Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Understand Heaviness And Weight


rain

Recommended Posts

rain Contributor

I was diagnosed with celiac about 2 months ago. Overall, it's been a great relief. The head fog is clearing, my sense of balance is improving, and that tiring sense of malaise and deep exhaustion is going away a bit more each day. I have also had almost no spring allergies.

So onto my story --

because of an accident, job change, and a move, I spent much of the last 6 months feeling quite sick. In that process I gained about 8 pounds. I only worried about it because my weight is very stable (the same weight for about 20 years) so a weight gain is typically a symptom of something else. I hoped when I went on the wheat free diet that my weight and the feeling of heaviness in my stomach would go away or the symptom would lessen. However nothing has changed at all. In fact my belly continues to feel heavier.

Before my "normal" weight was slim, but I always felt bloated. I was always hungry, always munching, etc. I believe that I have a sensitivity to soy, dairy, corn, oats, and all nuts except peanuts, but I can eat them in limited amounts.

I'm completely baffled about what to do next. My other symptom (for the last 4 years) is shortness of breath in my lower lungs. The allergist said its scar tissue from childhood asthma - I suspect an allergy. I'm also in the process of sorting out dermatitis issues. So far a resin used in handbags is a culprit, certain sunscreens and sun exposure. And lastly I have some injury from the accident that has weakened muscles my core muscles. I hope to start working with a physical therapist next week.

I'm missing something though. This heaviness really 'worries' me.

Should I see an allergist and get blood work for more food sensitivities? Is there another type of doctor I should see? Is this just the process? Since so many seem to have soy/dairy/nut allergies is that what is the most likely cause? If so, why did it start before I got diagnosed with celiac?

My body is confusing me!

:)

Thanks all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mari Contributor

I have been thinking about what you wrote and wanted to say that I had asthma and it mostly cleared up after I did a herbal parasite program. So eliminating the parasites in my respiratory system worked for me. One way you might use to rule out food allergies or intolerances is to find a gluten-free diet and start with just a few simple foods then add other foods when you find a simple combination which works for you. I use the Specific Carbohydrate Diet and it has helped me to figure out which foods I tolerate best. Some people have good success with allergy testing and other people have good success doing various internal body cleanses - parasite, kidney, liver - The Curezone Forums are a good place to read about what others are doing. The weight gain you noticed could just be you are better nourished now that you are healing but another possibility is that your body is retaining fluids and if this doesn't clear up as your body heals and as you begin to get more exercise it would be time to figure out which parts of your body need help in healing and getting back in balance. The abdominal pressure and distension could indicate gall stones and sludgy bile. I do gall bladder flushes and have increased the amount of fiber in my meals for this common problem. gluten-free diets tend to be rich in carbohydrates so you may need to take digestive enzymes and probiotics or goat's milk yogurt to help increase the number of good bacteria in the gut. It is important that the digesting food you eat is not being slowed down by damage or inflamation in the intestine and it is best to make sure that you have a bowel movement within an hour of eating a meal. Adding acid in the form of Betaine - HCl capsules with meals will act to release intestinal contents into the bowel. Taking magnesium capsules will also help as will taking herbal laxatives. The book I use for healing the body is on my profile page.

Jestgar Rising Star

There may be some other food(s) that you are reacting to. The best thing to do is an elimination diet and a food journal. Start by removing the big allergens - dairy, soy, corn, egg, and see how you feel (and write what you eat and how you feel in a food journal. If you feel better, try adding one of them back (only one at a time) and again note how you feel.

Korwyn Explorer

Hi Rain, and welcome to the boards. I think the advice the others have given is great, but I wanted to ask you are you following a gluten-free diet or a wheat-free diet? I know you said you were diagnosed two months ago, but you mention 'wheat-free' above, which is not at all the same and I wanted to make sure you are aware of that.

  • 1 month later...
rain Contributor

wow, I was new to the boards when I posted this and somehow missed your responses. I'm so glad I decided to go back and check. thank you for your responses. I really appreciate what you explained. I'm just starting to not feel overwhelmed with the dietary changes and have reduced soy, corn, and dairy in my diet and am starting to slowly build a better daily diet. The symptoms are improving...but clearly I still have a ways to go.

Many thanks!

T.H. Community Regular

One other quick question - have they done any internal scans?

