Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Probiotics And Enzymes Help You For The Most Part?


sweeeeet

Recommended Posts

sweeeeet Rookie

After suffering for close to 20 years of IBS, bloating, distension, cramps, acid reflux, brain fog, headaches, teary eyes, numb cheeks, fatigue after eating, joint pain, muscle pain, all that typical stuff I was fed up. I completely eliminated dairy - (milk, ice cream, etc) almost completely eliminated wheat and gluten for a few months now and have been eating simple foods like fresh fruits (blueberries, strawberries) and white meat and seafood like shrimp) I've seen a remarkable improvement in my symptoms! I used to "go into a coma" after having macaroni and cheese, get excrutiating stomach cramps after eating ice cream or would have a two inch difference in my waistline depending on whether I was bloated or not from eating a bowl of Cheerios. I feel so much better! Not 100 percent but so much better that I had to brag.

But also I take Primal Defense Ultra probiotic 3 times a day with lots of water, and Primal Defense Ω-Zyme before I eat a meal, and I was wondering if these maybe were the answer........more so than just eliminating dairy gluten and wheat.........

Do you take probiotics and enzymes in addition to eliminating your trigger foods and do you think they've really helped too?

What else, in addition, can I do to maintain things with my symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

good for u!!! i havent been able to give up the dairy yet <_<

in my personal opinion- i've noticed more positive change from actually eliminating wheat & gluten from my diet than the probiotics or enzymes.. i think they most definitely help- but i think the biggest change comes from the diet.

shayre Enthusiast

Hey, I know that you feel my malnourished pain! My GI doc told me yesterday to add probiotics...IN ADDITION to cutting out the offensive foods. He said that a damaged gut allows bad bacteria to build up and be greater than the good bacteria, and could potentially cause a gut infection. So... I'm on 2 antibiotics for 2 weeks, along with 2 probiotics. I've read that other people on here say that the probiotics really help them, but that you need to find a good one. I don't know what they are though, and I'd like to know that for myself. I don't plan on staying on the ones that were given to me.

Wolicki Enthusiast

I am a little more than a year gluten free. If I go more than 2 days without my pro-b's, I bloat up like a balloon. I am fairly certain I am on them for life. I actually take HCL before meals, and enzymes after. That has improved my digestion drastically.

HTH

Sweetfudge Community Regular

I have been gluten-free for 4 years, and dairy free mostly for 2. I have gone through phases where I feel better, and then don't. But I definitely notice a difference taking probiotics.

I was recommended Align by my GI. It's a probiotic specifically for people with IBS-like symptoms - gas, bloating, cramps, etc. Lately I was wondering if it was working, so I stopped taking it for a couple weeks. Boy, did I notice a difference! Definitely helping!

I would look into Align, see if it sounds like it would help you. It has a minute amount of dairy in it, but that really hasn't bothered me.

sweeeeet Rookie

thanks for the replies. Align was recommended to me from the pharmacist at CVS. I tried it, and was ten times worse with the cramps after taking it for two days. The cramps were so horrible I couldn't stand up straight without doubling over. But then again, there are people who say it worked for them fine. I don't know why it didn't work for me. So anyways I went to the vitamin shoppe, the guys there have been so helpful, answering a ton of questions. I've really noticed a difference, especially in my distended "Santa Claus" stomach. Its deflated and stayed that way, lol

Sweetfudge Community Regular

thanks for the replies. Align was recommended to me from the pharmacist at CVS. I tried it, and was ten times worse with the cramps after taking it for two days. The cramps were so horrible I couldn't stand up straight without doubling over. But then again, there are people who say it worked for them fine. I don't know why it didn't work for me. So anyways I went to the vitamin shoppe, the guys there have been so helpful, answering a ton of questions. I've really noticed a difference, especially in my distended "Santa Claus" stomach. Its deflated and stayed that way, lol

When I started taking Align, my GI warned me it can cause some bloating/flare up of symptoms, which I noticed for probably the first week. Definitely nothing as bad as what you experienced. That's horrible. I hope you find something that works for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

When I started taking Align, my GI warned me it can cause some bloating/flare up of symptoms, which I noticed for probably the first week. Definitely nothing as bad as what you experienced. That's horrible. I hope you find something that works for you.

I have just had recommended to me by a nutritionist, and have started taking VSL#3, which can be ordered from Sigma-Tau Pharmaceuticals. It is a sprinkle that comes in a small packet and contains lactic acid bacteria (450 billion of them) and cornstarch. She thinks my gut is still leaking and wants me to take it for at least 90 days (along with other stuff she has prescribed). It is pretty expensive and has to be fed-exed because it must be kept refrigerated, but you do get a price break with ordering two boxes. She asserts it is without doubt the best probiotic on the market - used for people with Crohn's and ulcerative colitis, as well as an ileal pouch. Don't know if your budget will stretch that far but check it out.

sweeeeet Rookie

question............... if I take too much probiotics will it be bad for me? I mean, I have been eating gluten free, wheat free, lactose free, egg free, casein free for the past two weeks, and taking probiotics before every meal, and I was feeling better for a short while, but this week my stomach still feels pretty yucky and the diarrhea and stomach upset is still there, it feels like like a relapse. Could it be I am putting something into my body that I don't need and that's why the diarrhea? Or maybe I need to take it for a few months?

sweeeeet Rookie

Oh and also..............I asked my gp if she ever heard of Nystatin, and she said Kind of, but you don't need Nystatin. Stay away from that.

