Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ever Thought About Airborne Gluten?


irish daveyboy

Recommended Posts

irish daveyboy Community Regular

I started looking into the possibility of this for a friend who despite sticking rigidly to a GFD always seemed to have problems CFS and Brain Fog.

I first found this reference to the subject.

When I was speaking at the North Conway Celiac Disease Support Group this past June, a member of the group posed a question that stumped me:

Q: What is the risk of airborne gluten to people with celiac disease?

A: At first, my answer was "Hmm...I'm not sure.

Open Original Shared Link

In the Article this phrase caught my attention.

This seems to be another aspect of celiac disease where little information is known, and we each need to make a personal decision - one that feels most comfortable for us.

It does appear that airborne gluten does pose some risk - whether it's the flour dust or volatile organics,

So on a quick search I found this.

Open Original Shared Link

The most intriguing find was this blog post by Lorie M Abbott.

Open Original Shared Link

It seems there's a lot still to be learned.

Best Regards,

David


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

I suspected. I was going to apply for a job at a new gourmet pretzel shop here in town a few months ago and it occurred to me that perhaps having the flours, nuts etc would be a problem.

Skylark Collaborator

If the volatile organics are an issue, you would react to a LOT more than wheat. The compounds in that PDF you linked are in all sorts of plants. They are not going to be unique to wheat.

The story of the celiac who couldn't be in a pizza parlor kitchen is very interesting.

irish daveyboy Community Regular

If the volatile organics are an issue, you would react to a LOT more than wheat. The compounds in that PDF you linked are in all sorts of plants. They are not going to be unique to wheat.

The story of the celiac who couldn't be in a pizza parlor kitchen is very interesting.

It probably was a bad example, and was only there to show that there was a possibility of a reaction to VOC's from grains.

Maybe take a look at this link and scroll down to Hidden Allergies and Environmental Sensitivities.

It does make you wonder.

Open Original Shared Link

Best Regards,

David

i-geek Rookie

I wondered about this. I got glutened last weekend. I was at a different grocery store than usual. The employees were definitely baking there, and the bakery was right next to produce, where I did most of my shopping. I walked out with my clothes and hair smelling like a bakery. Went home, ate leftovers from the previous night's dinner (all prepped at home from fresh whole ingredients), slapped on some sunscreen, and went out to a park with my husband. About an hour later I started getting an awful headache, then brain fog/fatigue, stomach stuff, etc. Symptoms for several days. I thought maybe the sunscreen, but I looked online and the particular Coppertone product I used is safe. I've got no other possibilities besides the grocery store. Scary, scary stuff. I've never gotten sick at a grocery store, but then I've never been in my usual stores when they've been baking since going gluten-free.

Skylark Collaborator

It probably was a bad example, and was only there to show that there was a possibility of a reaction to VOC's from grains.

Maybe take a look at this link and scroll down to Hidden Allergies and Environmental Sensitivities.

It does make you wonder.

Open Original Shared Link

Best Regards,

David

I hate to be such a relentless skeptic, but that one is just someone trying to sell something. Notice it's not referenced at all and the list of "type IV" symptoms is very generic. Got an "overall feeling of ill health"? Order our "Empowerment System" only $139.95/month. :o

May I suggest you steer clear of commercial sites for your information?

  • 3 weeks later...
rdunbar Explorer

I was working as a caterer (for a big company) @ 7 months ago, and was unfortunatly ignorant of the risks of cross- contamination at the time, but thought I was fine as long as I could choose to only prepare item that didn't contain gluten, salads, meat ect... But several times I had the experience of inhaling glluten when someone was slicing bread for a big party, and it hit me like a train, no joke. In under a minute I would lose

my balance, get a screaming headache that felt like a vise tightening in my skull, in retrospect maybe a migraine? I've never had migraines my whole life, but it was like a normal headache times 10, also get diarrea , and super ugly moodswings, yelling at people and getting really angry.

I realized I was commiting suicide by continueing to expose myself, and quit,

so I feel very certain that inhaling gluten is dangerous for celiacs, and the reaction seems to happen faster and be more extreme than ingesting it in my experience


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
Hyacinth Newbie

I think that airborne gluten is a definite danger to some individuals. My dad for instance can and does get sick from being in the kitchen while my mom is kicking up a dust storm of baking flour. I (luckily) don't seem to have a reaction from that. In the same vein of discussion though, I cannot be in the house while peanut butter cookies are baking. My nose and throat will itch and swell up like crazy. I think that for those of us who are gluten intolerant it's probably good to just draw the skull and cross bones on all things glutenous and treat it with the same respect as we would that blue stuff under the sink. After all, better safe then sorry.

Hyacinth

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,934
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.