Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was She Unsensitive Or Am I Being Oversensitive....again?


kaki-clam

Recommended Posts

kaki-clam Enthusiast

So the Gatro doc is having me under go the Sitz Marker test..where I have to swallow some little radio-active disks that help them track how stuff moves through my colon....

Anyway, I made the x-ray tech check to see if the pill contained gluten or iodine. While he was out of the room, the girl who was working with him was asking me about my gluten allergy. I told her I had been diagnosed in September and had been gluten free ever since. She seemed really interested and so I went onto to tell her what a struggle it had been and how sick I had been.....BIG MISTAKE...she was like "oh really? my friends son was autistic so she stopped feeding him gluten and he was fine in like a week? I am really surprised you were even sick, I woulda thought you woulda been fine in a week."

my jaw dropped and thankfully the xray tech came in just at that moment, said the pill was fine, I took it he took the xrays and I went home.

I was hurt by what she said. I was really sick for like 6 months....I know that gluten effects everyone differently, but I felt belittled by what she said.

I am over it now..but I can't help but wonder if she was wrong to say what she did? Or was I wrong to be upset by it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Until she talked with you, her only exposure to gluten allergies, intolerances, and celiac was the one friend with the Autistic child. She was surprised because she didn't know about the rest of the issue. Now she has heard about it and knows more than before. You shouldn't be upset. You just educated someone, even a little bit. I don't think she meant to make you feel bad, I think she was just surprised about something she didn't know.

kaki-clam Enthusiast

Until she talked with you, her only exposure to gluten allergies, intolerances, and celiac was the one friend with the Autistic child. She was surprised because she didn't know about the rest of the issue. Now she has heard about it and knows more than before. You shouldn't be upset. You just educated someone, even a little bit. I don't think she meant to make you feel bad, I think she was just surprised about something she didn't know.

Awesome way to think about it. Thank you!

Roda Rising Star

So the Gatro doc is having me under go the Sitz Marker test..where I have to swallow some little radio-active disks that help them track how stuff moves through my colon....

Anyway, I made the x-ray tech check to see if the pill contained gluten or iodine. While he was out of the room, the girl who was working with him was asking me about my gluten allergy. I told her I had been diagnosed in September and had been gluten free ever since. She seemed really interested and so I went onto to tell her what a struggle it had been and how sick I had been.....BIG MISTAKE...she was like "oh really? my friends son was autistic so she stopped feeding him gluten and he was fine in like a week? I am really surprised you were even sick, I woulda thought you woulda been fine in a week."

my jaw dropped and thankfully the xray tech came in just at that moment, said the pill was fine, I took it he took the xrays and I went home.

I was hurt by what she said. I was really sick for like 6 months....I know that gluten effects everyone differently, but I felt belittled by what she said.

I am over it now..but I can't help but wonder if she was wrong to say what she did? Or was I wrong to be upset by it?

You would be suprised to learn how little other healthcare associates really know about gluten and celiac disease. I like the other posters comment to look at it as an opportunity to educate someone. I am in the allied health profession myself and I have found it to be an opportunity to educate others, even doctors. I see alot of patients that come in for x-rays and ct scans that have symptoms that should warrent screening for celiac. Word is getting around the hospital that I have celiac and others are referring people to come talk to me about it. Oh btw the capsule you took isn't radioactive, so no worry there. It is radioopaque, meaning it will show up on the x-ray. Here is a link

Open Original Shared Link

luvs2eat Collaborator

If there's one thing I've learned here is that if you put 100 celiacs in a room, you'll have 100 different sets of symptoms. She didn't mean to be ignorant, but she only has one frame of reference.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,155
    • Most Online (within 30 mins)
      7,748

    Jodie W
    Newest Member
    Jodie W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • mermaidluver22
      @Scott Adams Thank you so much for this thoughtful and encouraging reply 💛 It really helps me feel less alone navigating all of this! I’ve definitely been strict gluten-free, but I’ll admit — in the beginning, I honestly knew nothing about cross-contamination 😅 so it’s very possible my gut is still healing from that. I feel very abnormal because I am not a typical celiac or a typical Crohn's, so it makes me feel very stuck. 
    • nanny marley
      Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who  told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗
    • Scott Adams
      It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if they have refractory disease or delayed healing. Keeping close follow-up with your GI and possibly revisiting your diet for hidden gluten sources could help. Hang in there—it’s a journey, and you’re doing great by staying proactive!
    • mermaidluver22
      hi, how are u now? any answers?
    • mermaidluver22
      I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ 
×
×
  • Create New...