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gfmommy67

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gfmommy67 Newbie
gfmommy67
Posted

First off, I am a newly diagnosed Celiac by elimination diet and endoscopy. I've been gluten free for almost 6 months now. Just recently I started getting hives. And now they've spread and I am MISERABLE! Is this possibly linked to the Celiac? It's on my face, hands, legs, arms,and a little on my stomach and sides. If so, can anyone help with a possible solution?? I can't take it anymore!!! Thanks in advance.

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tmbarke Apprentice
tmbarke
Posted

Is it possible that you may have changed your laundry soap? or anything that touches your body?

I'm allergic to Mr. Bubble and Tide.

It was terrible when I was dating someone that used Tide and I started getting welted hives all over my body! thankfully he went to Tide Free and Era

I also got a skin hive reaction in my teens from a medication.......I was covered with welted hives and it made me sick and passed out! What a shocker!

I hope that may have brought some insight..........even if it's kids brand items

Hope you feel better hun,

Hugs!

T

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Have you checked all your lotions, make-up, shampoos, deodorant, soaps (evan laundry soap) to see if they are gluten free? After going gluten-free I started getting hives from some lotion I had been using with wheat germ oil in it. Many people will say they have no reaction to gluten in non-food items, but for me I have to check that everything is gluten free.

LDJofDenver Apprentice
LDJofDenver
Posted

Not to discount the prospect of a "contact" cause (something you're putting on your skin, or new laundry detergent, etc.), I often get a nasty case of hives from something I've ingested.

Cross contamination is a possibility. God help me if I was unknowingly glutened.

After you review exterior things that may have changed (lotion, detergent, soap, etc) perhaps really go over your diet with a fine-toothed comb looking for red flags for products that may have changed formula (many Progresso soups that were gluten free are no longer gluten free since they removed MSG and reformulated their soups, for example). Or unknown ingredients (natural flavors, etc.) in things you're eating that you think are safe. Contact the manufacturer(s) of anything suspect, for gluten-free verification.

Health Valley Soups: If you just read the ingredients most seem safe. However, when I phoned them they said I should stay away from ANY of their soups that list natural flavoring (split pea is OK, potato leek and cream of chicken are NOT).

jerseyangel Proficient
jerseyangel
Posted

In addition to all of the above suggestions, have you changed or started any new medications lately? I got a reaction like that shortly after switching to a generic version of a med I had been taking for years.

At any rate, it sound like an allergic reaction to something.

Skylark Collaborator
Skylark
Posted

That does sound miserable. Have you talked to your doctor? Standard allergy testing might be able to help you sort out what's causing the hives. I get allergic rashes from certain plants and pollens and sometimes break out when I'm doing yard work. I put some Benedryl cream on and then take a dose of Benedryl at night. It makes me a little groggy the next day but it's worth it to be free of that awful itching.

ravenwoodglass Mentor
ravenwoodglass
Posted

First off, I am a newly diagnosed Celiac by elimination diet and endoscopy. I've been gluten free for almost 6 months now. Just recently I started getting hives. And now they've spread and I am MISERABLE! Is this possibly linked to the Celiac? It's on my face, hands, legs, arms,and a little on my stomach and sides. If so, can anyone help with a possible solution?? I can't take it anymore!!! Thanks in advance.

What do you 'hives' look like? Are they large mosquito type bumps or are they smaller, more like a flea bite size? If they are smaller you may have DH. The placement you describe is where many folks typically get DH breakouts. If they are hives an antihistamine should relieve the itching. Antihistamines don't do much good for DH though.

Do check all that everyone has mentioned and if you take supplements make sure you read the ingredients and that there is no wheat or barley grass in them even if they say gluten-free on the label.

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gfmommy67 Newbie
gfmommy67
Posted
  • Author

Thanks everyone! My hives are like white bumps....mosquito bite size....they come and go...staying anywhere from 30 minutes to 3 hours....antihistamines do not seem to help. I've checked everything I use, no gluten or cross contamination. So I'm headed back to the doctor. Thanks again for the help!

C39 Newbie
C39
Posted

Thanks everyone! My hives are like white bumps....mosquito bite size....they come and go...staying anywhere from 30 minutes to 3 hours....antihistamines do not seem to help. I've checked everything I use, no gluten or cross contamination. So I'm headed back to the doctor. Thanks again for the help!

I wonder if because you are now eating gluten free items, you are eating more acid in foods like tomatoes and that is what is causing the hives?

sandsurfgirl Collaborator
sandsurfgirl
Posted

A lot of people ask this question so I did some research a couple of months ago. Autoimmune disorders can cause hives so yes you can get hives just because you have celiac. Sorry, don't know where the websites are anymore.

That being said, it's important to rule out allergies because of the risk of anaphylaxis.

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    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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      High TTG-IgG and Normal TTG-IgA

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      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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