Anybody here ever take Nystatin? What was that like

burdee Enthusiast

After suffering for close to 20 years of IBS, bloating, distension, cramps, acid reflux, brain fog, headaches, teary eyes, numb cheeks, fatigue after eating, joint pain, muscle pain, all that typical stuff I was fed up. I completely eliminated dairy - (milk, ice cream, etc) almost completely eliminated wheat and gluten for a few months now and have been eating simple foods like fresh fruits (blueberries, strawberries) and white meat and seafood like shrimp) I've seen a remarkable improvement in my symptoms! I used to "go into a coma" after having macaroni and cheese, get excrutiating stomach cramps after eating ice cream or would have a two inch difference in my waistline depending on whether I was bloated or not from eating a bowl of Cheerios. I feel so much better! Not 100 percent but so much better that I had to brag.

But also I take Primal Defense Ultra probiotic 3 times a day with lots of water, and Primal Defense Ω-Zyme before I eat a meal, and I was wondering if these maybe were the answer........more so than just eliminating dairy gluten and wheat.........

Do you take probiotics and enzymes in addition to eliminating your trigger foods and do you think they've really helped too?

What else, in addition, can I do to maintain things with my symptoms.

I suggest abstaining from your diagnosed allergies/intolerances AND taking probiotics to restore gut health. Probiotics alone will not prevent or ease painful allergy/intolerance reactions to gluten or anything else. However many people with gluten intolerance or other food sensitivities also have depleted beneficial gut bacteria which can cause symptoms like constipation, diarrhea and intestinal cramping pain, even when they abstain from problem foods. If you've ever taken antibiotics, you definitely need probiotics.

However, if you're truly deficient, just eating yogurt or taking a low dose probiotic won't help much. You need a pretty high dose probiotic (20-50 billion live cells per capsule) to improve your intestinal health (the higher the better). However, you don't need FOS (fructooligosaccharides) to feed those probiotics. So you don't have to endure FOS side effects (bloating, gas and pain) by taking probiotics with FOS. Also if you need to increase your beneficial gut bacteria, take probiotics on an empty stomach like before breakfast or bedtime. Taking probiotics with a meal can decrease their potency, because stomach acid can destroy some live cells.

Finally, if you need other digestive supplments and digestive enzymes don't help, you may need to test your stomach acid production. Many people have low, rather than high stomach acid. Low stomach acid can cause reflux, indigestion, susceptibility to intestinal infections (bacteria, parasites and fungus). However, don't take HCl supplements without getting tested.

burdee Enthusiast

Oh and also..............I asked my gp if she ever heard of Nystatin, and she said Kind of, but you don't need Nystatin. Stay away from that.

Anybody here ever take Nystatin? What was that like

After stool tests diagnosed candida, I took Nystatin for 3 months to eliminate that fungus. Rather than try to follow very restrictive candida diets, because I already have 7 diagnosed food intolerance/allergies, I chose Nystatin, which was one of the recommended treatments for my specific strain of candida (indicated by my stool test results).

For the first 3 days on Nystatin I experienced dizziness and nausea. After my body adjusted to that drug, I didn't feel any side effects until after I finished the treatment. Then I went through another 2-3 days of nausea perhaps from Nystatin withdrawal. However, I could easily tolerate the dizziness and/or nausea by drinking ginger tea. Nevertheless, I'd also recommend taking high dose probiotics while taking Nystatin. Even though that's an antiFUNGAL (rather than antibacterial) drug, it still upsets the microfloral intestinal balance, which makes you vulnerable to new bad gut bugs, if you don't add good bacteria from probiotics while you take Nystatin.

sweeeeet Rookie

I really am quite surprised that my doctor didn't recommend Nystatin, (and specifally said "You don't want to take that") I've seen a lot of people on here and on this other board I go to, mention they have taken it. I'm going to have to specifally go to a gastro specilaist I guess. I mean, a doctor who treats me for a sinus infection and a sore back is not the doctor I really need to see for chronic stomach problems.

burdee Enthusiast

I really am quite surprised that my doctor didn't recommend Nystatin, (and specifally said "You don't want to take that") I've seen a lot of people on here and on this other board I go to, mention they have taken it. I'm going to have to specifally go to a gastro specilaist I guess. I mean, a doctor who treats me for a sinus infection and a sore back is not the doctor I really need to see for chronic stomach problems.

I didn't read anything saying that you had been diagnosed with candida by stool test. (Did I miss that??) If your doc doesn't really know whether you have candida or doesn't do stool tests for candida, I'm not surprised that she would discourage you from taking Nystatin. Any antifungal (antibacterial or antiparasitic) drug will deplete your intestine's good bacteria and leave you vulnerable to new infections. Also without a diagnostic stool test, you won't know whether your specific strain of candida is sensitive to (can be killed by) nystatin. So you could take Nystatin, destroy your good bacteria and still have candida or some other bacterial infection.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,156
    • Most Online (within 30 mins)
      7,748

    Shrub
    Newest Member
    Shrub
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.