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rhondaslusher1

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rhondaslusher1 Rookie
rhondaslusher1
Posted

I am confused. I had an iag and an igg. The iag shows only 5 units but the igg was 42, Which I was told is a high possitive. I know that being on a gluten-free diet makes the symptoms go away because I have tried it and plan to stay on it but I went in today for a upper and lower scope test and although I don't have results on the biopsies the Dr says things look good. She said to stay on gluten-free because it makes me feel better. Why would one test show low counts and the other show high? When I eat gluten my stomach bloats,I get diarreah,my stomach cramps and rumbles and at this point even on gluten-free diet I am lossing quite a bit of hair. I was first diagnosed with Neurocardiogentic syncope, then fibromyalgia and with the idea of celiac they think it might be why I have had problems with my esophagus. Do I assume I have celiac even if the results come back normal? One of my Drs says if there is one possitive then he thinks it's possitive.

Thanks for listening, Rhonda

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judy05 Apprentice
judy05
Posted

I had an elevated IgA (75) and IgG slightly elevated (can't remember number).

At first the Dr said I had Celiac Sprue and go on gluten-free diet. He then did an Endo and the biopsy came back neg, villi were not flattened, and my gene test came back Neg. He advised me that I could not be Celiac ( no damage and no gene) so he said try to reintroduce wheat, which I did and could not tolerate it. After that he tested ttg and he said it was negative. At this time he pronounced that he couldn't prove I had it, but couldn't prove I didn't. I have an appointment next week at which time I will reiterate that I tried wheat and dairy again and I got sick again. I also had the York test which found intolerance to wheat and dairy and three other food types.I know he will not believe this test but that's his problem, not mine.

I read that there are a lot of us who are just the "tip of the iceberg" .

Sometimes you have to go with what works for you, only you can tell how your body feels. Good luck! ;)

mommida Enthusiast
mommida
Posted

Well I actually started laughing at the doctor's office. I brought in the article on gluten ataxia, candidasis, and brain damage to the dotor's office to ask some questions about it. Doctors had no clue. Had no idea how to continue the process along and reccomended allergy testing. He said that he consulted Dr. Greene at Columbia, and if a person's genetic test came back negative they could not have Celiac. Maybe they can use the sheet of results after they get the next bout of D after eating gluten. Especially after the lab that did the testing backtracks to the point that they made it sound like it would be a miracle to get the test results right.

My experience gives me the opinion that the medical field is severely lacking. The gluten free diet is helping for some yet undertermined reason, and you should stick with it. Hopefully someday science will catch up.

Laura

tarnalberry Community Regular
tarnalberry
Posted

Did they do a total IgA test? Many celiacs are IgA deficient, so - even if you're celiac - the IgA gluten antibodies will show low, because you're low in general in that antibody category.

plantime Contributor
plantime
Posted

I agree with what Tiffany said.

rhondaslusher1 Rookie
rhondaslusher1
Posted
  • Author

What is a ttg? The only ones I was tested for was Igg and Iag along with upper and lower scope test. I only shown 1 high possitive which was 42 for igg. Don't have scope results yet but GI thinks it looked fine, no masses or polyps. I talked with my general dr tonight and he says he believes 1 possitive is enough to consider me celiac but he's looking into someone else too, to see what another dr would do to test me. Get this... He says he wasn't aware you could get cancer from not going gluten-free????? He does feel I should be gluten-free though. My kids also have to be tested.

Anyway, thanks everyone for the replys. Rhonda

KaitiUSA Enthusiast
KaitiUSA
Posted

Your doctor must not know a whole lot about celiac. Maybe you should consider seeing one who knows a bit more about it.

If you are a celiac ignoring the diet you increase cancer chances by 40-100 times...you have more of a chance to get diabetes, osteoporosis, kidney/pancreas/liver/gallbladder disorders, and many more life threatening or disabling diseases.

The tTG and EMA are the 2 more specific tests for celiac. These tests are very accurate.

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rhondaslusher1 Rookie
rhondaslusher1
Posted
  • Author

I knew about the cancer and even osteo but the others I had no clue. My Grandpa passed away 1 yr. ago last March from Kidney cancer and my grandma shortly after had many gallstones to be removed and it was bad enough to affect some of the liver.? I lost a baby a little over 2 yrs. ago who had spina bifida. Twice within the last yr. my potassium level dropped and I had to take potassium pills to elevate it. I wonder now if any of this has to do with celiac? Spina Bifida does not run in the family. Cancer does though, in different forms.

When they run a biopsy from the scope test, what are they looking for?

Thanks again, Rhonda

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