Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Reactions!


Marz

Recommended Posts

Marz Enthusiast

So the past two weeks I was struggling with typical mild glutening symptoms. I was desperately trying to figure out what was causing it, what could possibly contain gluten... possibly the gluten free flours I was using... or some nuts that got CC'd?

Now I'm starting to wonder, after reading that soy can cause similar symptoms. After my "gluten challenge" this week, I realised my initial symptoms are identical to that of my "soy challenge" - stomach pain, loss of energy, nausea. I think I may be sensitive to soy as well...

And this whole week I've been drinking a soy/corn mix for a top-up when I'm hungry, think that's my connection right there.

Anyway, thought I'd share that revelation, for what it's worth. After being told by my own nutritionist that "lots of celiacs are sensitive to soy as well", I'm surprised it took until now for my to realise this.

So any research done on soy intolerance? Is it the same mechanism/as damaging as gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

Soy gives me writhing stabbing pain in my gut and my nose gets all stuffy and swollen. I was drinking soymilk daily before I got diagnosed with celiac. Cut soy at the recommendation of this board and then when I challenged it YIKES! The pain was so bad I writhed in bed all night long.

Accidentally ate soy flour in some gluten free cookies and thought I was going to pass out from the pain.

bridgetm Enthusiast

I got that same stabbing pain. It started out mild, but the more I ate the worse it got. One time I felt like there was a twisting knife just above my waist line.

I cut out all those gluten-free snacks that are loaded with soybeans and by-products like oil, lecithin, etc and noticed a vast improvement. Now I do okay with small amounts like Tostito's tortilla chips which are made with soybean oil (my general rule of thumb is that if there are more than 3 "and/or's" listed under vegetable oil in the ingredients I can probably have a bite or two. It is best to just avoid it all though.

Some day I will try adding soy back to my diet (some research says soy lecithin should not cause a reaction in those who are soy-sensitive; I disagree now, but I may test that theory in the next few months) but for now I'm enjoying not having a knife in my gut. Just keep reading those labels.

NorthernElf Enthusiast

Wow, I've been experiencing the same thing. I've noticed that when I go away, no matter how careful I am, I seem to get sick...and I bring a lot of my own food. Just got back from a one week camping trip where I switched my usual breakie for cereal & Silk soy milk and had stomach aches (D, etc.) all morning until I stopped eating that breakie the last couple of days. Before I left I had made a couple of stir fries with Bragg's Aminos (soy based) and had headaches and the like. *Ding* a light went off - I'm avoiding soy at the moment, just bought some Almond Breeze (haven't tried it yet).

Anyway, I'll see how it goes and maybe try a little soy back in later & see what happens. Darn it !!!!!

NorthernElf Enthusiast

Wow, I've been experiencing the same thing. I've noticed that when I go away, no matter how careful I am, I seem to get sick...and I bring a lot of my own food. Just got back from a one week camping trip where I switched my usual breakie for cereal & Silk soy milk and had stomach aches (D, etc.) all morning until I stopped eating that breakie the last couple of days. Before I left I had made a couple of stir fries with Bragg's Aminos (soy based) and had headaches and the like. *Ding* a light went off - I'm avoiding soy at the moment, just bought some Almond Breeze (haven't tried it yet).

Anyway, I'll see how it goes and maybe try a little soy back in later & see what happens. Darn it !!!!!

julandjo Explorer

(some research says soy lecithin should not cause a reaction in those who are soy-sensitive; I disagree now, but I may test that theory in the next few months)

I too thought I was fine with soy lecithin. I'm down to so few safe foods and yet was still having constant chest pain (a cardiologist ruled out any cardiac problems). I switched my omega supplement, which contained soy lecithin in the capsule shell, and voila! the chest pain is *completely* gone. I tried a small piece of dark chocolate a few days ago. Soy lecithin was the only questionable ingredient, and whammo - instant chest pain. This blows me away! So much for soy lecithin being safe, at least for me!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,761
    • Most Online (within 30 mins)
      7,748

    Manuel
    Newest Member
    Manuel
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.