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How Many Are Not Gluten Free


4boysmom

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4boysmom Apprentice

I was wondering how many people on here are not gluten free, but have a loved one that is? I am not gluten free, but I got on the forum because my hubby was diagnosed with Celiac's. I knew I would be in the minority here but sometimes I feel like I am the only one on here that is not gluten free. Just wondering.


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psawyer Proficient

I'm not one of them, but there are quite a few members, including two of the moderators, who are not gluten-free, but have a child with celiac disease.

Skylark Collaborator

It's so nice of you to join a group like this to learn about celiac for your hubby!

  • 2 weeks later...
scarlett77 Apprentice

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

  • 1 month later...
halfrunner Apprentice

I am in your boat. DH is gluten free, I am not.

  • 2 weeks later...
MindytheOrganist Enthusiast

I'm the same as you. Hubby has celiac disease.

This is a great board with lots of people willing to help you out.

Darn210 Enthusiast

I'm not gluten free.

My daughter was diagnosed 3 years ago and as it's not realistic to expect a (then) 6 year old to shop or cook for herself . . . not only did she not have a large enough allowance to pay for her groceries, she wasn't allowed to turn on the stove . . . :P:lol:

I've learned a LOT in the last three years!!!


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nikki-uk Enthusiast

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

This describes me best.

Hubby and 1 of my sons have celiac disease. I'm gluten-free 95% of the time (mainly because it's easier)...but do eat gluten if I eat out :D

Linda L Newbie

Hi Friends, This is my first post because this simple question hit home for me. My Mom has lived with my husband and me for the last 5 years. She is almost 91 and has a long list of health issues. This summer she began to have diarrhea that would clear up and then return. Long story short, she has been diagnosed with Celiac Disease. As her caretaker, I have immersed myself in research on this disease that no one in my family had ever heard of and have returned again and again to this site for information. I am very grateful for everything I have learned here here and congratulate all you wonderful folks for all the help and hope you give to others like me.

Hindsight being what it is, I can see how many of her health issues may be related to a long standing gluten problem that her doctors where she used to live never picked up on. She has many of the listed symptoms of the disease except this recent diarrhea was the first gastro intestinal issue that she can recall. When an emergency doctor recommended that she be tested for celiac disease, her primary agreed immediately. We began eliminating gluten at the end of June (I say began as everyone here knows how long it takes to recognize all the possible sources.) We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

Back to the question: My celiac disease test was negative, so neither my husband nor I are gluten-free although we are very careful about cross contamination. Our Golden Retriever, Ruby, is not gluten free either, but as my mom's best friend, you can all bet the puppy treats she gets from Mom sure are!

Thanks for being here.

Steve Moody Newbie

We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

.

Linda,

Stomach pains from consuming dairy, if she does not get stomach pains foam gluten, sounds like lactose intolerance. Give her lactase before she eats dairy and see if it solves the problem. It might be possible than she has a problem with the protein, casien. If this is the case, it is like gluten. Avoidance is the cure.

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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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