Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Home Testing

Bettie

Recommended Posts

Bettie Newbie
Bettie
Posted

Hello everyone, I just woundered what everyone else thinks of the home testing kits for celiac. I have just done one and it came out negative. I am still going to doctors for my blood test. If I have an intolerance to gluton rather than Celiac disease would that show negative on a test for Celiac?

All feed back is welcome

Best wishes

Kerry x

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

What home test did you do?

Bettie Newbie
Bettie
Posted
  • Author

What home test did you do?

The home test is called Biocard. It is a blood test, there are others out there. I got mine from ebay.

tarnalberry Community Regular
tarnalberry
Posted

All that thing tests for is TTg IgA. If you're IgA deficient, you'll get a negative whether you have celiac disease or not. If you think you have it, and you're eating gluten, I'd encourage you to get a full celiac panel, including the IgG antibodies and total IgA.

missceliac2010 Apprentice
missceliac2010
Posted

I have no idea which home tests/doctor tests are better. But I do know this.... I went through an upper-GI with biopsies AND doctor blood work while hospitalized for unexplained horrific belly pain/vomiting/diarrhea. While in the hospital, they had me "NPO" (no food/drink by mouth). Turns out that because when they took the biopsies and blood, since I had already been on an inadvertent gluten-free diet...my results were both negative! (Or at least I have been told that could be the culprit.) My doctor offered to have me go back on gluten and repeat the test in a month after intentionally making myself sick to try and get a positive test...I said no thanks!

Regardless, the GI doctor who did my scope told me to go home on a gluten-free diet to try it while I waiting for test results. After 3 days it was like a miracle! When the lab results came back negative for Celiac, with the help of this board and family, I said to heck with those stupid tests! I know my body, and I know I have Celiac!

IMHO, all of the tests are so wrong so much of the time...it's not worth the bother. So many people on this board repeat the same story..."test results say negative, but I feel better on a gluten-free diet...etc!) It's so much easier to just not eat gluten! Unless you need a diagnosis code or something for certain prescriptions or a GI doctor referrall, I would say skip it. All those tests did was bring me down and upset me.

Good luck! Let us know what you decided and your results! I'm curious!

Bettie Newbie
Bettie
Posted
  • Author

Thankyou for your reply's,

:D ( he likes to look after me) And I went 28 hours without gluton, my tummy started huting really bad for two nights. I am back on gluton now as I realized that I need to be on it for my tests.

I went to doctors about a week a go as my mum noticed that my " beer belly " went down alot when I stoped eating bread. She has a friend with celiac. The doctor agread after I told him some other symptoms. I have been suffering with deppression and panic attacks. And after reading how other people feel when they stoped eating gluton I am starting to hope that celiac is what I have. I just want to feel normal and happy again. But if I do have negative results again then I will go gluton free any way. My boyfriend when he found out what maybe wrong went shopping and bought me some food that have no gluton in

Thankyou again for your input it has helped me to put some questions together for the doctor, see what other tests are available. I only want it on paper so I can get the prescriptions.

Skylark Collaborator
Skylark
Posted

Biocard tests are very good if you are not IgA deficient, but they don't test for gluten intolerance.

There are no prescriptions for celiac disease, so I'm not sure what you expect from the diagnosis. The treatment is a gluten-free diet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bettie Newbie
Bettie
Posted
  • Author

Biocard tests are very good if you are not IgA deficient, but they don't test for gluten intolerance.

There are no prescriptions for celiac disease, so I'm not sure what you expect from the diagnosis. The treatment is a gluten-free diet.

The prescription is to get bread and pasta. It will mean I get these with out paying for them. As we know it is expensive. Im from England so I guess things are a little different over here.

Thanks for your help. I will just stick with the doctors. :D

Skylark Collaborator
Skylark
Posted

The prescription is to get bread and pasta. It will mean I get these with out paying for them. As we know it is expensive. Im from England so I guess things are a little different over here.

Thanks for your help. I will just stick with the doctors. :D

Sorry, I assumed you were on the US side of the pond. We don't get any help over here with gluten-free food so there isn't really a point to getting a diagnosis.

Yes, stick to doctors and good luck with it.

Bettie Newbie
Bettie
Posted
  • Author

Sorry, I assumed you were on the US side of the pond. We don't get any help over here with gluten-free food so there isn't really a point to getting a diagnosis.

Yes, stick to doctors and good luck with it.

Thankyou for your support, this site has been so helpful, I wish you well

Kerry x

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon. I did no't have any bread It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right...
    2. dixonpete
      0

      Inoculation and video development

    3. Juliane
      - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    4. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    5. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748
    JenKnight
    Newest Member
    JenKnight
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Stomach burning and neuropathy

      By Juliane · Posted

      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.