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Help! New Symptoms


EHY

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EHY Newbie

Hey all, I'm new to this forum and glad it's here. I've been gluten-free for about two months and generally feeling pretty good; but recently I've developed nausea and dizziness, neither of which I've previously experienced. Generally my symptoms are bloating/gas and fatigue. Is it normal to go through an array of symptoms while getting off of gluten?

Also, I've wondered if it could be candida as I've fought off candida before (about 2 yrs ago before I knew I had Celiac) and haven't exactly been on an anti-candida diet (though I do avoid yeast). Any insights help. Much thanks.

-Jay


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WheatChef Apprentice

The odds of you having a candida overgrowth are less than your odds of having introduced a food into your diet with hidden gluten, or getting small amounts of gluten through cross contamination of a shared kitchen/dishwasher which would give you exactly the symptoms you've described above.

Mari Contributor

That old Candida can be sneaky and I didn't realize I had a problem but the ND I see tested me for it and gave me some herbs - Kroeger's Candida Formula # 2 and that helped tho I had to double the dose for a few days. I have added Neem leaf capsules and that is helping too.

T.H. Community Regular

You could also be having a reaction to another food, either an allergen or something you are intolerant or sensitive to. I ran into that within a few weeks of going gluten free, and had all three. I had the nausea, fatigue, dizziness, etc... But no hives or itching or anything.

If you keep a food log of every ingredient and how you feel, that may help you track down the culprits, if it is another food (celiacs are prone to other food issues, and to develop them later on, as well). I had to cut out a lot of foods, too, so I could figure out what I had problems with.

Also, have you been dating anyone new recently? Lipstick, powders, and makeup typically have gluten, too, so any kissing can get you glutened. ;)

Oh...if yeast does end up as a problem, you may want to be very careful about any medication - some anti-fungals that are commonly prescribed contain gluten and the doctor may not even think about it.

Hey all, I'm new to this forum and glad it's here. I've been gluten-free for about two months and generally feeling pretty good; but recently I've developed nausea and dizziness, neither of which I've previously experienced. Generally my symptoms are bloating/gas and fatigue. Is it normal to go through an array of symptoms while getting off of gluten?

Also, I've wondered if it could be candida as I've fought off candida before (about 2 yrs ago before I knew I had Celiac) and haven't exactly been on an anti-candida diet (though I do avoid yeast). Any insights help. Much thanks.

-Jay

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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