Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gastritis?

ddeatley

Recommended Posts

ddeatley Newbie
ddeatley
Posted

Well, like many others I am new to this board and have many questions, but to make the story short, I have suffered for 35+years with chronic abdominal pain, loose stools, gas ect. I have had many tests and saw many doctors over the years only to be told that I had chronic gastritis. Three years ago I had both an upper GI endoscopy and a colonoscopy to learn once again that I had chronic gastritis. I was prescibed prevacid twice per day that helped some, but not always. Two months ago my older brother complained about losing weight and diarhea. He went to the doctor and discovered he had Celiac Disease. He called me and I wondered if this is what caused my problems all these years.

I decided to try a gluten-free diet and found that it helped relieve my symptoms. I have been gluten-free for about 4 weeks. I went to my GI doctor and told him about my brother , so he did the blood work and scheduled me for an endoscopy to biopsy the small intestine. Of course the bloodwork came back negative, which I expected since I have been gluten-free for 4 weeks, but the endoscopy yesterday he said I still showed esophagitis/gastritis. It will be 7 - 10 days until the pathology report comes back. We decided not to use any drugs since my symptoms have subsided, but my question is: Can celiac disease cause chronic gastritis? One would think that since it can cause quite a bit of irritation to the small bowel, that it could also do the same to the stomach, especially if you are sensitive to the gluten proteins.

My GI specialist took about 10 biopsy from 5 areas in my stomach and small bowel to ensure that he got adequate amount of areas to make a good diagnosis. I am courious as to how many of you out there with celiac disease have been told that you had Gastritis prior to your diagnosis of celiac disease?

I surely hope that I get a definative diagnosis so I can get some resolution to my problems. I only fear of a negative result only to wonder what is wrong with me.

Thanks - Dennis

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rmmadden Contributor
rmmadden
Posted

I have gastritis, acid reflux and celiac disease. I think they all play into or off one another. I don't know which started first but regardless it's real fun trying to decide what to do when you don't know which disorder is causing the symptoms, etc.

Best of luck!

Cleveland Bob B)

ddeatley Newbie
ddeatley
Posted
  • Author

Thanks Cleveland Bob. You are absolutely right! I have read some medical sites that there may be a link between celiac disease and some forms of gastritis. I find myself hoping for a positive celiac disease diagnosis so I can get some resolution, but I am afraid that it might be too easy. It seems funny that the medical community can tell you that your gut is inflammed, but then stop there as the diagnosis. I want to know what is causing it to be inflamed so I can get rid of it.

So far the gluten-free diet has made me feel better that I ever have, but it may not be the whole story yet.

Thanks again.

Dennis

steve-o Apprentice
steve-o
Posted

I had my endospcopy a couple weeks ago. I requested a copy of the pathology report, and it shows that I have "chronic non-specific gastritis". I guess this explains all the heartburn I get when I have gluten in my diet?

I'm glad to hear your doctor will be taking several biopsies. My genius doctor only took one biopsy sample from my small intestine...so now I'm stuck wondering if my "negative" diagnosis is even remotely accurate.

I had to nag them into letting me take a blood test, which they didn't do before the biopsy for some reason. I'm still waiting for the blood test results.

My main symptoms (heartburn, nausea, loose stools) go away when I stop eating gluten, so hopefully this will clear up the "chronic gastritis".

ddeatley Newbie
ddeatley
Posted
  • Author

newbie,

Yours sounds like a classic case of celiac disease to me. I hope your blood test comes back with the results you want. I would think that if it wasn't celiac disease you wouldn't get the relief being gluten-free that you are. From what I understand it celiac disease can be spotty in the small intestine so by taking one or two biopies you could miss it. I just wished that they would go one step further to find the cause of our irritation instead of stopping there. Good luck with your tests.

Dennis

ddeatley Newbie
ddeatley
Posted
  • Author

Sorry Steve-o,

I must be still under the effects of the drugs, LOL. I am afraid I didn't get your name correct.

Dennis

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hummer01
      - Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Diagnosis confusion

      Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha. Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and...
    2. Scott Adams
      - Scott Adams replied to CJF's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Gluten free wheat flour????

