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Am I Reading This Right?


Swimmr

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Swimmr Contributor

Ok ya'll...

Positive for the gene...it's now official.

laugh.gifbiggrin.gif

It's a good thing because I know a lot of my issues are surrounded by the presence of Celiac.

I'm going to try and read this as best I can...

Thyroglobulin Antibody 308.1 0.0 - 60.0 U/mL

------

IgM was 10 with <10 being negative

IgA was 23 with >13 being positive

HLA-DQ2 Positive

HLA-DQ8 Negative

I don't quite understand the IgA and IgM and where the heck do I find the IgG?? I see that a lot of other tests call for IgA and IgM and IgG and has nothing to do with Celiac, and I am kind of confused. However, I know I have Celiac...as confirmed by both the nurse and the neurologist.

I'm also low on Protein S, Vitamin D, and Iodine. My CBC was not done showing lipids and all that jazz. It would have been nice to compare from a year ago. But oh well. My Vitamin D levels are better because before I remember distinctly being deficient.


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WheatChef Apprentice

Ok ya'll...

Positive for the gene...it's now official.

laugh.gifbiggrin.gif

It's a good thing because I know a lot of my issues are surrounded by the presence of Celiac.

I'm going to try and read this as best I can...

Thyroglobulin Antibody 308.1 0.0 - 60.0 U/mL

------

IgM was 10 with <10 being negative

IgA was 23 with >13 being positive

HLA-DQ2 Positive

HLA-DQ8 Negative

I don't quite understand the IgA and IgM and where the heck do I find the IgG?? I see that a lot of other tests call for IgA and IgM and IgG and has nothing to do with Celiac, and I am kind of confused. However, I know I have Celiac...as confirmed by both the nurse and the neurologist.

I'm also low on Protein S, Vitamin D, and Iodine. My CBC was not done showing lipids and all that jazz. It would have been nice to compare from a year ago. But oh well. My Vitamin D levels are better because before I remember distinctly being deficient.

The IgA and IgM were testing gliadin antibodies, technically they could be for anything if it's not listed? The IgA is mainly a mucous based immune system response (anything that comes in through your lungs or stomach). IgM is kinda like your bodies introductory response to a pathogen, it shows up upon the first few exposures and once your body's response to the pathogen (or perceived pathogen) matures you get the IgG response. because of this IgM is useful if you are only just now first experiencing a reaction to a compound but as your exposure continues the IgM response becomes muted.

DonaldandAlanda Evans Apprentice

I was taught that the thyroglobulin antibody test, is a tumor marker for the thyroid. Why did your doctor order this test?

Skylark Collaborator

I was taught that the thyroglobulin antibody test, is a tumor marker for the thyroid. Why did your doctor order this test?

It's a marker for lots of conditions, including Graves' Disease, Hashimoto's Thyroiditis, hypothyroidism, or rarely thyroid tumors. When I came up over 200 for anti-thyroglobulin after lifelong hypothyroidism my doctor was not concerned and diagnosed Hashimoto's.

Congrats on the gene test results. I'm thinking of getting them myself but I wonder what I'd change since I can't eat gluten no matter what.

ravenwoodglass Mentor

Congrats on the gene test results. I'm thinking of getting them myself but I wonder what I'd change since I can't eat gluten no matter what.

Gene testing can turn up some interesting stuff. IMHO they should gene test all celiacs on diagnosis because there are more than just the two genes tested for that are associated with celiac. I am quite thankful that I didn't have gene tests done until 5 years after diagnosis since they would have diagnosed me with RA and I would likely be dead by now. In this country my gene is considered an RA gene but in other countries it is a celiac gene. I did have strong RA symptoms that resolved on the diet. Since many RA patients have IBS I have to wonder how many are actually celiac.

DonaldandAlanda Evans Apprentice

It's a marker for lots of conditions, including Graves' Disease, Hashimoto's Thyroiditis, hypothyroidism, or rarely thyroid tumors. When I came up over 200 for anti-thyroglobulin after lifelong hypothyroidism my doctor was not concerned and diagnosed Hashimoto's.

Congrats on the gene test results. I'm thinking of getting them myself but I wonder what I'd change since I can't eat gluten no matter what.

Sorry, I was confusing the Thyroglobulin antibody test, and the Thyroglobulin test itself.......it's been a while since I thought that hard.

Bev111 Newbie

You will not know if you have Celiac unless you have a biopsy of your stomach. If it comes back positive then you deal with it. You may have other issues. I showed my allergist my IG

tests and he said he didn't care what it said. Blood work and the biopsy was the only thing he wanted to see. I too have had all the tests in the book. It took 4 years of tests and finally the doctor had me take a biopsy. I used to say to people ' I definately know what I don't have'. Its taken 6 months to heal and now have 97%. Good Luck


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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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    • Scott Adams
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