Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Intolerance - What Can You Tolerate?


gf-soph

Recommended Posts

gf-soph Apprentice

Hi all

I am on an elimination diet at the moment, have been for about 2 months. I have had some good improvements in GI symptoms, but still had problems with exhaustion and brain fog in particular. Things were reasonably consistent until I had a really bad week last week. I couldn't get out of bed until midday, missed work, felt moody and exhausted and generally awful.

I had a look over my food diary, and saw that I had started eating a lot more rice in the last week or so after adding in rice cakes. I cut rice out totally, and on the fourth day I woke up feeling amazing. I felt normal! I got a full days work done without the usual zoning out brain fog, have more liveliness and felt more myself than I have for a long time. I have now had 3 days in a row feeling significantly better, so I know it's not a coincidence.

My question for those of you with rice intolerance is - do you get the same reaction to all types of rice e.g. white vs brown, and to whole rice vs rice flour? I seemed to get reactions after adding in lots of whole rice cakes (definitely not a gluten issue), but haven't noticed it after eating processed gluten-free food made with rice flour.

I'm hoping that I can end up eating small amounts of rice as it would be hard to keep it out totally (though I will if I need to), so I will try reintroducing it at some point to work out if I have an amount that I am tolerant of.

Any experiences or info from those who have been though it are much appreciated.

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

I had the same issue for about 6 months. ONe bite of rice and I looked hugely pregnant. Once I started testing it, I could tolerate a few bites of rice, or gluten free baked goods with rice flour. Trader Joes rice cakes, in moderation, were ok before actual rice. A year later, I can eat 1/2 cup rice with no issues. HTH

RiceGuy Collaborator

I've read some brands of rice cakes are more subject to CC. So I wonder if it isn't rice, but trace amounts of gluten, or perhaps some other contaminate getting into the rice cakes. Especially since you've found products with rice flour seem tolerable.

Open Original Shared Link has some nice varieties of rice and other rice products. I've not heard of any CC issues from them.

doreen32 Newbie

Hi all

I am on an elimination diet at the moment, have been for about 2 months. I have had some good improvements in GI symptoms, but still had problems with exhaustion and brain fog in particular. Things were reasonably consistent until I had a really bad week last week. I couldn't get out of bed until midday, missed work, felt moody and exhausted and generally awful.

I had a look over my food diary, and saw that I had started eating a lot more rice in the last week or so after adding in rice cakes. I cut rice out totally, and on the fourth day I woke up feeling amazing. I felt normal! I got a full days work done without the usual zoning out brain fog, have more liveliness and felt more myself than I have for a long time. I have now had 3 days in a row feeling significantly better, so I know it's not a coincidence.

My question for those of you with rice intolerance is - do you get the same reaction to all types of rice e.g. white vs brown, and to whole rice vs rice flour? I seemed to get reactions after adding in lots of whole rice cakes (definitely not a gluten issue), but haven't noticed it after eating processed gluten-free food made with rice flour.

I'm hoping that I can end up eating small amounts of rice as it would be hard to keep it out totally (though I will if I need to), so I will try reintroducing it at some point to work out if I have an amount that I am tolerant of.

Any experiences or info from those who have been though it are much appreciated.

Thanks :)

Hi, I don't think I have a rice intolerance per se (at least I hope I don't get that too). I can eat whole white rice and white rice flour that I have ground myself from dry white rice. However, I experience reactions if I have whole brown rice or packaged white rice flour, or any product that has been made with white rice flour, or of course, brown rice flour. As far as the white rice flour, I am thinking that it has something to do with the fineness of the ground rice? Not sure about the brown rice issue, but that may be due to too much fiber. Don't think I'll ever figure this stuff out! Guess things affect everyone differently.

Doreen

jststric Contributor

I also have a rice-intolerance. I learned I can do straight wild rice pretty easily. Brown rice from time to time. The rice flours that are used in gluten-free foods are ok only if I don't have them everyday. If I let several days go by between eating them, I do ok also. But its easy to get impatient when you can have SOME of something, especially when its the alternative in gluten-free foods. I often get caught eating it too often. To make matters worse....I am also bean-intolerant, another gluten-free alternative. Makes life....complicated, lol.

gf-soph Apprentice

I used to think that to have a problem with rice would be the end of the world, but I have felt so good the last few days I honestly dont care! I am not planning on cutting it out unless I really need to, but I have plenty of things to introduce before I get to it.

Wolicki - thanks for the info, I'm hoping I can increase my tolerance over time once I have figured out all my intolerances.

riceguy - great name for the topic! I had considered cc, but he rice cakes are labelled gluten free and I'm in Australia so the labelling is 5 ppm, i eat other products of the same gluten-free standard and don't react. It also didn't feel like my gluten reaction, so I tend to think it's the rice. When I start eating it again, i will keep my eye out and see if we get Lundberg here

doreen32 - I don't think it's the fibre exactly, as I didn't have any GI problems, more mood/concentration. It is something to consider that I just don't find it digestable, which might be part of the problem

jststric - i hear you - I am vegetarian but can't handle legumes right now due to them causing havoc on my gi system. before the eliminatino diet I was eating quinoa for meals, and rice only really in processed foods, so I wonder if my body was guiding me away from it. I used to eat lots of brown rice, then just went off it. I will give wild rice a try, thanks!!

Thank you all for your input - I love what a great source of info this board is!

RiceGuy Collaborator

If you haven't tried a digestive enzyme formula, it might be worth doing. Just make sure it is derived completely from microbial sources. Otherwise they tend to get destroyed by the acidity of the stomach. Consider NOW Foods Digest Gold, or the one from Doctor's Best. There are probably other decent ones out there, but those two I recently found when looking for a more complete formula.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sweeeeet Rookie

Rice cakes used to be a staple for me for breakfast since bread was out of the question. I'd put peanut butter on it. But forget that, they put me into a coma 20 minutes after eating them, even with an enzyme first. I'd be just like you, barely able to get up due to sheer exhaustion, my head spinning, and pounding. How I miss rice cakes w/ peanut butter.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    3. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,357
    • Most Online (within 30 mins)
      7,748

    Tomo
    Newest Member
    Tomo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I am doing a gluten challenge right now and I bought vital wheat gluten so I can know exactly how much gluten I am getting. One tablespoon is 7g so 1½ tablespoons of Vital Wheat Gluten per day will get you to 10g You could add it to bean burgers as a binder or add to hot chocolate or apple sauce and stir. 
    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.