Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here


justwantrelief

Recommended Posts

justwantrelief Newbie

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

Anxiety was so severe with no relief from any medication. After going gluten free and being careful not to get cross contaminated, the anxiety went away very quickly.

It sounds like you definitely can be gluten intolerant. No doctor even considered that for me until after I suffered from diarrhea for quite some time. It was all in my head up until that point. I lost so much weight and one doctor yelled at me that I wasn't eating enough. The more I ate, the worse the D got.

Definitely get tested for gluten intolerance and Celiac. Don't give up eating wheat, barley or rye until after the testing. Once all testing is done and even before you get the results, eliminat all glulten. Besides wheat, barley and rye, don't eat oats as they are often cross contaminated (cc). You will need to get a new can opener, cutting board, non-stick cookware, etc. as they are easily cc. Keep reading posts to this forum about cc issues for more tips on how to avoid it. Be sure you check all shampoos, make up, hand soap, etc. as often they have wheat or oats in them.

Good luck!

justwantrelief Newbie

Thanks for your reply. Since I have been having awful withdrawl I am not sure I want to go back to gluten just for testing. From what I read the diagnosis is really hard even with test results. If I feel better in a few weeks I think I will just chalk it up to gluten, huh? I also read that a gluten free diet is good for everyone, even if they don't need it? I am looking for a few good books about celiac/gluten intolerance...any ideas?

Thanks!

Hyacinth Newbie

HI!

I'm new here too. I also have taken myself off gluten, and have been off it for one week now. My dad was diagnosed with Celiac Disease about two years ago. I have suffered from chronic headaches and also migraines for many years. Suddenly about a week ago my boyfriend came up with the idea to take me off gluten and see if that helped. Holy Cow! what a wonderful improvement! Instead of having my pain range from 4 to 10 every day, this week I have an average pain rating of 3! I'm amazed.

I too have depression. I've been on medication for that for a couple years. I'm going to wait for a couple months, adjust myself to being gluten free, and then talk to a doctor about maybe trying to go down in dosage for depression and see what happens.

As to the gluten cravings, don't even get me started! I'm craving things with gluten in them that I haven't eaten in years, just because I can't have them! I would love to know how people can deal with that too!

Hyacinth

BRUMI1968 Collaborator

My CURE of anxiety attacks was so profound upon gluten free that I tell all my doctors that if they have any patients at all with generalized anxiety disorder, they should give them the celiac test. I have had zero attacks after about 2 weeks gluten free...well, I had two, but both were after being glutened.

If you have noticed it helped so far, go with it. It profoundly changed my life to get rid of those anxiety attacks. Good luck!

Cheryl-C Enthusiast

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

I would say that yes, there is a big connection between gluten and anxiety. I developed a rotten stomach in high school (constant nausea, constipation, etc) and at the same time developed anxiety and panic attacks. Looking back now, this was at a time when I was practically living on bagels and pizza! I was tested for lactose intolerance (neg) and sent to a child psychologist to learn "coping skills" for the anxiety and panic.

FF a few years, and here we are: the last two years I developed really bad bowel troubles (gas pains, cramps, sudden BM urges, D, etc) and heightened anxiety. Now of course, constant bowel trouble itself is going to cause anxiety, but having recently gone gluten-free, I can tell that my general anxiety is decreasing. Because of the bowel issues I do still have anxiety when leaving the house (where is the nearest toilet? lol) but I'm hopeful that once my stomach settles down, my anxiety will too. BTW, I can totally relate to your issues with eating in restaurants ... a few cramps in the stomach and it's a loooooong drive home sometimes...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - YoshiLuckyJackpotWinner888 replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

    2. - Scott Adams replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Reverse Osmosis (RO) Water

    3. - Scott Adams replied to JoJo0611's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Yeast extract

    4. - Scott Adams replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      14

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    5. - Scott Adams replied to YoshiLuckyJackpotWinner888's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Water filters are a potential problem for Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,571
    • Most Online (within 30 mins)
      7,748

