Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hard Topic To Discuss Tmi Sorry


cecilia celiac

Recommended Posts

cecilia celiac Newbie

I've lurked here a lot but have never seen this question addressed. Sorry if it's TMI. Not sure if its in the right forum.

I was undiagnosed for 30+ years...found out when I was 50. Had "D" a lot, lots of pain on BM...etc for many years.

Now i have been gluten-free for 4 years but find that i have to use baby wipes to be "clean" and that doesn't always work. There is a lot of irritation and even pain, especially if i have been CC or glutened. All the time i use baby wipes but later find that i am still not clean. I think that the skin is really iritated, not from the baby wipes but from the BM.

IS this from getting old? Or just too much gluten for all those years? Carrying baby wipes all the time gets annoying.

I haven't asked a doctor about this but all the docs seem spectacularly incompetent when it comes to day-to-day celiac problems.

Anyone have the same problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pixespirit Rookie

I've lurked here a lot but have never seen this question addressed. Sorry if it's TMI. Not sure if its in the right forum.

I was undiagnosed for 30+ years...found out when I was 50. Had "D" a lot, lots of pain on BM...etc for many years.

Now i have been gluten-free for 4 years but find that i have to use baby wipes to be "clean" and that doesn't always work. There is a lot of irritation and even pain, especially if i have been CC or glutened. All the time i use baby wipes but later find that i am still not clean. I think that the skin is really iritated, not from the baby wipes but from the BM.

IS this from getting old? Or just too much gluten for all those years? Carrying baby wipes all the time gets annoying.

I haven't asked a doctor about this but all the docs seem spectacularly incompetent when it comes to day-to-day celiac problems.

Anyone have the same problem?

I take probiotics every day---however, my allergist suggested I take Colon Health by Phillips which can be bought at CVS over the counter for $17.99. That has made an amazing difference for me. Good luck!

Skylark Collaborator

I had that problem back when I'd get into days of chronic diarrhea. A diaper rash cream works wonders. My favorite is Balmex but Desitin is fine too. It soothes the irritation and the coating seems to prevent the BM from irritating your skin so badly. I used a panty liner to keep it off my clothes.

TrillumHunter Enthusiast

Is it possible you have a yeast infection? That can cause a burning type of pain and is common in folks with frequent diarrhea.

Also, baby wipes might not be the best thing for broken skin. At home, you might try using a squirt bottle with warm water and very little mild soap followed by PATTING dry. Maybe save the wipes for outings.

Keep after your dr to take care of you!

dilettantesteph Collaborator

I found that baby wipes made things worse. I had started using toilet paper slightly moistened under the tap instead. In a public washroom you can go to the stall, get some toilet paper and moisten it before you go in. That is, if you aren't racing to get there as fast as possible. LOL

If you are still having a lot of D, you might need to clean up your diet a bit.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.