Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Here

justwantrelief

Recommended Posts

justwantrelief Newbie
justwantrelief
Posted

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jackay Enthusiast
jackay
Posted

Anxiety was so severe with no relief from any medication. After going gluten free and being careful not to get cross contaminated, the anxiety went away very quickly.

It sounds like you definitely can be gluten intolerant. No doctor even considered that for me until after I suffered from diarrhea for quite some time. It was all in my head up until that point. I lost so much weight and one doctor yelled at me that I wasn't eating enough. The more I ate, the worse the D got.

Definitely get tested for gluten intolerance and Celiac. Don't give up eating wheat, barley or rye until after the testing. Once all testing is done and even before you get the results, eliminat all glulten. Besides wheat, barley and rye, don't eat oats as they are often cross contaminated (cc). You will need to get a new can opener, cutting board, non-stick cookware, etc. as they are easily cc. Keep reading posts to this forum about cc issues for more tips on how to avoid it. Be sure you check all shampoos, make up, hand soap, etc. as often they have wheat or oats in them.

Good luck!

justwantrelief Newbie
justwantrelief
Posted
  • Author

Thanks for your reply. Since I have been having awful withdrawl I am not sure I want to go back to gluten just for testing. From what I read the diagnosis is really hard even with test results. If I feel better in a few weeks I think I will just chalk it up to gluten, huh? I also read that a gluten free diet is good for everyone, even if they don't need it? I am looking for a few good books about celiac/gluten intolerance...any ideas?

Thanks!

Hyacinth Newbie
Hyacinth
Posted

HI!

I'm new here too. I also have taken myself off gluten, and have been off it for one week now. My dad was diagnosed with Celiac Disease about two years ago. I have suffered from chronic headaches and also migraines for many years. Suddenly about a week ago my boyfriend came up with the idea to take me off gluten and see if that helped. Holy Cow! what a wonderful improvement! Instead of having my pain range from 4 to 10 every day, this week I have an average pain rating of 3! I'm amazed.

I too have depression. I've been on medication for that for a couple years. I'm going to wait for a couple months, adjust myself to being gluten free, and then talk to a doctor about maybe trying to go down in dosage for depression and see what happens.

As to the gluten cravings, don't even get me started! I'm craving things with gluten in them that I haven't eaten in years, just because I can't have them! I would love to know how people can deal with that too!

Hyacinth

BRUMI1968 Collaborator
BRUMI1968
Posted

My CURE of anxiety attacks was so profound upon gluten free that I tell all my doctors that if they have any patients at all with generalized anxiety disorder, they should give them the celiac test. I have had zero attacks after about 2 weeks gluten free...well, I had two, but both were after being glutened.

If you have noticed it helped so far, go with it. It profoundly changed my life to get rid of those anxiety attacks. Good luck!

Cheryl-C Enthusiast
Cheryl-C
Posted

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

I would say that yes, there is a big connection between gluten and anxiety. I developed a rotten stomach in high school (constant nausea, constipation, etc) and at the same time developed anxiety and panic attacks. Looking back now, this was at a time when I was practically living on bagels and pizza! I was tested for lactose intolerance (neg) and sent to a child psychologist to learn "coping skills" for the anxiety and panic.

FF a few years, and here we are: the last two years I developed really bad bowel troubles (gas pains, cramps, sudden BM urges, D, etc) and heightened anxiety. Now of course, constant bowel trouble itself is going to cause anxiety, but having recently gone gluten-free, I can tell that my general anxiety is decreasing. Because of the bowel issues I do still have anxiety when leaving the house (where is the nearest toilet? lol) but I'm hopeful that once my stomach settles down, my anxiety will too. BTW, I can totally relate to your issues with eating in restaurants ... a few cramps in the stomach and it's a loooooong drive home sometimes...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end...
    2. trents
      - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So...
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

      I have a lot to learn! Thank you
    4. DebJ14
      - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
    5. Hmart
      - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,927
    • Most Online (within 30 mins)
      7,748
    Lindafink
    Newest Member
    Lindafink
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      Is this celiac?

      By Hmart · Posted

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.