    Chanty
    Newest Member
    Chanty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • YoshiLuckyJackpotWinner888
      What non organic or nonorganic molecules from a plastic bottle of water can trigger a reaction that I have only experienced during an auto immune experience? There really should not be any organic molecules in  such a bottle. I seen a thread where it was mentioned that his refrigerator water filter tested positive for gluten when he had it checked. If I went to physician to get checked for other possible triggers from a water bottle, I don’t think that will go anywhere. Again, distilled water containers cause no reactions. I’m not an industry expert, but something is there.  I don’t think that this is a case of microplastics causing this. Too bad we can’t call upon some third party investigation.  
    • Scott Adams
      It’s understandable to want to be cautious, especially after experiencing symptoms. However, there is currently no scientific evidence that reverse osmosis or standard activated carbon water filters expose people to gluten in amounts that would trigger celiac disease. Gluten is a protein, and if any starch-based binder were used in filter manufacturing, it would not pass through RO membranes or remain in finished bottled water at clinically meaningful levels. Plain water — filtered, RO, or bottled — does not contain gluten unless it is intentionally added (which would require labeling). Steam-distilled water is certainly safe, but it is not considered medically necessary for people with celiac disease. If reactions are occurring, it may be helpful to explore other potential explanations with a healthcare provider rather than assuming filter-related gluten exposure.
    • Scott Adams
      It’s understandable to look for bigger explanations when you’re dealing with complex symptoms, but the current scientific consensus does not support the idea that celiac disease evolved as a defense against Candida. Celiac disease is a well-characterized autoimmune condition triggered specifically by gluten in genetically susceptible individuals (HLA-DQ2 or HLA-DQ8). While some laboratory studies have shown that certain Candida proteins (like Hwp1) share limited sequence similarities with gluten or tissue transglutaminase (tTG), that does not mean Candida causes celiac disease or commonly produces false-positive tTG tests in clinical practice. Anti-tTG IgA remains a highly specific and validated marker for celiac when used appropriately (especially alongside total IgA testing and, when indicated, biopsy). IgG antibodies to Saccharomyces cerevisiae (ASCA) are more commonly associated with Crohn’s disease and are not considered diagnostic for celiac. There is ongoing research into microbiome interactions and immune cross-reactivity, but at this time there is no evidence that yeast exposure from foods triggers celiac autoimmunity in people without gluten exposure. If symptoms persist despite a strict gluten-free diet, it’s best to work with a gastroenterologist to rule out other conditions such as IBD, SIBO, non-celiac food intolerances, or refractory celiac disease rather than assuming a fungal-driven mechanism.
    • Scott Adams
      It sounds like you’ve put a lot of effort into tracking patterns, and that kind of awareness can be helpful. With celiac disease specifically, though, the only confirmed immune trigger is gluten. Reactions to dairy are common after diagnosis because intestinal damage can temporarily reduce lactase, leading to lactose intolerance — but that’s different from casein sensitivity. IgG food panels, including yeast, are generally considered markers of exposure rather than proof of clinical intolerance. Aged cheeses like Irish cheddar are typically gluten-free, though they do contain casein and natural cultures. If symptoms are strong and repeatable, it may be worth working with a gastroenterologist or allergist to sort out true allergies, intolerances, or other GI conditions rather than assuming multiple cross-reactive immune triggers.
    • Scott Adams
      I completely understand wanting to track down every possible source of exposure after a celiac diagnosis, especially when symptoms are distinct and repeatable. That said, there’s currently no credible evidence that bottled water — including filtered water products like Gatorade water — contains gluten from filter materials. Activated carbon filters are typically bound with food-grade binders, and if any starch were used in manufacturing, it would not remain in the finished water at measurable or biologically active levels. Plain water itself does not contain protein, and gluten is a protein. Major beverage companies also have strict allergen control programs, and gluten would need to be declared if intentionally added. If symptoms are occurring consistently after certain products, it may be worth discussing with a physician to explore other potential triggers, but at this time distilled water is not considered medically necessary for people with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.