Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cheated , Bigggg Time!


scratch-n-eat

Recommended Posts

scratch-n-eat Newbie

So here goes. In 2002 I started getting painful pimples all over my scalp. I took the enterolab test that was positive, but barely. I went gluten-free, and POOF....the pimples went away. I have always been suspicious of my whole gluten-free/DH status. I didn't get the typical symptoms (itching on knees and elbows, intestinal issues, ect.) I even took a blood test at the derm for the antibody markers for celiac, but came up negative. I was gluten-free at the time of the test. Probably why.... don't know.

So here we go...I have been gluten-free (religiously, for 7 years) since 2003, and no pimples. About a month and a half ago , I said screw it... I got an extra large pizza, a six pack of beer , and went to town. Matter of fact...I have been eating gluten every day for the last 6 weeks with no probs ....UNTILL last week. I started getting the scalp pimples again.

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RideAllWays Enthusiast

Not sure about the DH, but have you noticed any other symptoms for the past 6 weeks? Maybe you're more tired, moody, scatterbrained, sore? If you are doubting diagnosis because of you not reacting for 6 weeks, maybe stay on gluten and then get a biopsy? But if you know that the rash went away with gluten might as well stick to it and have happy skin! :)

ksymonds84 Enthusiast

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

When I did the gluten challenge last year for my endoscopy it took 1 1/2 months for the symptoms to come back and they came back worse than ever!

scratch-n-eat Newbie

But God the beer and pizza are so good. LOL

Skylark Collaborator

DH can take a while. Your body had to build up all those antibodies in your skin again!

Do you have a BJ's in town? They have gluten-free pizza and beer. :)

lovegrov Collaborator

As with so many things and with a lot of things to do with celiac, it all depends on the person. We're not all alike and we don't all react the same way, so there's no "normal" or average. My father's DH disappeared for a few years without going gluten-free and then suddenly returned again. Is that "normal?" No, not really, but that's what happened to him.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,048
    • Most Online (within 30 mins)
      7,748

    Leah Gallagher
    Newest Member
    Leah Gallagher
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Stephanie Wakeman
      Thank you so much for your response! It's been a challenging journey with this condition! 
    • milana
      Thank you very much for your response. Since I got this advice I called Pepsid manufacturer and they could not give a definite answer. Basically,  there is no final testing and they do not guarantee anything. So I went and got farmotidine from Wagmans that was marked gluten-free and also our pediatrician gave us a prescription for farmotidine that was also gluten-free. So there are other options there thankfully. In case someone will come across of this dilemma.
    • Diana Swales
      A nutritionist typically focuses on general wellness, lifestyle guidance, and preventative health. A dietician allowed to provide medical nutrition therapy. When i was diagnosed there was zero support and few dieticians and Dr understood celiac disease.  I typically guide a newly diagnosed celiac to a whole food diet to easily transition to the gluten free lifestyle  
    • Scott Adams
      Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s allergy-related, but avoiding airborne gluten as much as possible (masking, washing hands/face often) is key. It’s great you’re tracking triggers—high-fiber foods and certain gluten-free substitutes (like those tortillas or PB pretzels) can sometimes cause similar symptoms due to additives or digestive adjustments. For travel, pack safe snacks (protein bars, nuts) and research gluten-free translation cards for Aruba. On flights, opt for packaged gluten-free meals or eat beforehand. Many gluten-free foods and baking mixes contain xanthan gum or other gums like guar gum. Although they are both gluten-free, they may cause IBS-type issues in some people with celiac disease or gluten sensitivity:   You’re doing all the right prep—trust your research and enjoy your trips! 
    • Scott Adams
      It’s scary how hidden gluten can be—even in non-food products like hair care! Your experience is a great reminder that topical products with gluten can cause systemic reactions in some people with celiac disease, especially if they’re accidentally ingested (like when shampoo runs down your face). While not everyone reacts to external exposure, your symptoms—joint pain, brain fog, and GI issues—clearly show your sensitivity. It’s frustrating that companies aren’t required to label “gluten-free” on cosmetics, so ingredient checks are a must. Don’t feel stupid; many of us learn this the hard way! Thanks for sharing your story—it’s a wake-up call for others to scrutinize everything, from lotions to makeup. Hope you’re feeling better now that you’ve ditched the culprit!
×
×
  • Create New...