Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Worst Every Time When Glutened...


marie1107

Recommended Posts

marie1107 Newbie

Hi!

I have been gluten-free for about 2 years and I was very very strict for the first one and never took any risks of getting glutened. But now I try to be careful but I have had a couple of accidents. And everytime the symptoms are more violent. I thought and I had heard from some other celiacs that after recovery symptoms would actually decrease... Is your body also reacting more even after being gluten-free for a while? Or is it less? Thanks for you help. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Well I've only been gluten-free for six months, but I can say for sure my symptoms are more severe now. I never had bad gastro symptoms before going gluten free, just bloating and gas. My symptoms were mostly neuro. Now I get violent stomach pains and bloody D a few days after being glutened as well as the neuro symptoms (headaches, shaky hands, fatigue, brain fog, muscle spasms, and joint pain). I'm also much more sensitive to cc than I was in the beginning.

Ahorsesoul Enthusiast

Over 8 years gluten free, still react violently to gluten. Will not touch gluten on purpose.

koolkat222 Newbie

I have been gluten-free for over 4 years. I am very sensitive to any gluten or cross-contamination. For me, the symptoms of getting glutened get worse and worse over time. I figure it's because my body has finally gotten rid of what it basically sees as a poison. So when it does get glutened again, it's a pretty bad and kind of long reaction.

ravenwoodglass Mentor

My gluten by accident symptoms got worse also. I am eight years in and a good glutening now leads to a 3 days mild GI bleed. Something that didn't happen at all before I was diagnosed.

sandiz Apprentice

Have been gluten-free for 6 months now and I notice that if I am glutened the symptoms are worse every time. I am very careful and stick to what I now is safe and when it happens I have only had 1 new thing (note to self, stay away from that) It also seems to take longer to recover from the episodes. Not sure if it is related but this time not only have I had the "brain fog" bad but severe stomach pain on my right side, bloating, gas, nausea, both bathroom issues and a SEVERE PANIC ATTACK. It lasted the whole day and left me completely drained.

I do appreciate this site as I read the posts I realize that I am not alone. Thank you everyone. :-)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
    • Scott Adams
      I am so sorry you're going through this. It's bad enough to fight for a diagnosis and manage this disease, but to have your partner use it as a weapon against you is truly devastating. What you're describing isn't just a lack of support; it's abuse, full stop. Controlling your food and money is cruel, and his pleasure in your misery is chilling. Please hear this: the kindness from that woman at the food pantry is what you deserve. It's a glimpse of the real world, where people care. You deserve to eat, to heal, and to have peace. His actions are the biggest barrier to your health right now, and you are not broken—you are surviving in an impossible situation. Don't give up on that lifeline you've found.
    • Colleen H
      Thank you.. Christina My anxiety is through the roof.  I think it was from eggs.  I really don't know because my eyes feel sore. Like I'm allergic to them.  I was defient in B12.   My heart is pounding and it won't stop.  Not sure what to do.   I don't have much support other than this forum.    Colleen 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.