Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until Challenge?

Heathers-garden

Recommended Posts

Heathers-garden Newbie
Heathers-garden
Posted

I left another post about questions I had regarding my symptoms. I still am off the gluten(being very careful) and dairy. For me it is very disheartening though and I wonder if anything is really helping. My joints actually are worse(just started my period...it does get worse with this) and I have been off gluten for about three weeks. Am I nuts for even trying this? I just want to eat a big greasy cheesy burger with a bun, but don't know if I am just being impatient. I don't get better like bam! does that mean this is a useless experiment? I guess I don't mean challenge as in getting the blood test, I mean reintroduce gluten. I don't think I would see a difference as my joints still hurt. boo.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

I left another post about questions I had regarding my symptoms. I still am off the gluten(being very careful) and dairy. For me it is very disheartening though and I wonder if anything is really helping. My joints actually are worse(just started my period...it does get worse with this) and I have been off gluten for about three weeks. Am I nuts for even trying this? I just want to eat a big greasy cheesy burger with a bun, but don't know if I am just being impatient. I don't get better like bam! does that mean this is a useless experiment? I guess I don't mean challenge as in getting the blood test, I mean reintroduce gluten. I don't think I would see a difference as my joints still hurt. boo.

What are you typically eating? My joints hurt more when I eat anything with soy. And if you are eating a lot of processed gluten-free foods they often contain soy. Cross-contamination is another problem with gluten free substitutes. If you are super sensitive you could still be reacting to trace amounts of gluten.

Skylark Collaborator
Skylark
Posted

It can take a couple months for non-GI symptoms to go away. I wouldn't declare gluten-free a flop until you've been strict for at least two months and had no improvement at all.

To be honest, I saw your other post and wasn't sure about gluten intolerance. I'm not a doctor, so I don't really have much to offer but I do hope you get things sorted out.

Heathers-garden Newbie
Heathers-garden
Posted
  • Author

I figured I needed to try it longer. Autoimmune things are frustrating because you are always seeing similarities with other conditions and never know what is going on. Do you think my symptoms in the other post don't sound like gluten intolerance. I had read that some people don't have GI issues, and I definitely have had some sort of ataxia. Thanks for your time.

Marz Enthusiast
Marz
Posted

The nightshade family is strongly associated with arthritis/joint pain. Try cutting out the family for a few weeks and see if it helps? Nightshades = potato, green and red pepper, tomato, eggplant and a few more. Have rice, sweet potato or yams instead of potato.

I also second the soy suggestion, it's nasty stuff! (my humble opinion :) )

You could also look into lectins, I've been researching this a lot the past few days, and it seems to be the culprit for a lot of problems.

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,562
    • Most Online (within 30 mins)
      7,748
    dilys.jones53
    Newest Member
    dilys.jones53
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      Roommate search

      By ckeyser88 · Posted

      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.