Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Loss

Wendy813

By Wendy813
in Related Issues & Disorders

Recommended Posts

Wendy813 Newbie
Wendy813
Posted

I have just been diagnosed with Celiac Disease. I am 110lbs and 5'7. I am deathly afraid I will fade away on a gluten free diet. Anyone with this problem? Any advise or suggestions would be appreciated.

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angiegoo Newbie
angiegoo
Posted

I have just been diagnosed with Celiac Disease. I am 110lbs and 5'7. I am deathly afraid I will fade away on a gluten free diet. Anyone with this problem? Any advise or suggestions would be appreciated.

Wow, you certainly don't want to lose anymore weight. I was also just diagnosed with celiac and it seems losing weight can happen just naturally on the gluten free diet. But there also seems to be plenty of ways to ensure that you are consuming the right nutrients and getting enough calories in your diet. At the same time, it is tricky realising what foods you can and can't have, and sometimes food choice seem quite limited. Have you had the chance to check out what gluten free foods are available at the supermarket?

Also, have you considered seeing a dietician? My doctor recommended that I see one, so I am considering seeing one just to help me get started...a gluten free diet is quite a big life change and maybe seeing one would make the transition a little easier.

  • 2 weeks later...
Wheatfreedude Apprentice
Wheatfreedude
Posted

I have just been diagnosed with Celiac Disease. I am 110lbs and 5'7. I am deathly afraid I will fade away on a gluten free diet. Anyone with this problem? Any advise or suggestions would be appreciated.

Don't fret, we've all been there and this is the group to help guide you on your journey.

In order to help, what does your daily diet look like (please note all food and beverages including water).

What type of proteins are you consuming. Proteins are the building blocks of mass and muscle.

Once we take a look at that, we can provide further direction.

~Wheatfreedude~

Tina B Apprentice
Tina B
Posted

I have just been diagnosed with Celiac Disease. I am 110lbs and 5'7. I am deathly afraid I will fade away on a gluten free diet. Anyone with this problem? Any advise or suggestions would be appreciated.

Back when I was diagnosed one of my main symptoms was eight loss, among others. I am 5'4" and had gone down to 100 lbs. As soon as I went gluten free and was actually able to absorb nutrients I began gaining weight. 10 lbs. in the first week and slowly after that. About 6 months I was at 130 and have been the same weight now since 1991. I suspect you will gain also going gluten free because if you are intolerant of gluten it causes malabsorption and weight loss.

Cat Eyes Rookie
Cat Eyes
Posted

I have just been diagnosed with Celiac Disease. I am 110lbs and 5'7. I am deathly afraid I will fade away on a gluten free diet. Anyone with this problem? Any advise or suggestions would be appreciated.

I feel for you. I am 5'8" and weighed in at 116 lbs. two weeks ago at the doc. My regular weight is around 135 lbs. so I've lost almost 20 lbs. since going on the gluten free diet (although I'm not sure how much of this is related to the diet and how much is related to psychological stress/appetite loss due to a breakup -- probably a combo of both).

My doctor has recommened that I gain weight which I have found difficult to do since all I eat is lean meat, fruits, veggies, nuts, yogurt, protein shakes, etc.). I think I've put on 2-3 lbs. in the past three weeks by basically forcing myself to eat. I have been eating spoonfuls of peanut butter, drinking protein shakes and indulging in fattening snacks like potato chips and chocolate in order to gain some of the weight back. However, it's important that you continue to eat healthy. Get lots of protein from lean meats and nuts. Eat your fruits and veggies. I also eat/drink a lot of soy products.

I understand your concern though. My weight loss has caused a plethora of other health problems including hair loss and extreme fatigue. Just do your best to eat healthy and keep your weight up. You may want to consider vitamin supplements too.

munchkinette Collaborator
munchkinette
Posted

I have not had the experience of losing too much weight. Before I went on the diet, I remember thinking how awesome it was that I could eat unlimited junk food and never gain weight. Then I discovered why! I was basically starving myself because nothing I ate was absorbed. I put on weight after going on the diet because my body healed and I could absorb food again. I hated putting on that much, but I wasn't complaining simply because I knew my body was working.

JBaby Enthusiast
JBaby
Posted

I lost weight when I started the diet, few times was under 100lbs. 8 months in i finally found a nutritionist who himself has celiac. I started a whole foods diet only and the suggested supplements and never felt better. The supps are what i needed to help me gain the weight which are typical supps that we all need regardless of being Gluten intolerant or not. Its what I needed to help heal my body.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.