Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here


justwantrelief

Recommended Posts

justwantrelief Newbie

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

Anxiety was so severe with no relief from any medication. After going gluten free and being careful not to get cross contaminated, the anxiety went away very quickly.

It sounds like you definitely can be gluten intolerant. No doctor even considered that for me until after I suffered from diarrhea for quite some time. It was all in my head up until that point. I lost so much weight and one doctor yelled at me that I wasn't eating enough. The more I ate, the worse the D got.

Definitely get tested for gluten intolerance and Celiac. Don't give up eating wheat, barley or rye until after the testing. Once all testing is done and even before you get the results, eliminat all glulten. Besides wheat, barley and rye, don't eat oats as they are often cross contaminated (cc). You will need to get a new can opener, cutting board, non-stick cookware, etc. as they are easily cc. Keep reading posts to this forum about cc issues for more tips on how to avoid it. Be sure you check all shampoos, make up, hand soap, etc. as often they have wheat or oats in them.

Good luck!

justwantrelief Newbie

Thanks for your reply. Since I have been having awful withdrawl I am not sure I want to go back to gluten just for testing. From what I read the diagnosis is really hard even with test results. If I feel better in a few weeks I think I will just chalk it up to gluten, huh? I also read that a gluten free diet is good for everyone, even if they don't need it? I am looking for a few good books about celiac/gluten intolerance...any ideas?

Thanks!

Hyacinth Newbie

HI!

I'm new here too. I also have taken myself off gluten, and have been off it for one week now. My dad was diagnosed with Celiac Disease about two years ago. I have suffered from chronic headaches and also migraines for many years. Suddenly about a week ago my boyfriend came up with the idea to take me off gluten and see if that helped. Holy Cow! what a wonderful improvement! Instead of having my pain range from 4 to 10 every day, this week I have an average pain rating of 3! I'm amazed.

I too have depression. I've been on medication for that for a couple years. I'm going to wait for a couple months, adjust myself to being gluten free, and then talk to a doctor about maybe trying to go down in dosage for depression and see what happens.

As to the gluten cravings, don't even get me started! I'm craving things with gluten in them that I haven't eaten in years, just because I can't have them! I would love to know how people can deal with that too!

Hyacinth

BRUMI1968 Collaborator

My CURE of anxiety attacks was so profound upon gluten free that I tell all my doctors that if they have any patients at all with generalized anxiety disorder, they should give them the celiac test. I have had zero attacks after about 2 weeks gluten free...well, I had two, but both were after being glutened.

If you have noticed it helped so far, go with it. It profoundly changed my life to get rid of those anxiety attacks. Good luck!

Cheryl-C Enthusiast

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

I would say that yes, there is a big connection between gluten and anxiety. I developed a rotten stomach in high school (constant nausea, constipation, etc) and at the same time developed anxiety and panic attacks. Looking back now, this was at a time when I was practically living on bagels and pizza! I was tested for lactose intolerance (neg) and sent to a child psychologist to learn "coping skills" for the anxiety and panic.

FF a few years, and here we are: the last two years I developed really bad bowel troubles (gas pains, cramps, sudden BM urges, D, etc) and heightened anxiety. Now of course, constant bowel trouble itself is going to cause anxiety, but having recently gone gluten-free, I can tell that my general anxiety is decreasing. Because of the bowel issues I do still have anxiety when leaving the house (where is the nearest toilet? lol) but I'm hopeful that once my stomach settles down, my anxiety will too. BTW, I can totally relate to your issues with eating in restaurants ... a few cramps in the stomach and it's a loooooong drive home sometimes...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

    2. - Dr. Gunn replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Test interpretations

    3. - Lotte18 posted a topic in Publications & Publicity
      0

      Prospective CRISPR research

    4. - knitty kitty replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

    5. - Aretaeus Cappadocia replied to Healthierbody2026's topic in Related Issues & Disorders
      15

      New at gluten sensitivity

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,702
    • Most Online (within 30 mins)
      7,748

