Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here


justwantrelief

Recommended Posts

justwantrelief Newbie

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jackay Enthusiast

Anxiety was so severe with no relief from any medication. After going gluten free and being careful not to get cross contaminated, the anxiety went away very quickly.

It sounds like you definitely can be gluten intolerant. No doctor even considered that for me until after I suffered from diarrhea for quite some time. It was all in my head up until that point. I lost so much weight and one doctor yelled at me that I wasn't eating enough. The more I ate, the worse the D got.

Definitely get tested for gluten intolerance and Celiac. Don't give up eating wheat, barley or rye until after the testing. Once all testing is done and even before you get the results, eliminat all glulten. Besides wheat, barley and rye, don't eat oats as they are often cross contaminated (cc). You will need to get a new can opener, cutting board, non-stick cookware, etc. as they are easily cc. Keep reading posts to this forum about cc issues for more tips on how to avoid it. Be sure you check all shampoos, make up, hand soap, etc. as often they have wheat or oats in them.

Good luck!

justwantrelief Newbie

Thanks for your reply. Since I have been having awful withdrawl I am not sure I want to go back to gluten just for testing. From what I read the diagnosis is really hard even with test results. If I feel better in a few weeks I think I will just chalk it up to gluten, huh? I also read that a gluten free diet is good for everyone, even if they don't need it? I am looking for a few good books about celiac/gluten intolerance...any ideas?

Thanks!

Hyacinth Newbie

HI!

I'm new here too. I also have taken myself off gluten, and have been off it for one week now. My dad was diagnosed with Celiac Disease about two years ago. I have suffered from chronic headaches and also migraines for many years. Suddenly about a week ago my boyfriend came up with the idea to take me off gluten and see if that helped. Holy Cow! what a wonderful improvement! Instead of having my pain range from 4 to 10 every day, this week I have an average pain rating of 3! I'm amazed.

I too have depression. I've been on medication for that for a couple years. I'm going to wait for a couple months, adjust myself to being gluten free, and then talk to a doctor about maybe trying to go down in dosage for depression and see what happens.

As to the gluten cravings, don't even get me started! I'm craving things with gluten in them that I haven't eaten in years, just because I can't have them! I would love to know how people can deal with that too!

Hyacinth

BRUMI1968 Collaborator

My CURE of anxiety attacks was so profound upon gluten free that I tell all my doctors that if they have any patients at all with generalized anxiety disorder, they should give them the celiac test. I have had zero attacks after about 2 weeks gluten free...well, I had two, but both were after being glutened.

If you have noticed it helped so far, go with it. It profoundly changed my life to get rid of those anxiety attacks. Good luck!

Cheryl-C Enthusiast

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

I would say that yes, there is a big connection between gluten and anxiety. I developed a rotten stomach in high school (constant nausea, constipation, etc) and at the same time developed anxiety and panic attacks. Looking back now, this was at a time when I was practically living on bagels and pizza! I was tested for lactose intolerance (neg) and sent to a child psychologist to learn "coping skills" for the anxiety and panic.

FF a few years, and here we are: the last two years I developed really bad bowel troubles (gas pains, cramps, sudden BM urges, D, etc) and heightened anxiety. Now of course, constant bowel trouble itself is going to cause anxiety, but having recently gone gluten-free, I can tell that my general anxiety is decreasing. Because of the bowel issues I do still have anxiety when leaving the house (where is the nearest toilet? lol) but I'm hopeful that once my stomach settles down, my anxiety will too. BTW, I can totally relate to your issues with eating in restaurants ... a few cramps in the stomach and it's a loooooong drive home sometimes...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

    2. - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    4. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,349
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.