Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dentist Visit


Kim27

Recommended Posts

Kim27 Contributor

I have had the worst luck with people not understanding or having NO clue what I'm talking about when I ask about gluten ingredients in things. From people saying "Oh no there's no sugar in this" to telling me they checked the ingredients and everything is A-OK! because the actual WORD gluten is not listed in the ingredients!! (I wish it was that easy!!!!!) So it has happened again and I need some help. I have seen on here people talking about needing to check dental cleaning supplies while at the dentist office. I have an appointment next week (my first since diagnosis) and so I called them yesterday to give them a head-up on my new diagnosis and also to give them time to find out about the gluten in their products. Well of courseeeeee they say they've never heard of gluten and no one has asked about it before in the office. (great!) I live in a relatively well-sized city with multiple gluten free menus in different restaurants, large celiac support group, etc, so I KNOW I'm not the only one in the city that has these concerns. Anyway...... the woman says let me find out and call you tomorrow. So I get a phone call this morning from her saying that she had one of the dental assistants check the ingredients and I'm all good b/c gluten is not listed as an ingredient. Of course I have to go through the whole thing where I have to explain that gluten itself will not be listed, they need to look for other keywords etc, and could they contact the manufacturer and ask them b/c they are likely to know what sort of excipients are in things. Now, I'm waiting....... My question for everyone, what do you do in these situations? I always end up feeling like I am not getting a for sure certain answer to feel comfortable that gluten is not in things, like pills, dental stuff, etc. How do you get thru to people? HOw do you find out for sure if it's safe? I am having so many problems with this. Food is not a big deal, if I can't find out for sure I just don't eat it, but for example, I can't just stop going to the dentist forever. How do you help people get a clue??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

One thing you can do is ask for a list of the products to be used and the manufacturer and call them yourself. There's much less chance of error and misunderstanding if you talk directly instead of using an apparently clueless intermediary. Do it yourself is my rule.

Anyway, as far as cleaning stuff, from my experience, if you stay away from mint-flavored things (some have gluten, others don't) and you have them use plain, unflavored pumice, you'll be all right.

richard

Frances03 Enthusiast

I guess I just dont freak out about the dentist. It's only twice a year, and I dont swallow anything they put in my mouth. I rinse really well and spit a lot, and they know I'm going to do that, so I don't worry about it.

CarolinaKip Community Regular

I have had the worst luck with people not understanding or having NO clue what I'm talking about when I ask about gluten ingredients in things. From people saying "Oh no there's no sugar in this" to telling me they checked the ingredients and everything is A-OK! because the actual WORD gluten is not listed in the ingredients!! (I wish it was that easy!!!!!) So it has happened again and I need some help. I have seen on here people talking about needing to check dental cleaning supplies while at the dentist office. I have an appointment next week (my first since diagnosis) and so I called them yesterday to give them a head-up on my new diagnosis and also to give them time to find out about the gluten in their products. Well of courseeeeee they say they've never heard of gluten and no one has asked about it before in the office. (great!) I live in a relatively well-sized city with multiple gluten free menus in different restaurants, large celiac support group, etc, so I KNOW I'm not the only one in the city that has these concerns. Anyway...... the woman says let me find out and call you tomorrow. So I get a phone call this morning from her saying that she had one of the dental assistants check the ingredients and I'm all good b/c gluten is not listed as an ingredient. Of course I have to go through the whole thing where I have to explain that gluten itself will not be listed, they need to look for other keywords etc, and could they contact the manufacturer and ask them b/c they are likely to know what sort of excipients are in things. Now, I'm waiting....... My question for everyone, what do you do in these situations? I always end up feeling like I am not getting a for sure certain answer to feel comfortable that gluten is not in things, like pills, dental stuff, etc. How do you get thru to people? HOw do you find out for sure if it's safe? I am having so many problems with this. Food is not a big deal, if I can't find out for sure I just don't eat it, but for example, I can't just stop going to the dentist forever. How do you help people get a clue??

I plan to do what Richard suggested, call the company of the products. My dental office had no clue as well.

SGWhiskers Collaborator

I call two weeks in advance for a list of all products and then make the calls myself. I've run into the problem of arriving and being placed in a booth that is stocked with different items for some reason, and making them hunt down the safe items from other booths and back room storage.

Kim27 Contributor

*UPDATE* Well the dentist office called me back again. They said that they couldn't know for sure so they were gonna fax me the product information so I could look at the ingredients. Well, I think they should have to know what is in their products, but I guess that's besides the point. I said okay, thinking I could pretty much tell from the ingredients or I would then know the manufacturer so I could call them and they would surely know. Well the manufacturer phone number was right on the sheet so I went ahead and called information. The woman was very nice and said NONE of their pastes (cleaning stuff) contain gluten and that it is written right on the box "contains no gluten"!!!! At least I know now and know it's safe, but I must say, the people at that office are either really stupid or didn't even bother to look at the box in the first place!!!!!!!!! ugh!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,336
    • Most Online (within 30 mins)
      7,748

    Jeffrey Yeres
    Newest Member
    Jeffrey Yeres
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.