Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh Hair Loss


c.moriel

Recommended Posts

c.moriel Rookie

has anyone else experienced hairloss as a result of dh on the scalp? Which treatment options have been successful?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Yeah I sure did. I also still lose hair for a couple of weeks after a glutening even if the DH doesn't flare. I first eliminated all gluten from shampoos, conditioners and all other topicals and I added biotin to my vitamin regime. I have also had good luck with Country Life's Hair and Nails formula.

One thing to be real careful of is topical products like Rogaine, last I checked this was not gluten free and might make the issue worse.

c.moriel Rookie

Thanks. I've read that the hairloss is sometimes permanent. However, I have not come across any studies or statics indicating the probability of regrowth. I was just diagnosed with celia + dh last month (I'm 30) and am worried that I may be nearly bald before the dh clears. Have you or anyone else experienced hair regrowth?

conniebky Collaborator

WEll, this explains a LOT! This is way my scalp always was itching and my hair was falling out !? I had no idea that was part of it. :o

ravenwoodglass Mentor

Thanks. I've read that the hairloss is sometimes permanent. However, I have not come across any studies or statics indicating the probability of regrowth. I was just diagnosed with celia + dh last month (I'm 30) and am worried that I may be nearly bald before the dh clears. Have you or anyone else experienced hair regrowth?

Yes, it grows back. It usually takes about 3 months after the loss stops before it becomes obvious but grow back it does. It should for you to if it is related to the celiac.

c.moriel Rookie

Yes, it grows back. It usually takes about 3 months after the loss stops before it becomes obvious but grow back it does. It should for you to if it is related to the celiac.

Thank you. this has been very helpful. :)

  • 2 weeks later...
naiiad Apprentice

Now I'm not sure if this has anything to do with my pending caliacs, but I had really bad hair loss that lasted about 4 months. I lost more then half of my hair, my hair was dry, crispy and thin, and my scalp was always itchy, dry, and inflamed. This was really traumatizing, but all my hair grew back to its original thickness and shininess within about 5 months. I know its hard, but try not to worry! I was told by several dermatologists that chances are, with any type of short-term hair loss, it will stop and reverse itself.

In the meantime, there are things you can do to keep your hair and scalp healthy. I soaked my head and scalp with virgin olive oil every few days. This keeps your hair and scalp healthy and hydrated. I also washed my hair with very sensitive shampoo that I made myself mixing 1 part sage tea and 1 part baby shampoo. Don't use any hair damaging hair products or a blow dryer/straightner.

Again,stay positive! I'm sure your hair will grow up.

Hope this helps! Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.