Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosed A Few Months Ago

MelissaBe123

Recommended Posts

MelissaBe123 Newbie
MelissaBe123
Posted

I've had a painful stomach my whole life. A few months ago, I decided it was time to go to the gastro and see if something was actually wrong with me. After only a few tests, they found out that I had celiac disease.

My whole life has changed.

I have lost weight. Gained energy. Gotten healthier. Changed my whole diet of course, and had to explain my diet to a lot of people.

I was just wondering if there is anything I should do to be more careful in not getting gluten in my diet. I already look at labels and research, but am I missing anything? I just want to make sure I am prepared for whatever celiac disease can throw at me.

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincramp Newbie
captaincramp
Posted

I've had a painful stomach my whole life. A few months ago, I decided it was time to go to the gastro and see if something was actually wrong with me. After only a few tests, they found out that I had celiac disease.

My whole life has changed.

I have lost weight. Gained energy. Gotten healthier. Changed my whole diet of course, and had to explain my diet to a lot of people.

I was just wondering if there is anything I should do to be more careful in not getting gluten in my diet. I already look at labels and research, but am I missing anything? I just want to make sure I am prepared for whatever celiac disease can throw at me.

Make sure stuff isnt cross contaminated, as someone jusyt told me that Quaker Rice Cakes are often contaminated with wheat from other parts of the factory.

sb2178 Enthusiast
sb2178
Posted

Do you have your own toaster, keep bakery/flours in a separate area of the kitchen? That can help too.

Kitchen equipment that has lots of texture (like colanders/holey items, wood, scratched plastic or nonstick) should not be shared because they are very difficult to clean.

If you are having problems, look at things like shampoo, make-up (you or a significant other), etc. Any contact with other people could be a problem-- are you kissing a kid's cheek after they eat a wheat-based sandwich? Sharing condiments?

If you feel okay, and your first round of bloodwork comes back clean, you must be getting it right!

GFinDC Veteran
GFinDC
Posted

...

I just want to make sure I am prepared for whatever celiac disease can throw at me.

Watch out for the furry flying kittens then. Oops, wrong disease! :)

A whole foods diet is a good way to go. Some people are low on some vitamins at first, so you could check with your doctor on blood tests for vitamin levels. Avoiding gluten-free baked goods to start can be helpful, at least until you get used to the diet for a few months. You also should consider otehr possible food intolerances, like dairy, soy etc. The sometime show up after being off gluten a while.

Skylark Collaborator
Skylark
Posted

The more you cook fresh, whole, gluten-free foods for yourself the better. I don't have to read the labels at all when I make my own soup. ;) You eat healthier, more nutritious food, and there is less chance of gluten sneaking in. Minimize eating out, and stick to places you know are gluten-free.

If your life has turned around, it sounds like you're doing it right. B)

lukester Newbie
lukester
Posted

Nice I see you have been reaping the benefits so far. I to have experienced many of the benefits that you have over the course of one week in to this new lifestyle. Like skylark said the best way is to cook from scratch since you know what you are putting inside.

sannep77 Newbie
sannep77
Posted

One piece of advice would be to not be scared to eat in restaurants! More and more people are hearing about the disease and are making adjustments in there restaurant for us people with special diets...and don't be afraid to ask. I went into TGIFridays one night and wanted to eat with my friends....they dont have a gluten free menu..but they cleaned the grill and made me a steak without seasonings and fresh broccoli without seasonings! I was so excited to get to eat with my friends. So don't let your disease hold you back...I did for the first 6 months of it...I was scared to eat any where...because I didn't trust people! Thats no way to live:) Have fun! But ask lots of questions and be careful. My friends like the special treatment our table gets now that I have to ask so many questions!lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 2 weeks later...
KevinNiemann Newbie
KevinNiemann
Posted

The ideas of cooking all whole foods are great. It's good to watch out for certain meats, mainly deli meats because they can have MSGs or modified food starch. It's also good to watch out for glutamic acid, hydrolyzed vegetable proteins, and anything with maltodextrin. I know that's a ton of stuff for you to watch out for, but you'll feel a ton better by staying away from that stuff. Hydrolyzed veggie proteins and modified food starch don't always have gluten in them, but if you don't contact the company to find out for sure, then you should skip those products.

Best of luck to you, fellow G-Freak :D

Kevin

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,536
    • Most Online (within 30 mins)
      7,748
    Flibertygibbet
    Newest Member
    Flibertygibbet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.