Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cheated , Bigggg Time!

scratch-n-eat

By scratch-n-eat
in Dermatitis Herpetiformis

Recommended Posts

scratch-n-eat Newbie
scratch-n-eat
Posted

So here goes. In 2002 I started getting painful pimples all over my scalp. I took the enterolab test that was positive, but barely. I went gluten-free, and POOF....the pimples went away. I have always been suspicious of my whole gluten-free/DH status. I didn't get the typical symptoms (itching on knees and elbows, intestinal issues, ect.) I even took a blood test at the derm for the antibody markers for celiac, but came up negative. I was gluten-free at the time of the test. Probably why.... don't know.

So here we go...I have been gluten-free (religiously, for 7 years) since 2003, and no pimples. About a month and a half ago , I said screw it... I got an extra large pizza, a six pack of beer , and went to town. Matter of fact...I have been eating gluten every day for the last 6 weeks with no probs ....UNTILL last week. I started getting the scalp pimples again.

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RideAllWays Enthusiast
RideAllWays
Posted

Not sure about the DH, but have you noticed any other symptoms for the past 6 weeks? Maybe you're more tired, moody, scatterbrained, sore? If you are doubting diagnosis because of you not reacting for 6 weeks, maybe stay on gluten and then get a biopsy? But if you know that the rash went away with gluten might as well stick to it and have happy skin! :)

ksymonds84 Enthusiast
ksymonds84
Posted

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

When I did the gluten challenge last year for my endoscopy it took 1 1/2 months for the symptoms to come back and they came back worse than ever!

scratch-n-eat Newbie
scratch-n-eat
Posted
  • Author

But God the beer and pizza are so good. LOL

Skylark Collaborator
Skylark
Posted

DH can take a while. Your body had to build up all those antibodies in your skin again!

Do you have a BJ's in town? They have gluten-free pizza and beer. :)

lovegrov Collaborator
lovegrov
Posted

As with so many things and with a lot of things to do with celiac, it all depends on the person. We're not all alike and we don't all react the same way, so there's no "normal" or average. My father's DH disappeared for a few years without going gluten-free and then suddenly returned again. Is that "normal?" No, not really, but that's what happened to him.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,047
    • Most Online (within 30 mins)
      7,748
    terri migut
    Newest Member
    terri migut
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.