Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tips On Taking B Vitamins (B12, B6 Etc.)


amaterasu2915

Recommended Posts

amaterasu2915 Newbie

I am currently trying to figure whether I have celiac. What I do have is substantial bloating after eating; tingling and numbness in the extremeties; aches and pains; and worst of all, an inability to concentrate, unrestful sleep and tremendous fatigue.

Based on some of the postings on this site, I have taken some B12 and B complex sublingual vitamins over the past 2 weeks, and they have helped a great deal. They have taken me from having so little energy that I don't want to do anything, even watch a casual, non-thinking movie; to a level of energy where I can do a bit of work, think substantially more clearly, and have at least some of my normal interests. They definitely reduce the tingling/numbness sensation and the aches and pains, although not entirely.

I did have the following questions about B-12, B-6 and other vitamins. I was hoping people here with similar experiences but a longer history of taking the vitamins would have some insights to share:

1. My fatigue, although better, is still fairly bad, so I am tempted to take even more B-12 and B-6 to improve my condition further. But I am worried about the dosages -- I currently take 2 Trader Joe's sublingual B complex tablets (each one B6 2mg, B12 1mg) and 8 Trade Joe's sublingual B-12 tablets (each one B12 1 mg). Is that too much?

2. When is it best to take them? I typically take them all one hour before bed, but I'd be curious to hear if other people had positive experiences with other regimens.

3. What does it mean that I get a significant energy boost out of B12/B6? Does that say anything about whether I have celiac or not? Or some other ailment? I am currently glutening (I wrote another post about this) in preparation for a blood test soon.

4. Are there are other vitamins or supplements that you have found really helpful in reducing fatigue and brain fog?

5. What brands have you found to be particularly effective?

6. Are there other minerals/nutrients that are very effective for people? Based again on comments I read in the review boards, I take Dr. Ohira's probiotics and a multivitamin, although I do not feel any great impact from any of these. Also, the only sublinguals I've been able to find are B complex and B12, so I wonder whether simple oral supplements of any kind would get through my apparent digestive problems. Perhaps people out there have found that oral supplements of say, iron or magnesium or d, nevertheless are helpful?

Thank you for your help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gardening Apprentice

We are seeing a nutritionist for my daughter, who weighs 35 pounds (relates to dosage). She was found deficient in many B vitamins, and B12 was the lowest. She is getting a total of 635 mcg, so, less than 1 mg, per day. The nutritionist is definately not conservative with the vitamins, so it sounds like you are really getting a lot of B12.

I don't think there is a toxic level of B12 - you just pee out the extra - but I'd hate for someone to waste money and energy on taking more than they need.

She recommends spreading out the vitamins, so half in the morning and half in the evening, to keep the levels consistant.

Also, she says the methyl form of B12 is the active, bioavailable form, and any other type is a waste.

She says it usually takes 3 weeks for vitamins to help - how long have you been taking your multi?

I'm sorry I can't help you with brands - we use Thorne for our multi, and I think Kirkman Labs are supposed to be good, too.

amaterasu2915 Newbie

We are seeing a nutritionist for my daughter, who weighs 35 pounds (relates to dosage). She was found deficient in many B vitamins, and B12 was the lowest. She is getting a total of 635 mcg, so, less than 1 mg, per day. The nutritionist is definately not conservative with the vitamins, so it sounds like you are really getting a lot of B12.

I don't think there is a toxic level of B12 - you just pee out the extra - but I'd hate for someone to waste money and energy on taking more than they need.

She recommends spreading out the vitamins, so half in the morning and half in the evening, to keep the levels consistant.

Also, she says the methyl form of B12 is the active, bioavailable form, and any other type is a waste.

She says it usually takes 3 weeks for vitamins to help - how long have you been taking your multi?

I'm sorry I can't help you with brands - we use Thorne for our multi, and I think Kirkman Labs are supposed to be good, too.

Thank you for the reply. I may try spreading out the vitamins. I've been taking multivitamins for a long time (months at a time), so that's why I get the sense that a standard multivitamin does not do the trick.

It's strange, though -- but I tried taking just 2 B complex pills, and felt that the positive effects were quite a bit less. Which is why I feel that I need more pills.

I've been taking B vitamins for maybe just 2-3 weeks, so it may be I need more to study their effects on me. Also, I admittedly have gaps where I didn't take B vitamins, as I was experimenting.

Skylark Collaborator

You might want to look into methylfolate (metafolin) as well as methyl-B12. Solgar seems to have the license to sell it over the counter now. Some people do not convert dietary folate to methylfolate and end up B6 deficient. My understanding is that excess B12 is not a problem, but too much folic acid (B6) is a problem. Supposedly methylfolate is safer. I have always heard to take vitamins with meals for the best absorption.

If you're really picky about vitamins, you want the Albion chelates. Metagenics, Solgar, and Bluebonnet are three of the Albion Gold Medallion companies. Metagenics stuff is supposed to be really good, if you can find someone who resells them.

fromscratchmom Newbie

From my own experience and from what I've heard from other experienced moms and supplement takers, I'd advise that another possibly help would be omega 3 supplements or other fat containing supplements. Fats are very important to our bodies and the "intuitive" leap that our whole society has made to believing that eating fat must automatically lead to gaining fat in our bodies is simply fallacious. As with many things eating too much might be bad where eating the right amount might be necessary for good health. And don't even get me started on the harm done by the likes of the Center for Science in the Public interest in successfully coercing our whole society into replacing animal fats with trans fats. Your brain, your entire neurological system and your reproductive system are particularly worth mentioning as being in need of fat in the diet.

The half way recant that the aforementioned do-gooders have done in now wanting to coerce society to abandon the damaging trans fats but never go back to animal fats would seem to have at least a little merit. While perhaps they ought to pay more heed to certain studies on animal fats, the "healthy fats" that they recommend do appear to have a great deal of health benefits. Flax, fish oil, and black currant oil are three that I have had good experiences with and heard good things of from others.

I believe Kirkman labs has good quality supplements that fit the bill and there may be great ones from other sources as well.

I'm currently trying a new supplement that is not bad cost-wise through Costco called Mega Red. It gets its omega 3s from krill in some of the purest waters on the planet, those near the Antartic. I have high hopes for their claims. The product contains "powerful antioxidants" in addition to EPA and DHA omega 3s. They are certainly correct that there is no fishy after-taste like I get from most brands of fish oil. The only caveat I would mention (and I am hoping the company corrects eventually), is that it uses an artificial flavoring called vanillin. This is not a problem as far as going gluten free, it is a separate concern of mine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.