      Thanks for sharing that. For what it's worth, a majority of celiacs can eat such products without villi damage--which has been documented in many studies that you can read here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/ But super sensitive...
    3. knitty kitty
      - knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      21

      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      @Alibu, It's the thiamine (in the forms TTFD or Benfotiamine) that can get into the brain easily and improve migraines. The magnesium Threonate won't help by itself. Taking the thiamine regularly will keep them away. Sounds to me like your doctor is looking for the Marsh 3C or 4 Stage (total villus damage) to make his diagnosis. Those studies...
    4. trents
      - trents replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Diagnosis confusion

      A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe...
    5. Hummer01
      - Hummer01 replied to Hummer01's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Diagnosis confusion

      Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,920
    • Most Online (within 30 mins)
      7,748
    djmanlon
    Newest Member
    djmanlon
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Oh yes, I figured 50g of bread would contain way less than that in gluten. I just meant to say that I tried to make my 2 daily slices count instead of 2 tiny Wonder bread slices haha.  Thanks for the insight trents, I appreciate someone validating that what I'm going through isn't all in my head or something! This process has been so frustrating and confusing.  I guess the only thing about not getting the "official" diagnosis is not knowing how strict to be with CC (in my early 20s trying to think about the long term effects) but I hope starting the diet will bring some relief either way. Thanks again. 
    • Scott Adams
      Gluten free wheat flour????

      By Scott Adams · Posted

      Thanks for sharing that. For what it's worth, a majority of celiacs can eat such products without villi damage--which has been documented in many studies that you can read here: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/ But super sensitive celiacs should definitely avoid it.
    • knitty kitty
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By knitty kitty · Posted

      @Alibu, It's the thiamine (in the forms TTFD or Benfotiamine) that can get into the brain easily and improve migraines.  The magnesium Threonate won't help by itself.  Taking  the thiamine regularly will keep them away. Sounds to me like your doctor is looking for the Marsh 3C or 4 Stage (total villus damage) to make his diagnosis.  Those studies I sent show that damage at Marsh 3C or 4 will develop over a longer period of time. Newer diagnosis criteria would diagnose you with Celiac with your HLA DQ 2.5 genes and high antibody levels alone.  You would benefit by following a gluten free diet. I have type two diabetes.  I used to wake up with migraines if I ate high carbohydrate foods before bed.  My blood glucose level stayed too high throughout the night.  I'd wake dehydrated, foggy, and headachy/migraine developing the next morning.  I was low in Thiamine.  Thiamine is needed to make insulin.  Diabetics have a greater metabolic demand for thiamine because they lose more thiamine in their urine.  98% of diabetics are thiamine deficient.  Diabetes is another autoimmune disease that can accompany celiac disease.  Have you had an A1C test?    Eating a diet heavy in carbohydrates uses up available thiamine quickly.  If you don't have sufficient thiamine, the body stores carbohydrates as fat.  The SIBO bacteria flourish with a high carbohydrate diet.  MCAS develops as the body fights the SIBO.   Thiamine improves MCAS.  Mast cells make histamine and release it as part of the inflammation response.  Mast cells can become  hypersensitive and release histamine at the least provocation in Thiamine insufficiency.  Mast cells need Thiamine to help hold their wad.   MCAS often occurs with and is exasperated by SIBO.  I found the Autoimmune Protocol Diet (Dr. Sarah Ballantyne) helps with both.  This Paleo diet starves out the SIBO bacteria and calms the MCAS.  If you change your diet, you change your intestinal flora.  Following the AIP paleo diet and thiamine made a noticeable difference in my health fairly quickly.   Thiamine works with the other B vitamins to make enzymes that keep the body functioning well.  A B Complex, Vitamin C, and extra thiamine like Benfotiamine will help immensely.   I hope this helps.  I had to decide that my Celiac genes were switched on and causing health problems even though I did not have the high antibody levels and visible damage in my intestines needed to make a textbook diagnosis.  You know your body best.  I knew Celiac was my problem.  I made the necessary changes and feel much better for it.  
    • trents
      Diagnosis confusion

      By trents · Posted

      A slice of bread weighing 50g isn't the same as 50g of gluten. Bread dough contains other components besides gluten. At any rate, at the end of the day, the antidote for celiac disease and for NCGS is the same, life-long avoidance of gluten. My hunch is that you do have celiac disease but are in the early stages of it. Some experts in the field believe that NCGS can be a precursor to celiac disease so, if that is true, you may be in a transition phase. In view of how this has unfolded for you, I would suggest going whole hog into a gluten free diet commitment and see what impact it has on your symptoms. This may be of help in getting a a jump start in eating gluten free:   
    • Hummer01
      Diagnosis confusion

      By Hummer01 · Posted

      Hi trents, thanks for the response. I started the challenge the 2nd week of April with 2 slices of sandwich bread per day (tried to get a larger loaf size, each slice weighed 50g) and continued that through April/May/June up until my scope this past week. On weekends I had extra gluten foods like noodles, cookies, etc. But couldn't tolerate much more than the 2 slices during the workweek. I had hoped that doing this for ~9 weeks would be enough, since I only did 2 weeks for the first scope earlier this year.  Yes, the doctor who did the actual scope and told me about what she saw immediately after is the same doctor who reviewed the pathology report. 
×
×
  • Create New...