Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ttg Level Drop... Opinions?

Kim27

Recommended Posts

Kim27 Contributor
Kim27
Posted

Hi All!!

So to reiterate my story quickly, I was diagnosed with Celiac disease in April. In March I had a ttg level of 168. I've been completely gluten-free since 4/28 (biopsy date) (that I know of!!!). My doctor wanted to check some vitamin levels last week and so she said while we're at it we might as well check your ttg-iga level. I protested because I had only been gluten-free for 5 weeks and thought it wouldn't be enough time for my levels to drop really or be normal. She insisted saying let's just see to see if your body is dropping/responding at all. I had read that most people don't get rechecked until 4 to 5 months after being gluten-free. So I heard from the nurse today that as of last Friday my ttg level is at 65. The doctor hasn't had a chance to talk to me about it yet, but the nurse did divulge the level number. So what do you all think??? At 5 weeks gluten-free should it lower??? Should it be closer to normal????!!! The normal range they use it 0-19. I want to be encouraged that it has dropped to 65 and just think my body needs more time, but I also want others opinions to see if they think it should be lower than that by now and gluten might be sneaking in somewhere!

Thanks for any opinions!

Kim

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

You're doing great! It usually takes a few months for Ab levels to drop so seeing results after five weeks is good news.

WheatChef Apprentice
WheatChef
Posted

Some IgA levels can take half a year or so to drop to normal levels. You're certainly on the right track!

Kim27 Contributor
Kim27
Posted
  • Author

My doctor called later this afternoon & said she's very happy with these results so far & that Im doing good with it. She said normally within 5-6 months, the ttg should be closer to the normal range. Thanks everyone for the encouragement! Knowing that it has dropped by 103 already makes the hassle worth it! ;)

DonaldandAlanda Evans Apprentice
DonaldandAlanda Evans
Posted

My TTG went back to normal after a little less than 3 months

kayo Explorer
kayo
Posted

Can you remind me, what's the normal range for ttg?

Jestgar Rising Star
Jestgar
Posted

The normal range will depend on the lab that does the testing.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Normally anywhere from <8 to <19

Kim27 Contributor
Kim27
Posted
  • Author

My lab uses <19 as normal. I know labs can vary but from what I've read from others on here for the TTG IGA that seems to be pretty typical. 0-19 is normal, 20-30 lowly positive, >30 very positive (at least that's what my Dr. told me)

Kim27 Contributor
Kim27
Posted
  • Author

I have a typo in my previous post, not <19 normal, it's 19 and <

sa1937 Community Regular
sa1937
Posted

I think it definitely depends on the lab. My lab said:

< 5 Negative

5 - 8 Equivocal

> 8 Positive

My tTG was > 100 (definitely positive followed up with EGD/biopsy - also positive)

  • 2 months later...
SaraKat Contributor
SaraKat
Posted

Hello- my TTG level was 38 and my lab said <5 negative. I have my biopsy Tuesday morning- did you have a lot of intestinal damage? I am so nervous about that. I have this horrible pain in my left side (just under the ribs and wraps around the the lower back).

Does a higher TTG level indicate more intestinal damage?

Skylark Collaborator
Skylark
Posted
.

Does a higher TTG level indicate more intestinal damage?

Not really. Don't worry. Even if there is damage, it will heal when you go off gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,986
    • Most Online (within 30 mins)
      7,748
    Christine1
    Newest Member
    Christine1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.