Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Walt Disney World Resort

Roda

By Roda
in Traveling with Celiac Disease

Recommended Posts

Roda Rising Star
Roda
Posted

My family along with my parents are going to WDW in Feb. My parents are taking their airstream and we are going to stay in it at the Walt Disney World Resort. It looks and sounds like a great place to stay and the kids will love it. We will be doing most of our own cooking at the campsite in the airstream since my parents don't want to pay the high prices for food at the restaruants. It works out better for me anyway, because I'll be doing the cooking for all of us just like I did last week when I was at their house. So, I'm looking for input from anyone that has stayed there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CHARBEEGOOD Newbie
CHARBEEGOOD
Posted

My family along with my parents are going to WDW in Feb. My parents are taking their airstream and we are going to stay in it at the Walt Disney World Resort. It looks and sounds like a great place to stay and the kids will love it. We will be doing most of our own cooking at the campsite in the airstream since my parents don't want to pay the high prices for food at the restaruants. It works out better for me anyway, because I'll be doing the cooking for all of us just like I did last week when I was at their house. So, I'm looking for input from anyone that has stayed there.

I live in the area and can tell you Disney offers a wide selection of gluten-free products at the restaurants. If you make any reservations just let them know your dietary needs and requirements: you can also go to the Disney Web site and send in an email they will forward you some information about dietary restrictions.

If you want to "shop" so that you can cook. There a several "grocery" stores in the immediate area; Whole Foods on Turkey Lake/Sand Lake Rd., a Walmart right across the street; Publix, Goodings, and Winn Dixie (or is it Albertsons) it is right there in the Cross Roads area.

I hope that this is helpful.

CHARBEEGOOD Newbie
CHARBEEGOOD
Posted

If you want to dine on property don't let you "dietary" needs keep you from doing so, when you call the reservation center just let them know your restrictions and they will note them on the reservations. You can also visit Disney.com and send an email. They will help you link up your needs with any reservations and get you in touch with the Dietary Team.

If you want to go grocery shopping you will have some choices. Just up the road off of I4 at the Sandlake exit there is a Whole Foods and a Walmart. There is also a Publix just a few stop lights up from these 2 on Sandlake (going toward Dr. Philips). Down by Cross Roads (535 I believe) you will find a Goodings and a Winn Dixie or Albertson's. I don't shop in Goodings much but I know that Publix offers a fairly decent selection of gluten-free items in the Greenwise section.

Let me know if this helps or if you need more.

Roda Rising Star
Roda
Posted
  • Author

This is great. Thanks for the information! I can't wait until we go. I will have a menue plan for the week and have as much stuff made up ahead of time so I don't have to "live" in the kitchen on vacation.

Traveller Rookie
Traveller
Posted

If you plan on eating in the WDW restaurants, bear in mind these two things:

1) WDW generally has an excellent reputation, and in many ways is simply awesome for gluten-free dining, and

2) I got glutened there. But only once in a week.

Although my story may be an anomaly, here it is: a few months ago I stayed in one of resort hotels. My first night I went to the general restaurant; it's set up with various stations that make food to order. I told the server I was gluten free, and she got a chef to speak to me. He was awesome, leading me around to all of the food stations, explaining what I could and could not have, and how things were made. He made me feel perfectly comfortable. I chose to eat a steak sandwich without the bun. He spoke to the grill superintendent, who spoke to the griller, went in back to cook my fries in clean oil, and we were off to the races. Unfortunately, I came at a high traffic time and many orders were being prepared at once.

It was only after I got back to my room and felt the usual menagerie of symptoms developing that I recalled a glimpse of my speak being prepared a grill shared with buns and tostadas, being flipped by a spatula that just flipped a tostada. The results were entirely predictable.

I should have been more aware and less trusting.

Moral: It's an amazing place and does an outstanding job, but mistakes do occur. Like everywhere else, stay alert.

  • 2 weeks later...
minniejack Contributor
minniejack
Posted

Hi, I know there is a whole foods close to Disney, but I'm planning on specifically doing Disney in 3 weeks just because of what I've read and heard about their gluten free dining. Go to www.Disboards.com then the disabilities section and there are a couple of threads specifically about people's experiences with gluten free dining. I personally can't wait to try fried chicken at the 50's prime time cafe at the studios (used to be called MGM--I can't for the life of me remember what they call it now.)

  • 1 month later...
mscan91 Newbie
mscan91
Posted

As a former Disney Cast member and gluten-free I can tell you that there is no better place to go to have delicious gluten-free meals!!!!

Every single restaurant has options. Tell them you need rice bread, rice pasta etc. If you go to "The Land" in Epcot, the food court has excellent gluten-free brownies. And the Sci Fi Diner has a gluten-free chicken sandwich and Fries to die for :]

Have a magical visit!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 months later...
Roda Rising Star
Roda
Posted
  • Author

One more week to go and we are there!! My kids are so excited. My youngest wants some gluten free goodies so we are going to check out Babycakes bakery for sure. We still haven't decided where to go out to eat yet. My mom and I did a meal plan together so we don't have to spend a whole lot of time in the kitchen.

Roda Rising Star
Roda
Posted
  • Author

Oh, dang! I just read on Babycakes website that they use Bob's Red Mill Products for their gluten free goodies. I gave up eating any Bob's products in August and I feel so much better since doing so. I think the cc from their gluten free oats was getting me. Oh well for me. :( I may still visit for my son though. The info is in the last paragraph.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Celiac.com Sponsored Post
      0

      An Inclusive Valentine's Day: Easy Tips for a Celebration Everyone Can Enjoy

    2. trents
      - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    3. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a...
    4. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748
    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      IBS-D vs Celiac

      By trents · Posted

      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.