Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Itching Shins.. Dh?


ninakacz

Recommended Posts

ninakacz Newbie

Hi everyone,

I'm pretty new to this whole thing, but just want to get this question out there.. it's driving me nuts! And doctors just think I'm crazy. I've been gluten free for about 6 months, and have had this terrible itch along my shins for a few years (since my symptoms of celiac started.) There is barely any kind of rash, only tiny little bumps when it's really bad. For some reason it gets way worse at night. Cortizone and anti-itch creams don't seem to do much. I have no idea if it's related to celiac but would love to know if anyone else has this strange condition! hellllp :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TrillumHunter Enthusiast

How's your b-12?

ninakacz Newbie

How's your b-12?

Not sure.. should I be worried about that? I also have anemia, but I think that's gotten better with a gluten free diet.

TrillumHunter Enthusiast

Both iron and b-12 anemia will cause this kind of itching. I had this terribly for YEARS. I lived near the ocean and people told me crazy stories about sea lice. :rolleyes: But I still had it when I moved inland. It didn't resolve until I got my iron and b-12 up. I don't think it's DH--at least mine wasn't. There wasn't any real rash, just an unbearable itching on my shins only.

Work on improving your anemia and maybe try a sublingual b-12. Maybe ask for your b-12 to be checked next time you are in the drs office. Lots of folks with celiac have low b-12.

Good luck!

missy'smom Collaborator

My son gets eczema on his calves. No rash until he itches it, then more like tiny broken little bumps. He was a big itcher in his sleep-not during the day. Dietary elimination of gluten made it go away. Now, after allergy testing pos. for beans(amoung many other things) and doing an elimination, then re-inroduction, we discovered that beans made it come back-he got very itchy right away. Original allergy testing showed wheat reaction so that's why we initially eliminated gluten.

ninakacz Newbie

thank you so much for your responses- I'll definitely get tested for that. I never thought it could be another food other than gluten contamination but that's also something I could look into. I just want it to go away!!

RoseTapper Newbie

My shins (and sometimes my ankles) have itched for years! I have celiac and have been gluten free for the past 6-1/2 years, but the darned shins itch almost every evening. It's a mystery to me, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



climbmtwhitney Apprentice

Count me in! I scratch my shins till they start to bleed sometimes. Like others, it's much worse in the evenings. And, it happens every day--with some days worse than others. About 2 months ago I went for skin prick testing thinking I must have a true allergy to something. Turns out I have a lot of true allergies, but an elimination diet didn't cure the itching. Darn.

I'll up my B vitamins and see if that helps.

Jillian

detoxhealing Newbie

Hi - I have Dermatitis Herpetiformis too - mainly on my shins and back of my knees. It was horrible when I was eating gluten foods (before d/x) and is healing on a gluten-free diet but there's still some patches that will itch and have little bumps if I accidentally eat gluten or maltodextrin...

Some supplements that helped with the healing were zinc, selenium, vitamin E, vitamin C and lots of omega oils (I use YES Oils). For the itching, coal tar ointment helped but darkens the skin if used over a prolonged period. Also, watch out for lotions, shampoos, conditioners and body wash containing wheat germ oil or wheat protein. I use Dr. Bronner's castille soap now.

Jo

pigeonsailor Newbie

I'm a celiac who experienced the same thing. Crazy itching on my shins, right next to the bone itself, that I simply couldn't stop scratching, but no real rash.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.