Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Me About Gluten Withdrawal

danaf617

Recommended Posts

danaf617 Explorer
danaf617
Posted

Is there such a thing? <_<

I have been gluten-free for 3 or 4 days. I have had a nasty, nasty headache each evening. I rarely ever get headaches. :( I've also been feeling a little nauseous.

Is this typical?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Erica1451 Newbie
Erica1451
Posted

Is there such a thing? <_<

I have been gluten-free for 3 or 4 days. I have had a nasty, nasty headache each evening. I rarely ever get headaches. :( I've also been feeling a little nauseous.

Is this typical?

Yes! I felt the same way for the first week or so when I went gluten free. You'll start feeling better soon!

lucia Enthusiast
lucia
Posted

I had some really extreme symptoms, including headaches, when I went off gluten that lasted just under a week.

danaf617 Explorer
danaf617
Posted
  • Author

Boo on those headaches! Just reminds me to be thankful that I don't get them often!

I'm so glad to hear that you dealt with it for a week or under. I was afraid of how long this would last.

I thought it was strange that I had the nausea because that hasn't been one of my symptoms these past 7 months. I hope that doesn't stick around too long. Yuck!

I don't really feel better yet. Haven't had any soft of D bm's yet this week though. 2 normal bm's over the last 2 days. :)

And yesterday morning and this morning were the first 2 days in 7 months that I didn't wake up with instant rolling gas pains. I still have the all-day dull pain/pressure/cramping still though.

adab8ca Enthusiast
adab8ca
Posted

i have been gluten free for 3 weeks and until today, every single day I felt like i was getting the worst flu ever.

hopefully i am over the worst of it, this STINKS!!! However, my research shows it can be typical to feel worse before you feel better. My dietician said it could take a year to feel better...

  • 2 weeks later...
ClevelandGuy Rookie
ClevelandGuy
Posted

i have been gluten free for 3 weeks and until today, every single day I felt like i was getting the worst flu ever.

hopefully i am over the worst of it, this STINKS!!! However, my research shows it can be typical to feel worse before you feel better. My dietician said it could take a year to feel better...

Today marks my gluten-free 3-week mark too. In all that time I had only one day where I felt a bit better, but apart from that, I still feel like crap. It does stink, but you're not alone.

IngridBeth Apprentice
IngridBeth
Posted

I got bad headaches too, for a few days during the first week of gluten free life! I had other weird symptoms too, it has been up and down. Today is an "up" day (it's week three now) and I hope there are more of these ahead. But I know I am a believer in gluten withdrawal now! Also I have had a few major intestinal attacks, not sure that is withdrawal per se but maybe just things trying to heal and get back to a "normal" that hasn't actually been there in years...? Good luck...at least you are on your way!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SueQueBlue Newbie
SueQueBlue
Posted

i have been gluten free for 3 weeks and until today, every single day I felt like i was getting the worst flu ever.

hopefully i am over the worst of it, this STINKS!!! However, my research shows it can be typical to feel worse before you feel better. My dietician said it could take a year to feel better...

Seriously-a year? I know that there isn't an "insta-fix", but dang, a whole year? I want to feel better now. I've done this gut-ache thing too long as it is, I want to get better!

missceliac2010 Apprentice
missceliac2010
Posted

I didn't get the headache, but I got the nausea. In fact, I posted a question about it on this site wondering what the heck was wrong with me! Mine went away after about 2 days.

Good luck to you!!

Is there such a thing? <_<

I have been gluten-free for 3 or 4 days. I have had a nasty, nasty headache each evening. I rarely ever get headaches. :( I've also been feeling a little nauseous.

Is this typical?

sandsurfgirl Collaborator
sandsurfgirl
Posted

I'm going on 8 months gluten free and feel better than I have in years and years, if ever.

But... I did have lots of withdrawal symptoms. I did get better a little bit all the time but it was about 5 months before I really felt good. I felt results right away, but 5 months til I was pretty much symptom free.

If you use the search function on here and read old threads about withdrawals there is a ton of info for you.

Your body will go through some wacky phases. Around 5 weeks into the diet I couldn't eat anything without getting sick. Then it passed.

Make sure you aren't getting glutened by soaps and shampoos etc. Shampoo runs into your mouth in the shower. Soap and lotions stay on your hands and get in your mouth. Made a huge difference when I made that change.

danaf617 Explorer
danaf617
Posted
  • Author

thanks again for all of the replies.

My headaches and nausea only lasted 4 or 5 days. I am around 2.5 weeks gluten-free now and have noticed my BMs calming down a bit and my energy has picked up a little. But I still have a stomach ache 24/7. If I wake up at 2am for some reason, I have terrible pains. Luckily I sleep through it most of the time.

I am going dairy free this weekend, after I grocery shop this afternoon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,806
    • Most Online (within 30 mins)
      7,748
    MoonBear
    Newest Member
    MoonBear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      New here

      By Scott Adams · Posted

      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      New here

      By KathyR37 · Posted

      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      Celiac attack confusion and anxiety

      By Scott Adams · Posted

      This article, and the comments below it, may be helpful:    
    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Oh yes I can understand the tiredness after going threw all that, must be exhausting especially on the mind I have high aniexty so I can understand that , I wish there more easier ways for people to get help , I had a MRI on my spine some years ago without anything it was really quick and no prep , I understand the need for  them to see better with the bowel ,but you think they would use something a little less traumatic  for ibd sufferers on the bowels by now ,I hope your feeling better today 🙏
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      I wonder if tingling burning feet are part of it.. I'm not sure if it's the med reaction that people with gluten intolerance get or the food we ate  It's frustrating because a person who did not want to admit to himself I had this condition wanted me to eat this chicken sandwich and now I'm stuck with a variety of symptoms plus now I'm hungry on top of it..  I'm new to this so I forget that "one bite" of the wrong thing can hurt us.😔. Do we stop eating if someone exposed us to gluten ??  My stomach is rumbling but my joints hurt ...  It's weird because I can feel the anxiety coming on.  I get joint problems ,  I don't know if anyone ever got hot flashes?? I suppose if it affects people head to toes you can get that too.   It's weird...hard to decipher what is what.   Also how long do I have to deal with this attack??  Makes me feel like not getting up out of bed.  I get too many symptoms which  horrible.  Thank you for your response..  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.