (This means tea and any coffee too unless you grind the beans yourself and it is non-flavored coffee).

Prepare any veggies you may eat in a glass or pyrex microwavable dish which you have washed thoroughly between use. Steam them lightly unless they are frozen single veggies. Don't use mixed frozen bagged ones (like three-veggie mix).

For breakfast eat no grains at all. Do poached eggs, or fried, etc, but cook them in stainless steel - not non-stick. Throw some diced potatoes or something in there for fried as well. The key is CLEAN STAINLESS STEEL for any cooking.

For lunch take some whole fresh veggies, fruit, or meat from the night before. No bread or grain products of any kind.

For dinner sometime similar. Nothing but water, fresh veggies, fruit, meat. Don't use any mixed seasoning blends, salt substitutes, or anything but single spices or salt. Keep it as simple as possible. Prepare your food on a plate (non-plastic) that has been through the dishwasher.

Use/eat/ingest no dairy (even non-lactose things), grains, tomato or processed foods. No alcohol. No butter substitutes.

See how you feel after each meal. Write down your symptoms and how you feel a hour after each meal, along with what you ate, and also journal immediately before a meal. Do this for four days.

miaryan Apprentice

the journal this is a good idea. i'm in the process of doing that to but for me i'm trying to find out what is causing my headaches. other then gluten.

sandsurfgirl Collaborator

I'm surprised a mod didn't move this post. Put this in the prediagnosis and testing room and you might get a lot more responses. If you get sick from eating wheat, then you can't eat it. Don't buy the you're not allergic line, because I bought that and suffered for a long time unnecessarily. Get tested for celiac. If it comes up negative go gluten free anyways and see if it helps you.

  • 2 months later...
Branny Newbie

First report and keep a Headache Journal with your Food Journal for the Dr... it will help him help you conciderably and Second, Heahaches are mostly Muscle Spasms, find out the Trigger and you'll be able to control them better.

My GI Dr gave me some great advice a few years back... "The only way to trully find out if you are allergic to anything is to stop using it for a week. If sysmtoms begin to subside then you have that allergy, if not move on to the next product you use in your life and don't miss anything... it all matters."

  • 1 month later...
klbasap Newbie

I have been to the doctor's several times. First e thought I had a wheat allergy, so i had blood work done. It came back negative. I'm trying to figure out wht my stomach ges bloated EVERY tme I eat! I could probably have a conversation with my stomach (if was weird)...it grumbles and rolls all the time. One week Im constipated (sorry for the graphic)..the next week its the exact opposite..I dont get it!!!!!

Constant bloating after every time you eat sounds like what I'm just now getting through...C. Diff. I found that I do have celiac disease by trying to get rid of the constant bloating and headaches but going gluten free did nothing for me. I was gluten free for four months- nothing! So, I found the SCD diet; did that for 6 months(still gluten free of course) but still bloating! I'm a size 4 pants but with a distended stomach of 36 inches every time I eat?

Finally.... I found a celiac specialist/GI doctor and in a week found that C. Diff had taken over and that's why I was so sick for so long! 14 months into my journey I had my best day today! I have never posted on a forum until today but I see that you may be suffering what I suffered. Please check into c diff testing or, at a minimum begin tracking your food consumption- c. Diff lives on sugar/starch/carbs. A carrot has too many carbs for someone suffering with this obnoxious little bacteria.I hope you no longer suffer soon!

Kelly

psawyer Proficient

I'm surprised a mod didn't move this post. Put this in the prediagnosis and testing room and you might get a lot more responses.

Good idea. Sometimes we aren't as sharp as we could be. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.