I only ask because I had a friend with unexplained weight gain and that heavy feeling in her gut, and it ended up as an ovarian cyst that weighed nearly 10 pounds! eek!

wow, I was new to the boards when I posted this and somehow missed your responses. I'm so glad I decided to go back and check. thank you for your responses. I really appreciate what you explained. I'm just starting to not feel overwhelmed with the dietary changes and have reduced soy, corn, and dairy in my diet and am starting to slowly build a better daily diet. The symptoms are improving...but clearly I still have a ways to go.

Many thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

    2. - FayeBr posted a topic in Coping with Celiac Disease
      0

      Major Glutening

    3. - knitty kitty replied to MMeade's topic in Coping with Celiac Disease
      5

      Gluten Allergy

    4. - knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern

    5. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      33

      Struggling to get into a good pattern


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,419
    • Most Online (within 30 mins)
      7,748

    Gary Hackler
    Newest Member
    Gary Hackler
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years.    I will check out your blog . Thanks !
    • FayeBr
      Hi to all I am 4 years Celiac now. I have Ataxia too from gluten and it’s been a major learning curve and adjustment. But my query is about a recent set back. I was Glutened and started an OTC medicine to cope with a symptom. It stated it was free from gluten specifically. But in the following weeks I was getting more ill and couldn’t fathom what was wrong. I had gastritis which is awful and lots of other neuro and body symptoms that I get when Glutened. I always find it difficult to think straight too because of the brain fog and fatigue so this wasn’t helping me think logically. And then the lightbulb moment of the medication. I emailed the company in my gluten haze (by this time the symptoms were awful and reminded me of my pre gluten free days) and they responded saying although it states ‘this product does not contain gluten’ they could not guarantee it didn’t have gluten in it from manufacturing processes etc etc. I stopped it just over 2 weeks ago. I had been taking it for 6 weeks. So in the last few weeks I have started to improve from being bedridden with fatigue and aches/pains,  gastritis, abdominal pain and GI problems, brain fog, mental health symptoms, pins and needles, migraines and much more to just about functioning. I feel I have done so much damage to my body and it’s such a set back. But my question is has anyone else had a major episode like this and how long did it take to recover? I still have symptoms now and it’s been over 2 weeks. I’m afraid I have made my Ataxia worse and the panic attacks and anxiety are through the roof. I’d forgotten what that was like. But any thoughts or experiences would help. Thank you. 
    • knitty kitty
      @MMeade, People who get over-methylated are frequently low in Pyridoxine Vitamin B6.  Pyridoxine helps regulate the methylation process so it doesn't run amok.  P-5-P is the active form. All eight essential B vitamins work in concert together.  Just taking one or two can throw the rest out of balance.  If you have malabsorption as occurs in Celiac, then all the B vitamins will be poorly absorbed.  Taking a B Complex in addition to extra thiamine (Benfotiamine) is safe.  The B vitamins and Vitamin C are water soluble.  Any excess is urinated out.  I took a B 50 Complex twice a day to increase absorption.   Try taking Magnesium Threonate (Neuro-Mag by Life Extension).  Magnesium Threonate can get into the brain easily.  The brain needs magnesium, too, but other forms don't cross the blood-brain barrier as well.   The first time I took Magnesium Threonate, it felt like my brain relaxed.  I highly recommend it.   How's your Vitamin D level?  
    • knitty kitty
      @Rejoicephd, I took high dose Vitamin D to correct my severe  deficiency quickly.  It's safe to do this.  I felt much better once my Vitamin D level was about eighty ng/mL.   Vitamin D works as a hormone and helps calms the immune system between 80 - 100 ng/mL.    High-Dose Vitamin D Supplementation Can Correct Hypovitaminosis D Prior to Total Knee Arthroplasty https://pubmed.ncbi.nlm.nih.gov/34737019/ Yes, curious science brain here, too.  I studied Nutrition but switched to Microbiology because I was curious what the vitamins in food actually do in the body.  Lots more links in my blog here: Click on my name and look for activities menu.
    • Rejoicephd
      Thanks @knitty kitty for keeping me thinking about the importance of vitamins. And I appreciate you sending those papers (gives me something for my science brain to work through! I’m a PhD in biology so I like reading these sorts of things). It’s been surprising to see how little is understood about the cause of fibromyalgia. My Vit D went low again on my last blood test so I know I’m back to being deficient there (it did go up for a while but back down again). Whomp whomp. So I’ll be both reading about and taking vitamins. Thanks again for your input. Really appreciate it.
×
×
  • Create New...