Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excema Or Dh?

jenvan

By jenvan
in Dermatitis Herpetiformis

Recommended Posts

jenvan Collaborator
jenvan
Posted

Has anyone found a relationship between excema and Celiac or thought they had excema (on their scalp specifically), and figured out it was really DH?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frenchiemama Collaborator
frenchiemama
Posted

I was told that I had eczema on my hands, but it is actually DH. Not on my scalp though.

Wandering Hermit Contributor
Wandering Hermit
Posted

Well I suffered and still suffer from excema long before I was celiac. And now I have what appears to be both excema and DH. Very itchy! On one elbow it seems I have both.

jenvan Collaborator
jenvan
Posted
  • Author

Thanks for the thoughts. I've always thought I've had excema, and perhaps its is, because it is usually contained on my scalp. It has been worse than ever the past few months and I can't seem to get it under control and was wondering about a connection.

skbird Contributor
skbird
Posted

Has it been properly diagnosed as excema? I have had something akin to a rash on my scalp, off and on, and it seems more like little pimples. But whenever I am on a B-complex, it goes away. If I lag for more than a couple of weeks without taking it, they come back.

I also get excema on my hands, small little outbreaks that look like tapioca pearls on my fingers. Just had one larger one on my finger - it seems to take weeks for something like that to heal. I don't know why that happens or what triggers it for me though.

Stephanie

Guest Eloisa
Guest Eloisa
Posted

One of the ladies that's on Reliv like I am had what she thought to be exzema on her hands and face before being diagnosed with celiac disease and later found out it was DH got on Reliv and it went away. I had those pearly bumps on my hands too and never knew what they were before and they went away as well.

jenvan Collaborator
jenvan
Posted
  • Author

Huh..interesting... Stephanie, that's curious about the breakout and b12 connection. I just got my b12 tested yesterday. Will be interested to see if I might have that connection too...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 1 month later...
Guest BERNESES
Guest BERNESES
Posted

I was just about to post about this too so good timing. When I was in my early twenties I was diagnosed with eczema in both ears (ugh- you want to take a knitting needle and just SCRAtch!) but my current ear doctor says no- it's not eczema. I get tons of ear infections and have been using hdyrocortisone on a daily basis to control the itching but this week the doctor gave me medication for a fungal infection in both ears.

They get really itchy, sores, crack, bleed sometimes (all outer ear) and are scaly most of the time. I'm seeing a dermatologist in 2 weeks and I'm wondering if I should just ask her to do the biopsy. What do you guys think? I was reading Danna Korn's book and she said that eczema that doesn't resolve is often DH. But in your ears? Anyone else have it in their ears?

All the shampoos and products I use are gluten-free too. And I've been gluten-free for 6 months now (except for a 10 day gluten challenge before the biopsy). Thanks everyone! Beverly

frenchiemama Collaborator
frenchiemama
Posted

Not IN my ears, but I do sometimes get it on my earlobes and that little triangle thing (whatever it's called) on the front of your ear.

Just wanted to add that I recently found out that I have a type of eczema on my hands as well as DH. I guess the doctors weren't ALL wrong.

lovegrov Collaborator
lovegrov
Posted

The scaly, cracked, bleeding thing sounds more like psoriasis, which is also an autoimmune condition.

richard

jenvan Collaborator
jenvan
Posted
  • Author

It turns out psoriasis was my problem...

egardner Newbie
egardner
Posted

This is going to seem funny, but I have had serious skin problems my whole life. I often had something very similar to what you are describing in my ears. Mine was diagnosed as very dry skin aggravated by shampoo and hair products. (you have to rinse your ears out really well) I was put on a steroid cream that really helped, no problems since then. Maybe....? Or maybe not, just thought that may help a little, knowing someone else has been there ;) Good luck at the dermatologist!

lovegrov Collaborator
lovegrov
Posted

Sorry to hear about the psoriasis, as if we need something else to deal with. Oh well, I was afraid mine was skin cancer or something like that.

richard

Guest BERNESES
Guest BERNESES
Posted

Thanks everyone- that was useful info that amy prevent me from rupturing an ear drum with a knitting needle! :P

jenvan Collaborator
jenvan
Posted
  • Author

a knitting needle! i sometimes use mechanical pencils and paper clips to stratch too. yikes!

kvogt Rookie
kvogt
Posted

Balsam of Peru, an ingredient in fragrances and some foods (i.e. natural flavorings) can cause persistant skin problems.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.