    AMJ59
    Newest Member
    AMJ59
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @Healthierbody2026, so you say here that you were diagnosed a few years back but in your first post you say you were recently diagnosed. I am totally confused!
    • Dr. Gunn
      As has been pointed out previously, it is not unusual to have mixed tTG and EMA results with active celiac disease. While awaiting your biopsy appointment you could request celiac genetic risk testing. If you don't carry the HLA-DQ2 and/or DQ8 genes, your lifetime risk for celiac disease is < 1%. The celiac risk genes are present in close to 100% of celiac disease cases. If you do carry the genes, biopsy confirmation is essential given your history of symptoms and tTG antibody results.
    • Lotte18
      Hi all,  I'm just wondering if anyone knows whether Theresa Flores of Stanford University has been able to fund her research proposal to use CRISPR technology to directly alter our celiac genetic DNA coding?  I know there's been a lot published on using CRISPR to alter wheat so it's "less" aggravating.  But no one seems to indicate that wheat would then have to be grown in a vacuum.  My understanding is that wheat can self cross pollinate/contaminate if it's grown downwind from other strains of wheat.  Go ahead and correct me if I'm wrong.   Anyway, what I'd really like to know is, what's up with research to directly alter celiac DNA coding?  Is Flores the only person out there proposing this?  Has the NIH funded a CRISPR study for us?   Many thanks, Charlotte
    • knitty kitty
      @Healthierbody2026, Welcome to the forum.  We would like some clarification as to whether you have been diagnosed with NCGS or Celiac disease.  Many people who have gastrointestinal symptoms are diagnosed with IBD or NCGS without proper investigation into Celiac disease.  This can delay a correct diagnosis for as long as ten years or longer.  During that time, health problems related to Celiac disease that occur outside of the gastrointestinal system can show up.  One of those health problems is Diabetes.   I got misdiagnosed with IBD because there was no such thing as NCGS at that time.  I was told I was prediabetic for several years.  I became diabetic and had a cascade of health problems for more than ten years after until I was properly diagnosed with Celiac disease.   Did you have a DNA test to see if you carry any of the genes necessary to develop Celiac disease?  Did you have blood tests for anti-gluten antibodies?  Did you have an endoscopy?  Did biopsy samples show intestinal damage consistent with Celiac disease?  If not... I suggest you have a discussion with your doctor about proper testing for Celiac disease and whether you've had them done.  To diagnose NCGS, the doctor has to first rule out Celiac disease.   @trents could you link that article on antibody tests for Celiac?  Thanks!
    • Aretaeus Cappadocia
      A few starter suggestions for gluten-free living: - one of the other responses to you mentioned the Forums. On any page of this website, there is a blue banner near the top of the page with some menu choices. The menu choice "Forums" drops down and gives a selection. One Forum topic is "Gluten-Free Foods, Products, Shopping & Medications", another is "Gluten-Free Recipes & Cooking Tips". Others relate to Restaurants, Traveling, and so on. Spend some time surfing through them. - Arguably, the single best food in a gluten-free diet is quinoa. Costco sells a house brand that appears to be gluten-free at a pretty good price. Costco can be a source of some other gluten-free foods. Another resource I found after going gluten-free is AzureStandard.com. I buy a lot of gluten-free foods there. I checked just now and it looks like they have some service to parts of Alabama. - Learn to read food labels carefully and learn what to look for. Don't be shy about calling customer service. - If you can, dedicate your home to be gluten-free. Sort the foodstuffs (any thing that could end up in your mouth) you currently own into "safe" and "not safe". Give away the "not safe". Go through your kitchen systematically and clean everything once. It's like moving into a new apartment of questionable cleanliness. Once it's clean, though, you don't have to worry so much about it. - If you live in a "mixed" household (like mine), start calling gluten-containing foods "poop". Keep as much separate as you reasonably can. While we were transitioning to a safer kitchen overall, we would designate one set of dishes to be safe (and the other for poop). Our kitchen is mostly safe now and we don't segregate dishes anymore. However, when the coprophages want to eat some poop they eat it on the porch and rinse their dishes immediately afterwards. - I don't know the gluten limit for NCGS, but for celiac it is quite low: 20 ppm (parts per million) is the official standard, but some people seem to be sensitive even at that level. One, or maybe a few, breadcrumbs are supposedly enough to trigger symptoms. I haven't tried the experiment myself though. - My transition to gluten-free living has had some silver linings. My health is better. But it has also been a period of personal growth as I've taken up cooking in a serious way. I hope this helps to address your question
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.