Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Got Glutened


conniebky

Recommended Posts

conniebky Collaborator

so, my family met at mom's tonight for supper. We all got talking for so long that we ordered Chinese food. Then I thought, oh man, I don't even know if I can eat chinese food. My daughter said, "isn't gluten the stuff that makes the rice sticky?"

That's all I needed to hear, be it true or not, so I made a burger on a plate with Morton's Lite Salt and Heinz ketchup. And sure enough, dizziness, feet felt funny, tunnel vision, stomach cramps. I've looked up the salt and ketchup online and they both say gluten free but I don't believe that for a minute. I had a glass of ginger ale, but that's it.

I know you all have said that I'm so new to being gluten-free that I can react to anything this early in the game, but I was so proud of myself for smelling and seeing all that beautiful chinese food and not even wanting it, and I ended up with a reaction anyway. Childish, I know, but I just don't understand why that happened.

I was just starting to feel that horrid feeling come over me, told myself, breathe and act normal, and just then my daughter goes, "oh wow mom, you're a funny color"....

any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mack the Knife Explorer

Your daughter was probably thinking of glutinous rice (also known as sweet rice or sticky rice) but despite its name it is actually gluten free.

However, Chinese food uses a lot of soy sauce which is usually not gluten free. I generally stay well away from Chinese food unless it is from one of the very few places that cater properly for Coeliacs.

Indian, Vietnamese and Thai foods are predominantly gluten free cuisines (as long as you avoid most of the deep fried stuff, breads and desserts) and are much better options if you want Asian food.

Wolicki Enthusiast

You probably reacted to a pan, utensil, cutting board or some such that was harboring hidden gluten. That is one of the hazards in a gluteny household. I hope it passes for you quickly.

Skylark Collaborator

You did the right thing not eating the Chinese food. As Mack the Knife said, almost all kinds of soy sauce have gluten in them. Oyster sauce often does too. If there is a P.F. Chang in your area, that's a celiac safe option.

I was informed here after an unexpected glutening that Thai is not consistently safe. A lot of American Thai restaurants use soy sauce or oyster sauce, both of which usually have wheat. Apparently not even all fish sauce is safe. Another person mentioned asking to see the box of rice noodles, and there was wheat starch in them.

As for what you did eat, Heinz is fine as is salt. I'm quite sensitive and eat Heinz all the time. Ginger ale should be OK. Any chance the ground beef in your burger was "off"? Remember that not every single reaction you experience from food is necessarily gluten. A lot of people around here lose sight of that.

Ahorsesoul Enthusiast

I agree about the cross contamination issues causing problems. If the hamburger you cooked was not just beef but a pre-made pattie it could be a problem with additives. I have not researched ginger ale but I have found that some orange soda and root beer are not gluten free. Check the brand name and email the company about the ginger ale.

My rule of thumb for Chinese take out. Only order items in white sauce, nothing breaded and no fried rice. One lady I know orders veggies and shrimp with no sauce at all and is happy. And ask the place when you call. More places are adding gluten free items to their menu.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.