Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Grains Not So Gluten Free


T.H.

Recommended Posts

T.H. Community Regular

I know some really sensitive celiacs here have mentioned finding wheat in some of their gluten-free grains. Now a study released in June is bearing out their worries, big time:

Open Original Shared Link

The pertinent information, I thought, was this, said re: gluten testing of a number of flours and grains:

"...The worst offenders included soy flour, which had 2,925 parts per million of gluten, sorghum flour, which was contaminated with 234 parts per million of gluten, and two different brands of millet flour, which contained up to 327 parts per million of gluten. Millet whole grain, buckwheat flour and white rice flour also contained detectable levels of gluten..."

No brand names were listed in the study itself, and only about 22 different flours/grains were tested, overall. But argh, how frustrating! Makes me worry all over again.

Time to finally buy those home gluten test kits. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

I think this was posted up a while ago, but I have been wondering if my problems with sorghum flour are not the sorghum but rather contamination. Hard to know, and frustrating as I bought rather a lot of it. It also explains why some people react to processed gluten-free foods...

I have started washing whole grains a lot more carefully (millet, quinoa, rice, beans) but you can't wash flour. Sigh. I think it's probably a sign that I should just give up pancakes and cookies for a while.

TaniaR Newbie

I am one of those people who are VERY sensitive to gluten. My sisters and I can only test to 5 parts per million or less of gluten in food and finding flour is very very hard. Depending on what you want to make, Kinnikinnick seems to make me the least sick- with flours I've only used their pancake and cake mix ones but they do make me the least sick so if your looking for something I would recommend that brand and they're also pretty tasty :)

dilettantesteph Collaborator

You can wash, dry, and grind your own flour. It isn't that hard. I started with an inexpensive coffee grinder and then moved to a more expensive flour mill.

RiceGuy Collaborator

I have found that making my own buckwheat flour in a coffee grinder works fairly well, compared to most grains. The only brand of buckwheat flour which hasn't glutened me is from Open Original Shared Link. They have a facility dedicated to milling buckwheat, which they grow themselves. So no CC from transporting the grain.

All other flours I buy from Open Original Shared Link, and so far so good. Last I tried, I can't use their gluten-free buckwheat though.

I've gotten glutened by every bag of flour I've tried from Arrowhead Mills. Took a while to track down what was getting me too. It's really disappointing when you cannot trust a gluten-free claim on a package.

T.H. Community Regular

Oh, do you have a good company that you get whole grains from? I can't use flour mixtures usually because I have problems with some non-gluten grains as well, but if you have some whole grains that were very safe for you, I would love to hear. Thank you for the info!

T.H. Community Regular

What brands for whole grains have you found that have been good for you, in the gluten free sense? Have you had any trouble with the whole grains?

You can wash, dry, and grind your own flour. It isn't that hard. I started with an inexpensive coffee grinder and then moved to a more expensive flour mill.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



T.H. Community Regular

Oh thank you so much for the detailed information! I have been wondering about Arrowhead Mills flours' safety with my kids a couple times. I will definitely be checking out these farms. Very much appreciated.

Do you grind all your own flours? If you do, would you have any advice on what types of mills/coffee grinders work for what grains? I could use any advice you could give. :)

I have found that making my own buckwheat flour in a coffee grinder works fairly well, compared to most grains. The only brand of buckwheat flour which hasn't glutened me is from Open Original Shared Link. They have a facility dedicated to milling buckwheat, which they grow themselves. So no CC from transporting the grain.

All other flours I buy from Open Original Shared Link, and so far so good. Last I tried, I can't use their gluten-free buckwheat though.

I've gotten glutened by every bag of flour I've tried from Arrowhead Mills. Took a while to track down what was getting me too. It's really disappointing when you cannot trust a gluten-free claim on a package.

BethM55 Enthusiast

Oh thank you so much for the detailed information! I have been wondering about Arrowhead Mills flours' safety with my kids a couple times. I will definitely be checking out these farms. Very much appreciated.

Do you grind all your own flours? If you do, would you have any advice on what types of mills/coffee grinders work for what grains? I could use any advice you could give. :)

I use my VitaMix to grind grains into flour. Easy, quick, efficient, and easy to clean. vitamix.com

dilettantesteph Collaborator

I'm afraid that even the best sources of whole grains that I have found sometimes have gluten containing grains in them. I look through them and remove anything suspicious before my washing and drying procedure.

That being said, I suggest Twin Valley Mills for sorghum. They clean their harvester for 2 days before using it to harvest sorghum. I would still sort, though.

  • 1 year later...
tgp2312 Newbie

I have found that making my own buckwheat flour in a coffee grinder works fairly well, compared to most grains. The only brand of buckwheat flour which hasn't glutened me is from Open Original Shared Link. They have a facility dedicated to milling buckwheat, which they grow themselves. So no CC from transporting the grain.

All other flours I buy from Open Original Shared Link, and so far so good. Last I tried, I can't use their gluten-free buckwheat though.

I've gotten glutened by every bag of flour I've tried from Arrowhead Mills. Took a while to track down what was getting me too. It's really disappointing when you cannot trust a gluten-free claim on a package.

I am glad to have this confirmed at last; Arrowhead Mills buckwheat, which they claim is gluten free, made me the sickest I have ever been and the product tested positive for gluten on an EZGluten home test. Complaints to the company have so far gone unanswered. I have even complained about this company to the FDA.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Celiac disease symptoms

    2. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Celiac disease symptoms

    3. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,059
    • Most Online (within 30 mins)
      7,748

    Cholladua
    Newest Member
    Cholladua
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
    • Churro
      No I haven't had one since 2021. I rarely have more than 1 per week. 
    • trents
      Sorry, I see that now as I reread your original post. You say you have hemorrhoids "only once a week" now. When I develop hemorrhoids, which is once every few years now, it generally takes 3-4 days for healing to take place. So, it doesn't seem like you could have much relief time between episodes if you have them weekly. Have you had a lower GI scoping done recently?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.