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justwantrelief

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justwantrelief Newbie
justwantrelief
Posted

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

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jackay Enthusiast
jackay
Posted

Anxiety was so severe with no relief from any medication. After going gluten free and being careful not to get cross contaminated, the anxiety went away very quickly.

It sounds like you definitely can be gluten intolerant. No doctor even considered that for me until after I suffered from diarrhea for quite some time. It was all in my head up until that point. I lost so much weight and one doctor yelled at me that I wasn't eating enough. The more I ate, the worse the D got.

Definitely get tested for gluten intolerance and Celiac. Don't give up eating wheat, barley or rye until after the testing. Once all testing is done and even before you get the results, eliminat all glulten. Besides wheat, barley and rye, don't eat oats as they are often cross contaminated (cc). You will need to get a new can opener, cutting board, non-stick cookware, etc. as they are easily cc. Keep reading posts to this forum about cc issues for more tips on how to avoid it. Be sure you check all shampoos, make up, hand soap, etc. as often they have wheat or oats in them.

Good luck!

justwantrelief Newbie
justwantrelief
Posted
  • Author

Thanks for your reply. Since I have been having awful withdrawl I am not sure I want to go back to gluten just for testing. From what I read the diagnosis is really hard even with test results. If I feel better in a few weeks I think I will just chalk it up to gluten, huh? I also read that a gluten free diet is good for everyone, even if they don't need it? I am looking for a few good books about celiac/gluten intolerance...any ideas?

Thanks!

Hyacinth Newbie
Hyacinth
Posted

HI!

I'm new here too. I also have taken myself off gluten, and have been off it for one week now. My dad was diagnosed with Celiac Disease about two years ago. I have suffered from chronic headaches and also migraines for many years. Suddenly about a week ago my boyfriend came up with the idea to take me off gluten and see if that helped. Holy Cow! what a wonderful improvement! Instead of having my pain range from 4 to 10 every day, this week I have an average pain rating of 3! I'm amazed.

I too have depression. I've been on medication for that for a couple years. I'm going to wait for a couple months, adjust myself to being gluten free, and then talk to a doctor about maybe trying to go down in dosage for depression and see what happens.

As to the gluten cravings, don't even get me started! I'm craving things with gluten in them that I haven't eaten in years, just because I can't have them! I would love to know how people can deal with that too!

Hyacinth

BRUMI1968 Collaborator
BRUMI1968
Posted

My CURE of anxiety attacks was so profound upon gluten free that I tell all my doctors that if they have any patients at all with generalized anxiety disorder, they should give them the celiac test. I have had zero attacks after about 2 weeks gluten free...well, I had two, but both were after being glutened.

If you have noticed it helped so far, go with it. It profoundly changed my life to get rid of those anxiety attacks. Good luck!

Cheryl-C Enthusiast
Cheryl-C
Posted

Hi!

I am new here and I am one week gluten free. I feel like crap. For the last 5 years (after three c sections within 4 years) I have been suffering with depression and anxiety. It has gotten so bad lately that I thought I was going to die during a panic attack. Very scary when you are driving three kids around. I cam across this board and some of the symptoms described here seem like exactly what I have been experiencing. For several years I have always had to stay close to the toilet after meals. I have stopped going out to dinner, etc..That has happened for a few years. I started taking probiotics and my stomach problems decreased somewhat. This year the anxiety started. Is there anyone out there that had more depression/anxiety symptoms that were "cured" by going gluten free? I am desparate for help. Also is there any advice on how to get through the gluten withdrawl? Seems the anxiety is worse since stopping gluten but I think this is temporary...

Thanks in advance for any help!

I would say that yes, there is a big connection between gluten and anxiety. I developed a rotten stomach in high school (constant nausea, constipation, etc) and at the same time developed anxiety and panic attacks. Looking back now, this was at a time when I was practically living on bagels and pizza! I was tested for lactose intolerance (neg) and sent to a child psychologist to learn "coping skills" for the anxiety and panic.

FF a few years, and here we are: the last two years I developed really bad bowel troubles (gas pains, cramps, sudden BM urges, D, etc) and heightened anxiety. Now of course, constant bowel trouble itself is going to cause anxiety, but having recently gone gluten-free, I can tell that my general anxiety is decreasing. Because of the bowel issues I do still have anxiety when leaving the house (where is the nearest toilet? lol) but I'm hopeful that once my stomach settles down, my anxiety will too. BTW, I can totally relate to your issues with eating in restaurants ... a few cramps in the stomach and it's a loooooong drive home sometimes...

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
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      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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