Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cross Contamination From Gluten Free Oats?


Roda

Recommended Posts

Roda Rising Star

I react badly to certified gluten free oats. I get severe abdominal pain, cramping, bloating, heartburn, bowel troubles and rash on my back side. I do use alot of Bob's products and Bob's does process gluten free oats. If these, and probably are, are processed in the same facility as the other gluten free grains, could the cross contamination in sensitive people cause an elevation in antibodies? I have recently ruled out everything under the sun for my symptoms over the last six months plus and the doctor said I am definately having a flare of the celiac. I had my antibody tests redone and the gliadin IgG is still elevated (strong positive) and has been for the last 1 1/2 years everything else is alright at this point. I am grasping at reasons for this. I am making more changes at my house, but I don't think that it is enough. I did email the company many months ago concerning this question and recieved no reponse back.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If I remember correctly Bob's gluten free items are made in a dedicated plant, could be wrong though. Do keep in mind that there seem to be more of us that don't tolerate oats than do. You may be one of us who doesn't.

GlutenFreeManna Rising Star

I have read that some react to Oats the same as Wheat, Barley and Rye. Some lists even list oats as containing gluten though I think that is debatable. I have tried some certified gluten free oats and did okay with them but I don't eat them very often because I have read so much about oats (and other gluten-free grains) being cross-contaminated if not in the factory then in the fields themselves.

glutenfr3309 Rookie

I react badly to certified gluten free oats. I get severe abdominal pain, cramping, bloating, heartburn, bowel troubles and rash on my back side. I do use alot of Bob's products and Bob's does process gluten free oats. If these, and probably are, are processed in the same facility as the other gluten free grains, could the cross contamination in sensitive people cause an elevation in antibodies? I have recently ruled out everything under the sun for my symptoms over the last six months plus and the doctor said I am definately having a flare of the celiac. I had my antibody tests redone and the gliadin IgG is still elevated (strong positive) and has been for the last 1 1/2 years everything else is alright at this point. I am grasping at reasons for this. I am making more changes at my house, but I don't think that it is enough. I did email the company many months ago concerning this question and recieved no reponse back.

gluten-free oats make me sick (i think). i'm going to try them one more time just to make sure it wasn't something else that i ate since i typically won't feel some effects until days later. it's a shame because i loved eating oatmeal for breakfast. i used to EVERYDAY a year ago!

Roda Rising Star

Thanks for the input. :) My question is not if I could have a problem with gluten free oats, as I already know that I do. Rather, could the potential cross contamination from the gluten free oats with other gluten free grains cause problems especially with the antibodies? Bob's does process the gluten free stuff in a dedicated facility so it would stand to reason that they would process their gluten free oats there as well.

Edit: I just spoke to a rep and the gluten free oats are processed in the same facility and lines as the other gluten free products. They have a clean down process of high powered air and then discard the first 30 lb of product during the first run. I may just try to find a different brand and see if it makes a difference. Bum too, since Bob's stuff is readily available to me.

dilettantesteph Collaborator

I also react to gluten free oats. It was like the gluten reaction, but I think that it was more severe. I had the same conversation with Bob's and did feel better when I stopped eating their products. I felt better when I switched to gluten free pantry. Now I process my own whole grains. I hope that it makes an improvement in your health.

tarnalberry Community Regular

I don't know if BRM sources gluten free growers (like Cream Hill Estates). If not, there could be contamination from the fields (since oats are usually grown in rotation with wheat). You might try a dedicated grower. Otherwise, I would assume you are one of the 1-in-10 who react to the oat protein with a celiac reaction.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Thanks for the input. :) My question is not if I could have a problem with gluten free oats, as I already know that I do. Rather, could the potential cross contamination from the gluten free oats with other gluten free grains cause problems especially with the antibodies? Bob's does process the gluten free stuff in a dedicated facility so it would stand to reason that they would process their gluten free oats there as well.

Edit: I just spoke to a rep and the gluten free oats are processed in the same facility and lines as the other gluten free products. They have a clean down process of high powered air and then discard the first 30 lb of product during the first run. I may just try to find a different brand and see if it makes a difference. Bum too, since Bob's stuff is readily available to me.

Okay, now I understand what you were asking better. This could explain why I react to anything by Bob's Red Mill (even though I don't react to gluten-free oats made by other companies). I don't buy their gluten-free products anymore, which is a shame because they are the most common ones around here. I wonder what their testing criteria is for gluten free? How many PPM do they allow in their oats and other products?

Skylark Collaborator

My bag of Bob's oats says they are grown in dedicated fields and tested for gluten. I looked at the website and they're using the R5 elisa which is quite sensitive. R5 does NOT detect aveenin, so they are not testing their other flours for any sort of oat CC.

I found a 2006 post on this forum that quoted the BRM website as saying they cut off at 20 ppm. The link is dead and I'm not finding a ppm limit on the current website. I found a Facebook page talking about the testing and they seem to have carefully avoided putting a number on the ppm gluten there as well.

sunnybabi1986 Contributor

Okay, now I understand what you were asking better. This could explain why I react to anything by Bob's Red Mill (even though I don't react to gluten-free oats made by other companies). I don't buy their gluten-free products anymore, which is a shame because they are the most common ones around here. I wonder what their testing criteria is for gluten free? How many PPM do they allow in their oats and other products?

Here is Bob's Red Mill's explanation on their gluten free oats: Open Original Shared Link

It doesn't list how many ppm they test to, but I'm sure they'd be happy to tell you if call them :)

Roda Rising Star

I looked at the website and they're using the R5 elisa which is quite sensitive. R5 does NOT detect aveenin, so they are not testing their other flours for any sort of oat CC.

Yes this was what I was wondering about the CC from aveenin. I guess I didn't explain myself well. :P I just don't know what to do with all of the stuff I have around. I'm also not looking forward to the cost of replacing it all either.

Roda Rising Star

I also react to gluten free oats. It was like the gluten reaction, but I think that it was more severe. I had the same conversation with Bob's and did feel better when I stopped eating their products. I felt better when I switched to gluten free pantry. Now I process my own whole grains. I hope that it makes an improvement in your health.

Wher do you buy your grains?

dilettantesteph Collaborator

Wher do you buy your grains?

I get my sorghum from Twin Valley Mills. They clean their harvesting equipment for two days before harvest. Nontheless it is shared and I found a wheat berry after sorting through over 30 pounds of sorghum, so I sort and wash. Quinoa I get from Ancient Harvest and also wash (with soap), I stopped eating buckwheat, but the best source seemed to be Burkett Mills. My millet source had no wheat growing within 100 miles and a dedicated facility but I found about 100 wheat berries in a 30 lb bag so I won't give you their name. I got better stuff from Eden Organics. It seems O.K. if I sort and wash. Rice from Lundbergs. Teff from The Teff Company.

I am very sensitive. A typical celiac shouldn't have to do all the sorting and washing.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    2. - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    3. - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

    4. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,849
    • Most Online (within 30 mins)
      7,748

    TonyP27
    Newest Member
    TonyP27
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Was the card itself lost or just the record or both?
    • Francis M
      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.