Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mcdonald's "cannot Disclose Allergen Information?"


IngridBeth

Recommended Posts

IngridBeth Apprentice

Arrgh, I am frustrated!!! Today I was running back-to-school errands with the kids, and though we don't often do fast food we swung by McDonald's for some lunch. I asked them about gluten-free info, and the girl had no idea what I was talking about so she got the manager. He just showed me a "nutrition information" list which had only fat and calorie info, etc. I told him this has nothing to do with gluten free info - it's a wheat allergy and I need to know what contains it what doesn't. The manager informed me they are not allowed to disclose allergen information "in case you're allergic to something else in the product." So, they won't tell me what has no gluten because I might be allergic to casein and not know it? This makes NO sense! I kidn of interpreted it as "we don't want to get sued," but really, this is just ridiculous. I know the food there is not healthy, as one friend pointed out, but it's the principle of the thing. Even if they had no gluten free food that would be one thing, but to not be able to even tell me? I would assume others with Celiac must have encountered this, right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Arrgh, I am frustrated!!! Today I was running back-to-school errands with the kids, and though we don't often do fast food we swung by McDonald's for some lunch. I asked them about gluten-free info, and the girl had no idea what I was talking about so she got the manager. He just showed me a "nutrition information" list which had only fat and calorie info, etc. I told him this has nothing to do with gluten free info - it's a wheat allergy and I need to know what contains it what doesn't. The manager informed me they are not allowed to disclose allergen information "in case you're allergic to something else in the product." So, they won't tell me what has no gluten because I might be allergic to casein and not know it? This makes NO sense! I kidn of interpreted it as "we don't want to get sued," but really, this is just ridiculous. I know the food there is not healthy, as one friend pointed out, but it's the principle of the thing. Even if they had no gluten free food that would be one thing, but to not be able to even tell me? I would assume others with Celiac must have encountered this, right?

McDonald's is pretty good about disclosing all ingredients. Here is a listing of their products and their contents:

Open Original Shared Link

Wendy's:

Open Original Shared Link

Darissa Contributor

The same thing happened to me when I first went gluten free. I was working, on the road, and stopped in during their breakfast. I was wondering about the sausage and eggs or any other options. I didn't know much about gluten free, as it had only been a couple of months at that time since going gluten free. I was told the same thing by the store manager. The manager did tell me they did not disclose any allergy information inside the actual McDonalds, but that there was information online I could look up on my own. We have never eaten at McDonalds since going gluten free, and probably never will. So, I have visited the online site since, but have not been back to the resturant.

Lisa Mentor

I can attest that beginning the gluten free lifestyle is challenging at best. It takes months and months to learn the ropes and additional months until you can master the diet. It takes countless hours on the internet and a memory like a steel trap to retain all the information.

A burn out it not unnatural, but rather the expected.

Take small steps:

1. Find everyday foods, at home.

2. Research one place that you can eat out, if needed. Expand with research.

3. Be kind to restaurants. Call before the rush. Talk to the manager and do your homework

before hand. And don't assume that every minimum wage employee knows about Celiac or a gluten

issue. No one knows more than you.

4. Take a deep breath...know that the world does not evolve around you and that other people

with Celiac Disease will follow you. REPRESENT WELL!

5. SMILE!

It is a struggle. What IS important....be patient with yourself. :)

Juliebove Rising Star

I don't trust McDonald's at all because they were not truthful in the past about their ingredients. If for some reason we did have to eat there, I would get the apples because they are pre-packaged and I know they are safe. I might also get a side salad if they had one. Not all of them do. And a drink. But nothing else.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.