Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Change In Taste?


Steve Moody

Recommended Posts

Steve Moody Newbie

As I continue to heal, I find that certain things are starting to change in flavor. Tonight, I made a batch of steel cut oats (nom nom!), and put my normal tablespoon of cinnamon in my bowl, and find that I no longer like what EVERYONE has told me is entirely too much cinnamon, but was always very tasty for me.

Is it unheard of for a celiac to suddenly find that flavors once enjoyed are no unpleasant?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

First off, you know you probably shouldn't be eating even gluten-free oats. Most things I have seen say to wait until healed to try them. Some celiacs react to the gluten in oats. Regular oats are contaminated with wheat.

I have found that some food tastes different now. Still love way to much cinnamon! :)

Just read your info. Not sure about the recommendation for gluten-free oats for intolerance.

sandsurfgirl Collaborator

Ditto about the oats. Oats and wheat are alternated in fields year by year. Wheat of course will sprout up in the field so most oats are contaminated. There are gluten free oats supposedly. I haven't dared try them yet although I'd love to. Oats are a great source of fiber and they taste good, but I'm scared. And yes, celiacs can react to oats too. I think it's like ten percent but don't quote me.

As far as taste, yes! I eat so clean now that chemical stuff especially tastes really bad. All soda tastes like soap and chemicals to me. I can drink the all natural Hansen's soda made with real sugar and natural flavors, but Coke, Sprite etc. taste SO nasty I gag.

I quit artificial sweeteners years ago, so I have no idea how that would taste now but I bet it would be gross.

sa1937 Community Regular

Any idea how long it should be before trying oatmeal?

I've been gluten free for 5 months and just bought a bag of BRM gluten free oats but haven't tried them yet. I do need to make sure that when I do, I need to plan to be home that day (just in case). I really do miss having oatmeal.

miles Rookie

I started gluten-free oats after about 3 months, but we all heal differently.

I eat oatmeal 5-6 days a week without issue, and Bob

srall Contributor

Ditto about the oats. Oats and wheat are alternated in fields year by year. Wheat of course will sprout up in the field so most oats are contaminated. There are gluten free oats supposedly. I haven't dared try them yet although I'd love to. Oats are a great source of fiber and they taste good, but I'm scared. And yes, celiacs can react to oats too. I think it's like ten percent but don't quote me.

As far as taste, yes! I eat so clean now that chemical stuff especially tastes really bad. All soda tastes like soap and chemicals to me. I can drink the all natural Hansen's soda made with real sugar and natural flavors, but Coke, Sprite etc. taste SO nasty I gag.

I quit artificial sweeteners years ago, so I have no idea how that would taste now but I bet it would be gross.

Yup...I can definitely taste the chemicals too. And I have always had a huge sweet tooth and now sugar is too sweet for me (ha ha)

I can't believe I now crave meat and salads.

Since I'm self diagnosed, I'm still trying to figure out how sensitive I am to gluten, although it seems to me that I'm pretty darn sensitive, and I can eat Bob's Red Mill gluten free oats. It doesn't hurt my stomach, but if I don't eat oatmeal with an egg it feels like a carb overload. I've been gluten-free about 6 months I think.

sa1937 Community Regular

Thanks for the replies...guess I'll test the waters one of these days and hope I'm one of the celiacs who can tolerate gluten free oatmeal (at least occasionally). Of course, I have no idea yet how I'm healing...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

I've been gluten free for about 9 months but I'm waiting on gluten free oats. However I was extremely ill when I got diagnosed. It took me 6 months gluten free to start feeling good. So for me it's just not time yet.

sb2178 Enthusiast

I was going to wait on the oats until after my first follow-up bloodwork. If for some reason, it's not back into the normal range (would be very weird as was barely elevated), I won't. If normal, I'll try them.

As for taste changes: absolutely. I was already a pretty healthy eater in terms of fruit veg whole foods etc but I'll now eat some of the produce I didn't like before. I'm not eating it like it's candy, but I can eat avocados, tomatoes and bananas without making faces. Turns out, I'll also eat flan/pudding when before I would not. Some of it is probably just being hungry; some is probably an almost complete end of GERD. (Woohoo!!!)

I don't think I've started to dislike anything...

WheatChef Apprentice

Changes such as these can occur without any sort of change in interference from food intolerance related issues. As you change your diet in any form your body gets used to obtaining energy from new sources. Because of this change of sources of energy and nourishment your mind makes different associations of what to tell you is a favorable (tastes good, causes salivation, charges enzyme production) and what is not favorable. This is why people who eat absolute crap food either don't find anything pleasurable or can't appreciate the same subtlety of flavors, your tongue/stomach/gut change what your opinion of food is.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,034
    • Most Online (within 30 mins)
      7,748

    CE1963
    Newest Member
    CE1963
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.