Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help..please


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

Help, please! I found out a month ago that I have Celiac after 7 months of tests and scans. I'm learning alot, but still in pain. I went to a wonderful dietition who helped alot, but I'm still making mistakes. I have some pain free hours and I'd like to make them days. Right now I'm getting the handle on food, but want to go gluten free with my cosmetics, lotions etc. If anyone knows of a good line to try, could you please let me know. Any other advice, help, or suggestions would be welcomed. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

Don't worry - it gets easier! I was accidentally glutened 3 times in my first 3 weeks of trying to be gluten-free. I'd start to feel better, then - bam! - stomach cramps for the next 5 days. There is a learning curve. It sounds like you have a really positive attitude, and that's great.

I just have one suggestion: look out for food intolerances. Since your digestive system has been severely strained after eating gluten for so long, it may be hard for your body to digest other foods. It could be that you're reacting to something else in your diet, especially as your body starts to detox from gluten. That doesn't mean that you'll need to avoid it forever, but you may need a recovery period before you can eat it again.

You can keep a food diary and track how you feel alongside what you eat, to identify if you're reacting to other foods. Common intolerances include dairy, soy, corn, and nightshades including tomatos and eggplant, but everyone is different.

best to you, lucia

CarolinaKip Community Regular

Thanks for your response! I'm going to start the food diary today. Right now, I'm working on cosmetics. I have been having some numbness on my face and icky skin. Thanks again.

Kip

bluebonnet Explorer

burt's bees tinted lip balms have fun color and gluten free. i also like their baby bee body lotion. (target) bare minerals and smash box are gluten free too. (sephora) if you tend to wash your hands a lot nutragena hand cream is nice. (target) for hair i've been using "surface" line from shampoo/conditioner to the gel and hairspray. (available in salons only though i believe they have a website).

i think a lot of people use the garnier facial cream but i haven't tried it yet. i think changing to gluten free products have helped me. early on i pinpointed i got cc from my hand lotion while eating popcorn, so i believe they can make a difference. good luck! :)

CarolinaKip Community Regular

Thank You!!

Tina B Apprentice

Check things like vitamins and supplements for starch fillers. Same for yogurts. I use Nature Made vitamins because they specifically say "gluten free," I did check One a Day on line in the past and are gluten free also.

gflooser Contributor

for things like shampoos etc. i to use garnier fructese, it smells GREAT! i also use suave from time to time. their deoderants, hand soaps, hand creams, they are made by unilever and they will disclose any glutens. dove is also a good product that will list glutens.

i like nutregena for things like facial soaps and hand cream!!!

dial is a good one for hand and body soap, dove, and irsh spring too.

tide for laundry det. and snuggle and bounce for fabric softener.

i tend to stay with revlon and burts bees for make up. they will list any glutens.

crest, colgate, and toms of maine for toothpaste.

as you can see, i try to buy all my products at the wallmart/target type stores. the gluten free food is so expensive that i can't be buying the pricey shampoos, soaps and lotions!

plus, I'm a cheap-o :)

good luck!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SuperMolly Apprentice

Cross Contamination (CC) can make being gluten free tricky. Here are some things I've learned:

  • Get your own peanut butter jar, jelly, butter, and toaster.
  • Get your own cooking utensils and serving spoons.(Mine are red so we can tell easily they are gluten free).
  • I keep my lunchmeat and cheese in well marked bags away from the family supply. I no longer get sick from their wheat-covered fingers dipping in the bags.
  • Be careful with food that is made in facilities that also use wheat.
  • "Gluten Free Oats" make me very ill. Many can handle them, but not all of us can. (I hope you are one of the lucky ones that can!)
  • Be careful at restaurants. I bring a cooler of safe food with me if I know I'm going to be away for a meal.

    I'm glad you found this forum early on. I wish I would have. Nobody understands celiac disease better than those who live it day in and day out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.