Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Goodbye My Sweet Friend Dairy...


Marz

Recommended Posts

Marz Enthusiast

So after 5 days gluten-free, I'm suddenly getting severe reactions to milk. I wasn't lactose-intolerant before going gluten-free, I was happily having milk with cereal, extra glass of milk each day, yoghurt, cheese on everything etc.

Yesterday, every time I put something dairy-related in my mouth, my stomach got upset, intestines churning after an hour or so.... And add to that my normal nasal drip turned into a torrent. It really seems that dairy is causing problems, and I've read that casein is often the culprit :(

Today I'm dairy free as well, and I'm feeling a lot better.

I'm really hoping this goes away after a while. Can you be casein-intolerant for a while after going gluten-free, and then be able to tolerate it again?

Is it "safe" to continue with dairy even if you know you can't tolerate it - it isn't like gluten where trace amounts can seriously screw you up right? I might experiment with small amounts of dairy and see what my tolerance level is.

So diet at the moment:

Beef/Lamb/Pork - no spices except salt and pepper

Veges of all kinds - no sauces except home-made with gluten-free ingredients

Cucumber/lettuce salad - plain salad, no dressing

Fruits of all kinds - fresh, not tinned etc

Rice/Potato/Sweet potato and starchy veges for the carbs

Nuts/dried fruit/peanut butter for snacks.

Does this sound healthy? Anything else I can add to this to increase my healthy fat/carb consumption? I'm underweight at the moment, just worried I could be starving myself further by taking dairy away.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

So after 5 days gluten-free, I'm suddenly getting severe reactions to milk. I wasn't lactose-intolerant before going gluten-free, I was happily having milk with cereal, extra glass of milk each day, yoghurt, cheese on everything etc.

Yesterday, every time I put something dairy-related in my mouth, my stomach got upset, intestines churning after an hour or so.... And add to that my normal nasal drip turned into a torrent. It really seems that dairy is causing problems, and I've read that casein is often the culprit :(

Today I'm dairy free as well, and I'm feeling a lot better.

I'm really hoping this goes away after a while. Can you be casein-intolerant for a while after going gluten-free, and then be able to tolerate it again?

Is it "safe" to continue with dairy even if you know you can't tolerate it - it isn't like gluten where trace amounts can seriously screw you up right? I might experiment with small amounts of dairy and see what my tolerance level is.

So diet at the moment:

Beef/Lamb/Pork - no spices except salt and pepper

Veges of all kinds - no sauces except home-made with gluten-free ingredients

Cucumber/lettuce salad - plain salad, no dressing

Fruits of all kinds - fresh, not tinned etc

Rice/Potato/Sweet potato and starchy veges for the carbs

Nuts/dried fruit/peanut butter for snacks.

Does this sound healthy? Anything else I can add to this to increase my healthy fat/carb consumption? I'm underweight at the moment, just worried I could be starving myself further by taking dairy away.

The diet sounds very healthy, healthier than most people do. Yes you may be able to tolerate dairy again. Give yourself a few months of healing and then try yogurt and cheddar cheeses and see how you do. Those have very little lactose so if it is a lactose intolerance after you have healed there is a good chance you will be able to consume them. If it's casien then well dairy may be out for the long term. I am able to tolerate a bit of dairy in my coffee but that is about it. There are some good dairy replacements out there, I like Wegmans rice milk, don't get Rice Dream as that is not safe. The only way I can drink rice milk is with chocolate syrup but it works for cereal. There are also almond milks and hemp milk. Hemp milk is high in protein if you feel you need a bit extra.

Your not alone most of us can't tolerate dairy at first but many are able to add it back in after we are healed.

kayo Explorer

Looks very healthy to me. My only suggestion would be to add some grains, gluten-free of course, like quinoa and buckwheat. I make salads like taboule out of them and I also make a breakfast cereal with the quinoa adding blueberries, sugar and cinnamon. Prepped like this it reminds me of oatmeal.

I'm also lactose intolerant and I use hemp milk. There's also soy milk (chocolate Silk is to die for), coconut milk, and nut milks. I eat a lot of rice already so I didn't want to add rice milk into my diet.

Mari Enthusiast

What may be happening is that you have had an allergy or intolerance to cow's milk before you went gluten-free but since the gluten is gone you are noticing the reaction more. Also it may be that as long as we were eating gluten our bodies tried to minimize the reaction and damage and it also minimized the reaction to allergies. In allergy to cow's milk can be tested for by blood test or fecal tests (Enterolab.com). The blood test may be negative if you have been not eating the allergin for too long a time. I showed a positive even tho I'd avoided cow's milk for years. I use goat's milk products.

julandjo Explorer

What may be happening is that you have had an allergy or intolerance to cow's milk before you went gluten-free but since the gluten is gone you are noticing the reaction more. Also it may be that as long as we were eating gluten our bodies tried to minimize the reaction and damage and it also minimized the reaction to allergies. In allergy to cow's milk can be tested for by blood test or fecal tests (Enterolab.com). The blood test may be negative if you have been not eating the allergin for too long a time. I showed a positive even tho I'd avoided cow's milk for years. I use goat's milk products.

