Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge


michaelkl1

Recommended Posts

michaelkl1 Rookie

I have been gluten free now for over 6 weeks. I don't have the stomach gurgling and my stool is pretty normal except for occasional D. I think I probably had some cross contamination. Overall I feel that I have more energy and just have a better overall feeling, but I still have itchiness over my skin. Before going gluten free I had a stomach biopsy that came back positive that indicated the beginning stage of gluten sensitivity, and my blood test came back negative. My GI doctor only suspects Celiac,so she wanted be to be gluten free for 6 weeks and then take the gluten challenge for 2 weeks and then retest my blood work. I am concerned about going back to eating gluten just as I am finally feeling better. I have heard conflicting stories about the Gluten Challenge. Any thoughts out there?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I'm confused about the point of the challenge. If you bloodwork started negative it's not going to magically go positive. It's OK to tell your doctor that gluten makes you sick, you're just starting to feel better, you don't want to be sick again, and you're comfortable with a "maybe" diagnosis. They can rule out other problems without you eating gluten.

RoseTapper Newbie

I also see no reason for a gluten challenge. There's simply no point. If you feel better without gluten, then you either have celiac or are gluten sensitive. Case closed.

sunnybabi1986 Contributor

I agree with the others...would you really want to go back to being sick again just because a doctor told you to? I wouldn't in a million years!!

ravenwoodglass Mentor

You have already had a positive biopsy and good results from the diet. I would pass on the challenge as the positive biopsy is the 'gold standard' and false negatives on blood work are all to common. Accept that you are already diagnosed.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.