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Celiac?

dragon

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dragon Rookie
dragon
Posted

hi,new on here i have had blood work for everything including celiac which was negative now my gastro doc says i have low haemoglobin so i need a second endscopy to be certain i dont have celiac anyone understand what he means?my stomach/acid intestinal pain is destroying my life

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Skylark Collaborator
Skylark
Posted

Celiac is one of the major causes of anemia. Your doctor is probably seeing celiac-like symptoms and doesn't trust your negative test results so he wants to look again. It's hard to get solid, positive test results for celiac.

dragon Rookie
dragon
Posted
  • Author

Celiac is one of the major causes of anemia. Your doctor is probably seeing celiac-like symptoms and doesn't trust your negative test results so he wants to look again. It's hard to get solid, positive test results for celiac.

thanks for the advice,being in the uk and the nhs system 4 weeks and they will do another endoscopy with biopsy is celiac hereditary? i was fine untill i hit 29 then all the problems started but there is no history of celiac disease in my family

Skylark Collaborator
Skylark
Posted

thanks for the advice,being in the uk and the nhs system 4 weeks and they will do another endoscopy with biopsy is celiac hereditary? i was fine untill i hit 29 then all the problems started but there is no history of celiac disease in my family

It does tend to run in families, but not strictly so. Also, there may be undiagnosed celiacs in your family. My grandmother always stopped eating wheat and switched to cornbread when she got sick, and my great-grandmother had nutritional deficiencies that were never explained.

ravenwoodglass Mentor
ravenwoodglass
Posted

thanks for the advice,being in the uk and the nhs system 4 weeks and they will do another endoscopy with biopsy is celiac hereditary? i was fine untill i hit 29 then all the problems started but there is no history of celiac disease in my family

Celiac usually has a triggering event, an illness or a physical or mental stress that brings it on. It is also very underdiagnosed so there may very well be celiacs in your family that haven't been diagnosed. Even if the test results are negative you should try the diet after all testing is over. False negatives are not uncommon at all.

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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    • trents
      how much gluten do I need to eat before blood tests?

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