I too am newly cutting dairy out of my diet. Is goat's milk/cheese okay to eat? I have an awesome turkey/quinoa/goat cheese meatball recipe that I LOVE. If I could continue to eat this it'll make my whole month!

pigeonsailor Newbie

Why no dressing on the salad? You can make your own. A delicious honey mustard vinaigrette, for example. I find beans to be really important for me too, and I'm digging quinoa these days.

  • 1 year later...
Rob Sutton Newbie

I have severe Celiac and have done ok with cream cheese and other cheeses. I also avoid meat which helps keep the intestines clean and smooth moving so dairy does not fester. Meat and gluten are the biggest issues for dairy digestion. I am happy as a lacto-ovo vegetarian. I eat a lot of corn and bean tacos with cheddar cheese. I eat cream cheese with sprouted sunflower and pumpkin seeds. Finding the right combination and portion size is the key. Too much dairy can cause issues. Too little and you will not have energy. Dairy is a great source of condensed energy and protein. Make digestion your focus rather than the hype about dairy. I use some liquid meat protein for example. I don't eat meat merely because it takes too long to digest. If I had not other choices I may eat a small piece. Vegetarian is not a religion it is only about digestion and good health to me. Digestion, digestion, digestion!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

Hi Marz,

Good luck! It takes a journey to find out what is bugging you.

Personally, quuinoa kicks me almost dead. So do certified gluten-free oats. But that doesn't mean that they will affect you, and there are foods that will bug you that won't bug other people. We have a mean little army working inside our bodies that want to attack what we stick in our mouths or put on our hair or face and skin.

I've been off dairy for about a year. I bought goats milk two weeks ago and poured about a Tbsp. in my cup of coffee. I took two sips and chickened out on my challenge. I just didn't want to get sick again. I tossed my coffee out, got a fresh cup of black java. Maybe I should be more courageous.

I wish you well. :)

Marz Enthusiast

I have severe Celiac and have done ok with cream cheese and other cheeses. I also avoid meat which helps keep the intestines clean and smooth moving so dairy does not fester. Meat and gluten are the biggest issues for dairy digestion. I am happy as a lacto-ovo vegetarian. I eat a lot of corn and bean tacos with cheddar cheese. I eat cream cheese with sprouted sunflower and pumpkin seeds. Finding the right combination and portion size is the key. Too much dairy can cause issues. Too little and you will not have energy. Dairy is a great source of condensed energy and protein. Make digestion your focus rather than the hype about dairy. I use some liquid meat protein for example. I don't eat meat merely because it takes too long to digest. If I had not other choices I may eat a small piece. Vegetarian is not a religion it is only about digestion and good health to me. Digestion, digestion, digestion!

Thanks for the reply :) Not sure if you noticed, it was a year ago that I posted this. I was still trying to get a handle on what was upsetting my stomach. Since then my gut has healed up and I can eat dairy without a problem. Still have problems with soy though.... I don't think I could ever go vegetarian, I feel like my diet is too restricted as it is already! Red meat is sometimes too much for me digestion-wise, but I can handle white meat/fish fine :)

Marz Enthusiast

Hi Marz,

Good luck! It takes a journey to find out what is bugging you.

Personally, quuinoa kicks me almost dead. So do certified gluten-free oats. But that doesn't mean that they will affect you, and there are foods that will bug you that won't bug other people. We have a mean little army working inside our bodies that want to attack what we stick in our mouths or put on our hair or face and skin.

I've been off dairy for about a year. I bought goats milk two weeks ago and poured about a Tbsp. in my cup of coffee. I took two sips and chickened out on my challenge. I just didn't want to get sick again. I tossed my coffee out, got a fresh cup of black java. Maybe I should be more courageous.

I wish you well. :)

Thanks Marilyn :) I'd really encourage you to try a bit of milk, like Rob said - you might be able to handle some small amounts of cheese at first. Quinoa also kicks my butt, no idea why. I haven't tried certified gluten-free oats yet, too scared of the reaction! I had some non-gluten free oats once, and my reaction was ugly... not sure if it was gluten or the oats itself.

  • 11 months later...
NatureLover36 Newbie

Hi I'm new to the forums and was so happy to see your journey with dairy! :)

But I have a question - even though I've shown no detectable reaction to dairy, I tested positive for casein intolerance(as well as gluten, soy, and egg) with Enterolab. Should I avoid eating ALL dairy because of this test, forever? Or can I eat small amounts infrequently since I have no reaction?

I react very strongly to even small amounts of egg, so I don't eat eggs, and of course can't have gluten, and I'm vegetarian. I've lost a lot of weight unintentionally after going gluten-free. I'm underweight and feel like maybe if I ate cheese or yogurt, it would help me gain weight.

Please help - should I keep avoiding dairy forever, or not?

Thanks!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    4. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.