Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another One Bites The Dust...vertigo?

vbecton

By vbecton
in Coping with Celiac Disease

Recommended Posts

vbecton Explorer
vbecton
Posted

Adding to the pile of mounting issues since going gluten-free, I'm recovering from a bought of vertigo. Holly mother of spinning craziness! I have never had vertigo issues before until last night. I was sound asleep and lightly woke up to flip over and BAM, the room started spinning like a drunk tequila binge in college. I'm not trying to make light of this situation, but I'm pretty ticked at the issues that are mounting since going gluten-free. My energy, the exhaustion, funky blood tests, the reactions to foods, etc...

Anyone else suffer vertigo for over 15 straight hours? Do I need to be concerned? It is slowly fading, but I think it's just lurking and thinking about a comeback. Is this just gluten-free healing? I don't have any sinus issues, cough, or anything stuffy in my head that I could connect it to. Just wondering.

P.S. I have my capsule endoscopy on Tuesday. I've never been so excited about 10,000 photos of my guts being taken as I am for this. I hope I get copies :P

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


conniebky Collaborator
conniebky
Posted

Adding to the pile of mounting issues since going gluten-free, I'm recovering from a bought of vertigo. Holly mother of spinning craziness! I have never had vertigo issues before until last night. I was sound asleep and lightly woke up to flip over and BAM, the room started spinning like a drunk tequila binge in college. I'm not trying to make light of this situation, but I'm pretty ticked at the issues that are mounting since going gluten-free. My energy, the exhaustion, funky blood tests, the reactions to foods, etc...

Anyone else suffer vertigo for over 15 straight hours? Do I need to be concerned? It is slowly fading, but I think it's just lurking and thinking about a comeback. Is this just gluten-free healing? I don't have any sinus issues, cough, or anything stuffy in my head that I could connect it to. Just wondering.

P.S. I have my capsule endoscopy on Tuesday. I've never been so excited about 10,000 photos of my guts being taken as I am for this. I hope I get copies :P

Vertigo is the reason I started searching for answers.

kareng Grand Master
kareng
Posted

You could have an inner ear infection. They don't always hurt. I had a friend that kept wobbling on her High heels. We kidded her about it but she said she was dizzy and everything was off. Had a horrible ear infection that took 6 weeks of antibiotics to get rid of .

vbecton Explorer
vbecton
Posted
  • Author

You could have an inner ear infection. They don't always hurt. I had a friend that kept wobbling on her High heels. We kidded her about it but she said she was dizzy and everything was off. Had a horrible ear infection that took 6 weeks of antibiotics to get rid of .

I guess I'll let the doc take a look. I've never had an ear infection in my entire life, but lately, stranger things have happened :)

gf-soph Apprentice
gf-soph
Posted

I second getting along to the dr, a friend of mine had a quick onset virus which basically hit her with vertigo for a couple of days, then wore off. She couldn't really walk for the first day or two, it was pretty dramatic, and she needed treatment to get better as it was affecting her inner ear.

Googles Community Regular
Googles
Posted

I had vertigo as the side effect of a virus once. The doctor gave me some meds that took care of it. The doctor said the virus had been going around and a lot of people had been coming in dizzy (on campus).

kwylee Apprentice
kwylee
Posted

When I first went gluten/casein free, the woozy, weird, the-earth-is-moving-but-I'm-not feeling was my cue that I had ingested something reactive. Although the dizzy feeling made me nervous to eat anything new, it also proved to be an excellent quick gauge. I never had to wait hours or longer to know that I shouldn't eat something again; all I had to do was take a couple bites and wait 5 minutes. The dizziness would last a few hours with decreasing intensity.

As my gut is healing, the dizziness has become less and less. My intestines and my brain are absolutely in sync.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Piccolo Apprentice
Piccolo
Posted

Yes, I have had the dizzy reaction also. All of mine were food reactions. The first one was several hours after I ate. I woke up with the room spinning. It lasted for 6 hours before I was able to get up and walk around. I also have to keep my eyes open during this time. I now avoid the foods that set it off. I am so afraid of it happening again.

Susan

heatherjane Contributor
heatherjane
Posted

I've had vertigo and other odd sensations off and on for the past 18 months... all which started after going gluten-free, and I'm extremely careful about my diet and possible cc sources. None of the doctors I've seen can explain why it's happening. The EMT says my ears are fine, and I have no vitamin deficiencies. I'm assuming it's stress.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    2. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    4. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
    5. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.