Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Reading This Right?

Swimmr

Recommended Posts

Swimmr Contributor
Swimmr
Posted

Ok ya'll...

Positive for the gene...it's now official.

laugh.gifbiggrin.gif

It's a good thing because I know a lot of my issues are surrounded by the presence of Celiac.

I'm going to try and read this as best I can...

Thyroglobulin Antibody 308.1 0.0 - 60.0 U/mL

------

IgM was 10 with <10 being negative

IgA was 23 with >13 being positive

HLA-DQ2 Positive

HLA-DQ8 Negative

I don't quite understand the IgA and IgM and where the heck do I find the IgG?? I see that a lot of other tests call for IgA and IgM and IgG and has nothing to do with Celiac, and I am kind of confused. However, I know I have Celiac...as confirmed by both the nurse and the neurologist.

I'm also low on Protein S, Vitamin D, and Iodine. My CBC was not done showing lipids and all that jazz. It would have been nice to compare from a year ago. But oh well. My Vitamin D levels are better because before I remember distinctly being deficient.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Ok ya'll...

Positive for the gene...it's now official.

laugh.gifbiggrin.gif

It's a good thing because I know a lot of my issues are surrounded by the presence of Celiac.

I'm going to try and read this as best I can...

Thyroglobulin Antibody 308.1 0.0 - 60.0 U/mL

------

IgM was 10 with <10 being negative

IgA was 23 with >13 being positive

HLA-DQ2 Positive

HLA-DQ8 Negative

I don't quite understand the IgA and IgM and where the heck do I find the IgG?? I see that a lot of other tests call for IgA and IgM and IgG and has nothing to do with Celiac, and I am kind of confused. However, I know I have Celiac...as confirmed by both the nurse and the neurologist.

I'm also low on Protein S, Vitamin D, and Iodine. My CBC was not done showing lipids and all that jazz. It would have been nice to compare from a year ago. But oh well. My Vitamin D levels are better because before I remember distinctly being deficient.

The IgA and IgM were testing gliadin antibodies, technically they could be for anything if it's not listed? The IgA is mainly a mucous based immune system response (anything that comes in through your lungs or stomach). IgM is kinda like your bodies introductory response to a pathogen, it shows up upon the first few exposures and once your body's response to the pathogen (or perceived pathogen) matures you get the IgG response. because of this IgM is useful if you are only just now first experiencing a reaction to a compound but as your exposure continues the IgM response becomes muted.

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

I was taught that the thyroglobulin antibody test, is a tumor marker for the thyroid. Why did your doctor order this test?

Skylark Collaborator
Skylark
Posted

I was taught that the thyroglobulin antibody test, is a tumor marker for the thyroid. Why did your doctor order this test?

It's a marker for lots of conditions, including Graves' Disease, Hashimoto's Thyroiditis, hypothyroidism, or rarely thyroid tumors. When I came up over 200 for anti-thyroglobulin after lifelong hypothyroidism my doctor was not concerned and diagnosed Hashimoto's.

Congrats on the gene test results. I'm thinking of getting them myself but I wonder what I'd change since I can't eat gluten no matter what.

ravenwoodglass Mentor
ravenwoodglass
Posted

Congrats on the gene test results. I'm thinking of getting them myself but I wonder what I'd change since I can't eat gluten no matter what.

Gene testing can turn up some interesting stuff. IMHO they should gene test all celiacs on diagnosis because there are more than just the two genes tested for that are associated with celiac. I am quite thankful that I didn't have gene tests done until 5 years after diagnosis since they would have diagnosed me with RA and I would likely be dead by now. In this country my gene is considered an RA gene but in other countries it is a celiac gene. I did have strong RA symptoms that resolved on the diet. Since many RA patients have IBS I have to wonder how many are actually celiac.

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

It's a marker for lots of conditions, including Graves' Disease, Hashimoto's Thyroiditis, hypothyroidism, or rarely thyroid tumors. When I came up over 200 for anti-thyroglobulin after lifelong hypothyroidism my doctor was not concerned and diagnosed Hashimoto's.

Congrats on the gene test results. I'm thinking of getting them myself but I wonder what I'd change since I can't eat gluten no matter what.

Sorry, I was confusing the Thyroglobulin antibody test, and the Thyroglobulin test itself.......it's been a while since I thought that hard.

Bev111 Newbie
Bev111
Posted

You will not know if you have Celiac unless you have a biopsy of your stomach. If it comes back positive then you deal with it. You may have other issues. I showed my allergist my IG

tests and he said he didn't care what it said. Blood work and the biopsy was the only thing he wanted to see. I too have had all the tests in the book. It took 4 years of tests and finally the doctor had me take a biopsy. I used to say to people ' I definately know what I don't have'. Its taken 6 months to heal and now have 97%. Good Luck

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

      @Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning...
    2. knitty kitty
      - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can...
    3. trents
      - trents replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound...
    4. knitty kitty
      - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are...
    5. Caligirl57
      - Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders
      38

      Severe severe mouth pain

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748
    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      New issue

      By knitty kitty · Posted

      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      Blood Test for Celiac wheat type matters?

      By knitty kitty · Posted

      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      Severe severe mouth pain

      By trents · Posted

      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals.  Dietary changes (low carb/paleo) may be beneficial for you.  Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet?   It's harder to get all the vitamins needed from a gluten free diet.  Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing.  Gluten free facsimile processed foods are not required to be enriched nor fortified.  So we have to buy our own vitamin supplements.   Glad to be of help.  Keep us posted on your progress!
    • Caligirl57
      Severe severe mouth pain

      By Caligirl57 · Posted

      I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant.  I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.